I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: MyRenalRomance on May 21, 2008, 09:22:50 AM
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I'm so sorry I've been away from the boards for so long . . . life w/ 2 teens gets really hectic!
Well, I'm BACK, and I bear good news! I have been notified that I will receive my new kidney in less than 1 month. My brother, graciously and gerously offered to be evaluated back in November. He was just notified that he was approved as my donor! If all goes as planned, I check into the hospital on June 19th, and will receive my new kidney on June 20th. I am still in shock, a little nervous, but REALLY EXCITED!!! :yahoo;
I plan to read ALL the posts in this Topic, so I'd better go, and start reading!!!
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:bandance; :bandance;
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:yahoo; :yahoo; MyRenalRomance. :bandance; Congratulations. :clap; :clap; Please keep us updated.
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:bestwishes; :bandance; :bestwishes;
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:2thumbsup; That's fabulous! :waving; Tell your brother I think he's great! :bandance; Happy dancing here! :bandance;
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YAY for you!!!! That is WONDERFUL news!!!!!! :bandance; :bandance;
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Congratulations and hugs to your brother. He rocks.
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Great news! :thumbup; Good luck, and please keep us posted on how everything goes.
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:yahoo; WOOO HOOOO :yahoo; Congratulations!!!! :yahoo;
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That is absolutely wonderful! June is a great time for a transplant!! I'll be getting mine on June 10th. Keep us posted, I want to hear how it goes! Best of luck to you and your brother! :bandance; :bandance; :bestwishes; :bandance; :bandance;
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Excellent! Congratulations! Youre brother is wonderful!!! :bow;
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What great news! And a great brother to offer. How exciting !!!! Tell us how it goes......
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Fantastic news MRR.
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:yahoo; Congratulations :2thumbsup;
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:bandance; :2thumbsup; :yahoo; :clap;
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:yahoo; Praise the Lord!!! Hug your brother for me ;)
Lori/Indiana
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I'm so sorry I've been away from the boards for so long . . . life w/ 2 teens gets really hectic!
Well, I'm BACK, and I bear good news! I have been notified that I will receive my new kidney in less than 1 month. My brother, graciously and gerously offered to be evaluated back in November. He was just notified that he was approved as my donor! If all goes as planned, I check into the hospital on June 19th, and will receive my new kidney on June 20th. I am still in shock, a little nervous, but REALLY EXCITED!!! :yahoo;
I plan to read ALL the posts in this Topic, so I'd better go, and start reading!!!
:waving; Hey MyRR - I am happy to see you posting again! I hope you continue this thread and keep us informed about your upcoming transplant! :clap;
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:thx; Thank you to everyone for the congratulations and good wishes! I really appreciate your thoughtfulness. :grouphug;
I shall keep you updated.
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:bandance; :bandance; :bandance; Congrats!
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:2thumbsup; :yahoo; :clap; :clap; :clap; :yahoo;
Congratulations So great to hear !
and so near can't wait !!!!!
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CONGRATULATIONS :clap; The day is almost here. :bandance; You must be incredibly excited. :yahoo;
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Keeping my fingers crossed for you :grouphug;
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It's almost here. How exciting (maybe a little nerve-wracking as well) and I hope everything goes really smoothly for both you and your brother.
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What a wonderful brother you have. So glad he was approved for donation to you.
Good luck to you both.
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:bestwishes; i wish u da best :beer1; here's to a successful transplant and a speedy recovery
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I hope everything is going great for you! =)
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Thinking of you and hoping everything went great!
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Hope all went well. :waving;
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MMR is home, doing well, and says she will post when she can.
:bandance; :bandance; :bandance;
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Fantabulous :clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap;
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:bandance; :bandance; :bandance; :clap; :clap; :clap; :bandance; :bandance; :bandance;
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Awesome News! :2thumbsup;
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Awsome! :bandance; :bandance;
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GREAT NEWS!!
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:yahoo; wonderful news :bandance;
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:yahoo; :yahoo; :yahoo; :yahoo; WOOOOOOOOOO HOOOOOOOOOO!!!! :yahoo; :yahoo; :yahoo; :yahoo;
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Hello everyone, :waving; :waving; :waving;
I did receive my kidney from my (incredible and awesome) brother on June 20th. He was discharged on the 23rd and I was home on the 24th. I had meant to keep a journal while at the hospital, but sadly, I did not. Now, the days spent at the hospital are all blurred together. I'll attempt to collect my thoughts in a cohesive manner, and relay them to you, as soon as I can. I am so happy to be home. The Stanford Hospital nurses were all so nice, and I had a wonderful surgeon . . . but ya can't beat HOME SWEET HOME!
My surgeon took out my peritoneal dialysis catheter (YAYYYY!) He said my brother's kidneys were BIG and HEALTHY! So, I suppose that means I have a big and healthy kidney, now! :yahoo;
I had my first post op visit, this morning. My creatinine is .86 I'm very pleased.
These are my meds:
PROGRAF: 7 mg twice a day
PREDNISONE: 20 mg once a day (tapering off during the next 6 months)
CELLCEPT: 750 mg twice a day
PENTAMIDINE: 300 mg one treatment per month
VALCYTE: 450 mg MWF
NYSTATIN: 5cc three times per day
IRON, VITAMIN C, MULTIVITAMIN, STOOL SOFTENER, PRILOSEC & COATED BABY ASPIRIN
and of course . . . a pain reliever (DILAUDID) which I hope to be off of by the weekend. If needed, Tylenol will be taking its place.
