I Hate Dialysis Message Board
Off-Topic => Other Severe Medical Conditions => Topic started by: angela515 on May 02, 2008, 08:52:52 PM
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OK, so I spent the last week in the hospital.
Story starts Monday morning when I wake up to get my kids ready for school.... I have a fever 100.5. OK, So I take some Tylenol and get my kids off to school. I ain't concerned at the time even though I am not supposed to have a fever being immunosuprressed, because I have aches all over my body as well. So I am thinking the flu. 2 hours go by, I take my temp again because I am feeling worse, and it's 101.5, still can't take anymore Tylenol so I go back to sleep. Wake up an hour later and take my temp again and it's 102.0, I call my dad and he takes me to the ER at the local hospital.
I get back right away, (YAY For small towns.) and they start taking my temp and blood pressure and asking questions. I tell them I was just here on the 17th for a fever and they send me home with 10 days worth of Levaquin. They ask did it help? I said, my fever didn't come back until today, but I felt like sh*t every single day and been throwing up alot. So they drew labs and we waited. They kept coming in to take my temp and it finally had risen to 103.5, they got very concerned fast. They left a message for my kidney Dr to call back and they started an IV and a gram of antibiotics to keep me from going septic. My rash I been having on my legs just happened to show up as well and I showed them that and the doctor there said it looked like Fifths Disease and ran blood tests for that. My labs came back, and my creatnine was up to it's highest it's ever been since my transplant, 2.1. I almost started crying right then, I was very worried.
So, my kidney doctor finally calls back and wants me transferred and admitted to Mercy in town so they can take care of me. So I wait for a room at Mercy to become available, it didn't take long and the ambulance took me to Mercy. I went straight to my room and in the bed. Fever came down to 101.0 and a few hours later my kidney Dr was in the room. He started by letting me explain everything that's been happening since my first visit to the ER on the 17th and I did. So he told me he was going to start running every test under the sun and that he had high hopes my creatnine was that high from weeks of throwing up and that I was dehydrated since I had no tenderness when he pushed over the transplant area. He started me on 24hour IV fluids and a broad-spectrum antibiotic. The same day I went downstairs for a chest x-ray and a cat scan of my sinus's. That morning I woke up and he came and told me that my creatnine was back down to 1.5 and he found out the cause of all my problems. I have severe Sinusitis. Since the blood vessels to the sinus cavities are very small and hardy any, I have to be on Amoxicillan for 4 weeks and maybe longer depends when he sees me June 5th.
I got to go home this afternoon, he wanted me on IV antibiotics for that whole week and when I left my creatnine was back down to 1.2. I filled my prescriptions and I am hoping they get this infection gone because it's treating my body horrible. I still get fevers and stomach aches and my whole body aches, and this won't go away until that goes away b/c it's causing it.
I also found out that the Fifths Disease test came back positive, and there is nothing you can do but wait it out because it's viral. It's a children's disease, and I go it because of my immune system being non existant. I have some major issues with some things happening to me right now and what this website says about it for ppl like me with immune system problems... so I am definitely printing it off and showing it to my kidney dr on 13th, however I will call them tomorrow and voice my concerns.
http://www.cdc.gov/ncidod/dvrd/revb/respiratory/parvo_b19.htm
That is all for now. I am home, taking my antibiotics and drinking lots of fluids... and hoping it don't take month's for all this to get better.
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Oh Angela, what a nightmare! So glad you are ok.
I knew I had seen that rash before, it was in a Family Medical Guide I had when my kids were little, and it mentioned Fifth Disease.
Sorry, I just couldn't recall. Hope you are better every day. :cuddle;
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Glad they eventually found out what it is, what a worrying time you had. Hope all will go well and you will soon be your old self again. :grouphug;
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Awww, man that really sucks. I hope you get better really quickly! I am so glad your kidney function got better right away. Take it easy and get lots of rest!
For Fifths Disease:
:Kit n Stik;
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Angela :cuddle; so glad you are back home. You have had a bumpy ride the last couple of weeks. I hope the antibiotics kick in and this will just be another memory. Keep us posted. :grouphug;
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:cuddle;
Wow. Sorry Angela.
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I can just imagine your worry about the jump in your creatinine. I could almost feel the panic with you. WOW I'm glad they figured it all out and you are home and recuperating. :grouphug;
Won't be long now Angela and you will be up and back to normal, whatever normal is. :)
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Ok, I spent all day in bed taking Tylenol and my fever is still 103.1, I called the doc, and yes... I am heading back to the hospital now to be admitted again for more IV antibiotics.... Hope to be back soon. :(
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Hang in there and get well soon!
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when i first got my transplant at 19 my creatnine out of the hospital was 1.7....then within 3 months it jumped to 2.1 but my kidney ended up lasting 14 years so dont feel to bad about those numbers.
@ the 4 and 7 year i had pneumonia and the levels were like 6 and 7 but they came down to like 3's.
I assume everytime i got a sick it jumped. So try not to worry so much about it. Its the broken part in your body and it will be the first to cry for help always but as soon as you get better it will also.
