I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: celtic warrior on May 29, 2008, 01:40:42 AM

Title: First time with Fistula
Post by: celtic warrior on May 29, 2008, 01:40:42 AM
Well , Maria is at the Dialysis Center today, and it is going to be the first time her Fistula is used.
We are both hoping everythin runs o.k. and then she can stop taking her Warfarin.

Just realised that I forgot to update you about her anti GBM antibodies  :Kit n Stik;
We spoke to the Nephrologist about the rise in the antibody levels,and told him of our concerns.
Telling him that we KNEW they were presently at 225, and that they were at a level of 428 when it damn near killed her.
He assured us that they were going to do a monthly check on the levels (along with her normal bloods) and that they were
fully aware of the situation. However, he did not want to start treatment with Cyclophosphamide and Prednisolone until
he was sure it was absolutely needed,as it is such a powerfull treatment  (as if we did`nt already KNOW that, with Maria going through it before)
So, for the moment we are going to bow to his wishes, but are we gonna JUMP on him if anything starts to go wrong.

Well, thats all for now, sorry it took so long to update you ::)
Tony.
Title: Re: First time with Fistula
Post by: 2_DallasCowboys on May 29, 2008, 04:28:06 AM
Hi,

Just wanted to say I will be thinking and
praying for Maria this AM.  I know how scary
the "first time" with the fistula can be.
Sending you and her best thoughts from NJ

Anne
Title: Re: First time with Fistula
Post by: monrein on May 29, 2008, 05:14:57 AM
Hope it all goes well today for Maria with the fistula and be sure to keep on top of the doctor.   :grouphug;
Title: Re: First time with Fistula
Post by: willieandwinnie on May 29, 2008, 06:41:12 AM
celtic warrior, I'll keep Maria in my thought this morning that the fistula has a perfect run.  :cuddle; Let us know how it went.
Title: Re: First time with Fistula
Post by: celtic warrior on May 29, 2008, 07:50:44 AM
Thank you all for your kind thoughts and prayers.


how did it go?  :yahoo; :2thumbsup; :yahoo; :2thumbsup; :bandance; :bandance; :bandance; ;D
I think the nurse was more nervous than Maria, who tells me she never felt a thing, well, nearly nothing.
Mind you, after the ammount of Emla cream she put on I should`nt think she COULD feel anything ;)

She removed the dressings a few minutes ago,,and it is just possible to see where she was stuck. I was amazed, I expected to see 2
great puncture marks.

see you all later
Tony.
Title: Re: First time with Fistula
Post by: devon on May 29, 2008, 08:12:19 AM
THanks, Tony, for sharing this.   As someone who is just a few steps behind you, it's helpful to "see" someone else going through this process ahead of me.

-Devon
Title: Re: First time with Fistula
Post by: lola on May 29, 2008, 08:21:22 AM
Tony so glad everything went so good :bandance;
Title: Re: First time with Fistula
Post by: rose1999 on May 29, 2008, 08:27:12 AM
That must be such a relief for both of you................ :yahoo;
Title: Re: First time with Fistula
Post by: Psim on May 29, 2008, 08:32:15 AM
I'm so glad it all went well!
Title: Re: First time with Fistula
Post by: kellyt on May 29, 2008, 11:44:30 AM
 :clap;
Title: Re: First time with Fistula
Post by: monrein on May 29, 2008, 11:51:48 AM
That's what we like to hear. :yahoo;
Title: Re: First time with Fistula
Post by: paris on May 29, 2008, 12:23:54 PM
So glad it went well for Maria.  I love to hear all the details because that is how we learn and prepare for when it is our turn.  Thanks for sharing.
Title: Re: First time with Fistula
Post by: Ohio Buckeye on May 29, 2008, 02:47:57 PM
Glad it went well for Maria.
Hope it continues to be that way.
Title: Re: First time with Fistula
Post by: kidney4traci on May 29, 2008, 03:30:31 PM
Here's to her not being a virgin anymore!  Ha ha ...  Glad it went well!!