Well, its almost time for my 10 pm meds, so I'll sign off for now. Thank you to EVERYONE for all of your support, encouragement, and good wishes. It has helped me so much through my dialysis and my transplant. I hope you don't mind if I lean on y'all some more in the upcoming time. This site is such a wonderful community. My sincerest appreciation to my friends, here! :thx; :cuddle;
Charlene
(aka MRR) :grouphug;
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Hi Charlene :yahoo; great news that all is going so well with that 'big healthy kidney' :2thumbsup; You've got a great brother. Wishing both of you all the best - keep in touch and don't forget us :grouphug;
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So glad things are going well for both you and your bro. I just love reading successful transplant posts. :yahoo; :clap; :yahoo;
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Congratulations Charlene :yahoo; :yahoo; :yahoo; :bandance; :bandance; :bandance; :clap; :clap; :clap;
Thank you also for sharing your list of meds.
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Glad to know you are doing well.
I hope the medical staff at Stanford is treating you like a queen.
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Absolutely wonderful news! What an awesome brother you have!!!
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Hello everyone, :waving;
Thank you for all your wonderful words of support! I've been meaning to write up a more technical post, recounting my stay at the hospital, but I've not reconstructed the days, yet, unfortunately! I'd like to write something up to help others get an idea of what my transplant hospital stay was like, so when their time comes, they'll have somewhat of an idea what their's might be like. :grouphug; This community has helped me so much, like I had said, before, I'd like to contribute back.
I'm still getting acclimated here at home: remembering to take all my meds on time, dealing w/ pain management, and TRYING to take it easy . . . I don't realize I'm doing too much, don't relax enough, and boy, do I pay the consequences! I am drinking my fluids, tho!!! (Think I might invest some $ in a company that manufactures toilet paper! - sorry - BAD JOKE)
So, "Nabby" is 1 week and 2 days old!!! (and doing well, thank you very much!) Yes, I did name my new kidney. I know - I'm so weird, but he's all mine, now, so I can do what I want! LOL
I had really wanted to name my kidney "Davey" (AFI), but my dear dear brother, my donor, isn't too familiar with my favorite band (unfortunately!), and I really wanted to choose a name that was meaningful for both him and me.
Here's the story (long version - sorry!): Surgery was, originally, scheduled for June 11, 2008. I called the surgeon's office in a panic. I wanted my new kidney, ASAP, but my older daughter was graduating high school on the 12th and my younger daughter was graduating middle school on the 13th. We had relatives coming in from out of town, and a very lovely dinner party celebration planned at Forbes Mill Steakhouse for us, my family and hubby's family on the evening of the 13th. Surgery on the 11th would have thrown life into complete and utter chaos for everyone!
My surgeon suggested postponing the transplant to a Friday (normally, he performs kidney transplants on Wednesdays, as he is guaranteed op room time every Wed.) If he scheduled us for a Friday, we'd be on "standby" and could get "bumped" (THIS IS SURGERY STANFORD - NOT AN AIRLINE FLIGHT!! LOL). But, my wise & wonderful surgeon, Dr. Busque, said to relax & enjoy both graduations with my beautiful children and our families, and then proceed w/ the transplant. He would choose a Friday when he was "on call" for the weekend so he could follow up w/ my brother and me during the weekend.
I was torn. I wanted my new kidney sooo badly, but could not bear the thought of missing my girls' graduations. My surgeon informed me that June 20th was a good date for the transplant. I was distraught that I would have to wait, but ultimately, it was a wise decision that I absolutely do not regret - PATIENCE.
My younger daughter, in all her youthful wisdom, pointed out that June 20 was a good date because it was a good omen. SJ Sharks hockey goalie, Evgeni Nabokov's number is 20. "Nabby" is one of the most talented, hardest working, most dedicated, and unrelenting hockey goalies, EVER! Sharks fans adore him! (and if you know anything about me - you know I'm a Sharks fan(atic!). It was very fitting to name my kidney "Nabby". I want my new kidney to have all the strong and positive qualities as Evgeni Nabokov/"Nabby". And, my brother is a Sharks fan, too!
So, I'd like to introduce you to my new kidney "Nabby". I ran this name past my brother, and I could have sworn he looked at me like I was crazy. However, being the dear, gracious, generous, and loving brother that he is, he gave me his acknowldgement that naming my/our kidney "Nabby" was fine with him! :cuddle;
MRR
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Great story MRR. All the best to you, your brother and of course Nabby. May he keep on making power pees. :rofl;
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It's great that you were able to go to the graduations. Happy to hear that all is well. :bandance; :bandance; :bandance; :bandance;
Urine my thoughts! and Nabby, too :2thumbsup;
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That ought to be a new IHD motto...Urine our thoughts. Love that. :clap; :clap;
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Monrein & Pelagia - you crack me up!!! :rofl; "Power pees" & "Urine my thoughts" :rofl;
luv,
MRR
P.S. The very first thing my post op nurse said to me, after introducing herself, was that I was "peeing like a racehorse!" LOL