Your immune system will get stronger eventually and youll find yourself getting sick as often as everybody else........BUT yours will always last longer.
I can remember 3 weeks flu's. 2 months cold's etc........
Probably the sinlge most important thing other than salt and protein is keeping your blood pressure under control.
If you watch out for those youve done your part.
keep up the fight. :boxing;
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Hang in there Angie :grouphug;
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So sorry this isn't as simple as we've been hoping it was. Get well soon. We miss you.
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angela, I'm so sorry. :cuddle; I sure hope they get this straightened out soon. Take care and know that we will be thinking and praying for you. Keep us posted.
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Get well soon, Angela! <3
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at least they figured out where the rash was coming from. hope you're soon feeling better :grouphug;
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Get well soon Angie thinking of you
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get well soon Angela. Those sinus infections can be awful!!! :cuddle;
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Sorry to hear you're not feeling well. I know how frustrating it is with the creatinine jumping around. Feel better soon :grouphug;
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migaguiar: Uhm... I have had a transplant before, this isn't my first so sorry if i sound rude, but I already knew all that as I have dealt with this stuff before.
Anywho.
Just got discharged from the hospital today.
Lots of things happened, so let me try to get them all in here:
Day 1 they drew blood cultures again, they also did a chest x-ray due to the pain I was having on my right side. They then started be back on the IV antibiotics. Sunday morning my kidney doctor came in with bad news. My white blood cell count was critically low and so was my red blood cell count. I also had something in my right lung, so they called a lung doctor. My kidney doctor stopped my Rapamune because it can cause lung problems and it also can lower white blood cells. They upped my Prograf since I was only on that for anti-rejection. The lung doctor ordered a cat scan of my lung and also scheduled me for a procedure to go down my lung. Once the cat scan came back he got everything up in my room and ready for the procedure. Now that they took out my bed and brought in an ER bed, my room looked like a little OR room. I got up on the bed, hooked up to the heart monitor, blood pressure machine, and oxygen. The doctor came in, gave me my medicine to put me to sleep and I woke up 2 hours later with the nurses helping back over to my bed. The procedure only took 10-20 minutes, and they got their samples. However I had been on antibiotics the last 10 days and so as they were concerned the tests came back just showing I had an infection, but not what kind because the antibiotics were clearing it up.
Once the lung problem was fixed, I thought I would get to go home, but no my creatnine and BUN jumped up, so I had to stay for fluids and and an ultrasound, and finally back home today.
I feel like sh*t right now, but I am home and that's good in my book.
I will most likely feel like crap for still another month until the sinusitis is gone... and I still can't keep anything down... vomitting and feeling like I never want to eat again seems like a daily thing right now.
Angela
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:grouphug;
So sorry for you Angela! I hope you can rest and get better soon!
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Hopefully it will all be over soon and you can feel like your good ol chipper self again..here's hoping sooner than later :grouphug;
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Angela, I'm so sorry. I'll be thinking about you and hope you can get some much needed rest. Take care. :cuddle;
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Angela, this sounds very scary and unpleasant (to say the least); I'm so sorry you're going through all of this. I'm thinking of you and hoping things get better soon. :cuddle; :grouphug;
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Hi Angela! I'm so sorry to hear about what u r going throu. I hope they get u straightened out soon.
Take it easy, keeping u in my thoughts.
Robert :cuddle;
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Angela, I can't believe how much you have gone through. You are incredibly strong, although you probably don't feel that way right now. Rest, rest, rest. How are your little ones doing? I am sure they are glad you are home even if you feel so bad. Take care and remember we all love you :grouphug;
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:grouphug;
Don't know what to say. Get some rest. Love you! :grouphug;
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Thank you everyone. :grouphug; :cuddle;
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I really hope you feel better soon, Angela! <3 :bestwishes;
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:grouphug;
Glad that you are home and on the mend. I hope that every day gets better and better, and the worst is over.
Anna
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I am sending you best wishes for a quick recovery.
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Gee it's bad when you miss certain threads. I just found out about you Angela, so unhappy for ya having to go through this. But hoping it's all up and up now for ya.
Here's to a speedy return to good health !, where we all belong !
Take Care Tamara xxx ooo :grouphug; :cuddle; :grouphug;
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Wow, you are really having a tough time right now. Your body is going through so much trying to fight off infections. You must be exhausted.
I hope things get better soon. Hang in there.
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Keep on getting better Angela.
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How are you doing now? Please let us know. Our caring thoughts are with you. :grouphug;
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hope you're feeling loads better.
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Sorry I missed this thread, hope you are much better!! :grouphug;
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I lost 10lbs from this ordeal, I am slowly getting my appetite back, which I look at as learning to eat portion control... so its going good. I am eating so all is well. I am waiting for my Procrit shots to be approved, so i'm tired alot but pushing through it due to having to take care of my kids.
Thanks everyone. :grouphug;
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:cuddle; :grouphug; :cuddle;