I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Roxy on April 21, 2008, 09:19:03 PM

Title: going to the hospital
Post by: Roxy on April 21, 2008, 09:19:03 PM

Ok so since they switched me to Prograf, I have had ridiculously bad diarrhea and some minor vomitting. I've lost 14lbs in the past two weeks and can't eat anything. We're suppose to test this week for infections that would be found in the stool and if nothing shows then I'm switching to Rapamune I guess. I took a few days off work since I've been feeling really bad the past 2 weeks and tried working tonight. I was kidding myself to think I could work after not eating for a few days and losing so much weight. I almost passed out at work tonight and when I tried to eat I almost threw up. I called my doctor and he said I should go to the hospital. I have tried so hard to stay hydrated and everything but I just can't keep up with my body. I hate missing work and feel like I'm letting so many people down. I will be in the hospital for at least a couple days maybe a week I guess. I don't know....I just want to find a medication that I'm not so damn sensitive to!!!!!!!! Sorry, I just had to rant a little, I have just a mix of emotions right now. I'll check back when I can.

Title: Re: going to the hospital
Post by: okarol on April 21, 2008, 09:38:52 PM

Oh Roxy, that sounds just awful. Are they checking for VRE? I hope they figure it out - be careful about dehydration. Sending you some big HUGS!  :cuddle;

Title: Re: going to the hospital
Post by: willieandwinnie on April 22, 2008, 03:40:12 AM

Roxy, I'm so sorry.  :cuddle; I hope they get things straightened out and quickly. Try to get some rest and fluids in you. Keep us updated.  :grouphug;

Title: Re: going to the hospital
Post by: Sluff on April 22, 2008, 04:06:12 AM

Hope you are back on your feet in no time.  :grouphug;

Title: Re: going to the hospital
Post by: twirl on April 22, 2008, 04:22:59 AM

:rant;        rant on Roxy


I will be waiting to hear how things are going. ( I would had a flower here if I knew how)

Title: Re: going to the hospital
Post by: kitkatz on April 22, 2008, 06:24:31 AM

I hope you recover quickly and are out of the hospital soon!  :bestwishes; :bestwishes;

Title: Re: going to the hospital
Post by: Romona on April 22, 2008, 03:09:46 PM

 :grouphug;

Title: Re: going to the hospital
Post by: angela515 on April 22, 2008, 03:11:52 PM

I am on Prograf AND Rapamune... have had no problems with them at all. I hope you get it figured out soon. :grouphug;

Title: Re: going to the hospital
Post by: monrein on April 22, 2008, 04:17:08 PM

Good luck getting this sorted out.  We're pulling for you. :grouphug;

Title: Re: going to the hospital
Post by: thegrammalady on April 22, 2008, 04:21:30 PM

get better quick

Title: Re: going to the hospital
Post by: KT0930 on April 22, 2008, 05:18:21 PM

Hope they get it figured out for you, Roxy! Are they also checking for CMV?

Title: Re: going to the hospital
Post by: tamara on April 23, 2008, 04:38:53 AM

 :grouphug; hugs for ya roxy

thinkin of ya

Tamara xxx ooo  :cuddle; :grouphug; :cuddle; :waving;

Title: Re: going to the hospital
Post by: Lori1851 on April 23, 2008, 03:10:45 PM

Get well soon!!!!!!!
Lori/Indiana

Title: Re: going to the hospital
Post by: MyssAnne on April 23, 2008, 04:56:50 PM

Oh hon, that's just pure misery! I hope they figure it out soon, so you can get stabilized!!

 :bestwishes; :bestwishes;

Title: Re: going to the hospital
Post by: thegrammalady on April 23, 2008, 05:24:20 PM

rant away. hope you're soon well and back on-line

Title: Re: going to the hospital
Post by: Roxy on April 23, 2008, 10:36:51 PM

Thank you guys for all your comments. I just got home and do feel better. When I got in my creatinine was 3.4 and BUN 40, so I was very dehydrated. All of my levels were low as far as phos, potassium, etc. They got me stabilized enough to where the creatinine has come down to 2.4 and I'm still just a little dehydrated but I will fix that. I started Rapamune today and will slowly come off of Prograf as the Rapamune gets to the right level in my body. So far Cyclosporine and Prograf do not like me, but hey third times a charm right???  :-\  Maybe Rapamune will be the key.

Title: Re: going to the hospital
Post by: Sluff on April 24, 2008, 04:21:21 AM

Roxy, glad you are doing better.  :grouphug;

Title: Re: going to the hospital
Post by: willieandwinnie on April 24, 2008, 05:47:52 AM

 :cuddle; Roxy. Hope you continue to feel better. We are also going through the medication change dance and it is proving to not be much fun. Take care and drink.  :waving;

Title: Re: going to the hospital
Post by: MyssAnne on April 24, 2008, 04:49:56 PM

I'm glad you're stable (relatively!) Roxy!!!  Now for the hard part....taking the stupid pills AGAIN!!!

GOOD LUCK!!!!!!

 :2thumbsup;

Title: Re: going to the hospital
Post by: monrein on April 25, 2008, 09:43:00 AM

Hoping for pill compatibility this time around.