I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Nocturnal => Topic started by: Rerun on March 29, 2008, 09:15:25 AM
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I start my Incenter Nocturnal Dialysis sessions this Sunday night. They want me there at 7:45PM with a start time of 8:00PM. I am on 8 hours, so at 4:00AM I will come off. I am concerned that I won't be able to sit in that plastic chair that long. I'm going to shop for an egg shell pad today and also take a sheet. I'll have sweats on and a blanket.
I'm excited, if that is possible. I'm hoping that if I can sleep through this crap then I can continue my denial. >:D
My days will be free. They say you don't feel washed out. Best of all you can add dairy back into your diet. OMG I can't wait to go get a chocolate milk shake.
I'll let you know how things go.
:stauffenberg;
EDITED:Moved to new nocturnal section-kitkatz, Moderator
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You are hardly in denial, girlfriend, unless it is a river in Egypt! Good luck with the nocturnal thing. I hope it works out. I might try for it, since home hemo scheduling is not working out for me yet.
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It seems odd that they don't have beds for nocturnal, but try to get as comfortable as you can.
I am glad you're excited Rerun, it sounds like it could be great for you!
Hope all goes well!
:cuddle;
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:guitar: nighty, night
don't let the needles bite
dream a dream about the shake
you will purchase or make
McD's, Jack-in-The Box
whatever makes your world rock
;musicalnote; ;musicalnote; ;musicalnote;
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Rerun, you go for it girl. Please keep us posted. I do hope that you feel better doing Nocturnal. :cuddle;
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Good for you, Rerun!
How many nights per week will you be dialyized?
8)
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Wow that is excellent! I'm very happy for you! I thought nocturnal centers offered beds for patients, however. I've read that patient outcomes are great, the need for many dialysis meds decrease and patients feel very good on ND. Good luck to you and keep us posted! :bandance;
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Are you bring your "shut the he** up" sign with you? For the noisy nurses?
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Sell the house/apartment/condo, go to the center straight from work, hang out in the lobby and watch TV, have dinner from the vending machines, and do dialysis while you sleep. Can you imagine? But hey, you could save a ton of money on rent/mortgage!! Entertaining would be really hard. :(
On second thought....that would totally stink! :lol;
Good Luck to you Rerun. How many nights will you be there weekly?
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Good luck Girlfriend, hope it works :cuddle;
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I hope it works well for you rerun!! :bandance; Hubby has been doing nocturnal at home for a year and a half now. The difference in blood work from in center 3 times a week is unbelievable. In center he was taking binders and watching his phos intake and phos was still up. No binders now, eating everything he wants and phos is fine. Actually they are concerned with it being a little too low. He really likes having all day to himself. They really should have beds for you rerun. Sitting in a dialysis chair for 8 hours will probably not be comfy. Hubby does 5 or 6 nights a week. 7 hours each time. Took a few months before he got a good night's sleep but no problems sleeping now!! How many nights will you be doing? really hope this works for you rerun :beer1;
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:yahoo; Yay! I'm so happy for you! :cuddle;
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Sweet dreams!
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Glad to hear you're getting to try this! I hope it works well for you. From what I've read around the site, it's the way to go! :2thumbsup;
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Sunday, Tuesday, and Thursday nights.
Thank you for all your well wishes.
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Night, night. Hope you can sleep. Good luck with it all.
Mimi
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The first night wasn't very smooth. I get there a little early just to be told they didn't have any doctor's orders for me and I needed to go home. I just get home when I get a call from Lynette saying the dialysis center was trying to get a hold of me. WTF? They found the orders and I needed to come back.
:banghead;
So, I get all set up..... my egg shell pad, my sheet over that, my DVD player with an extra movie just in case, my book, my flashlight, my snack, my ice, my two pillows, and my blanket. Then I can't sleep. I watch my movie and I still can't sleep. So, why fight it? I asked for something to make me sleep. She gave me a half dose of benedril IV. I start feeling the affect and then my arms start jumping and my legs get restless and I start itching. I wanted to get up and run around the building. It was awful. I finally fell asleep only to wake up in a start and then I had a headache. I asked for two tylenol and finally fell asleep. Then I woke up at 4:15AM and they took me off at 4:30. I'm so tired when I get home, but I take the dogs outside. Then I go in the bathroom and there is puke. At least it was on the floor and not on the rugs. Then I still smell something and I go in the closet and there is poop. Poor baby dogs didn't understand why Mom didn't come home last night. I tried to tell them before I left. I took them out at 7PM and got home at 4:30 AM. Most of the time when I'm home, that works. But, again, they are use to having a doggy door and going whenever they need to. In this apartment they don't have that.
We'll get it all figured out.
I'll try again Tuesday night. Only this time I'm having a shot of whiskey!! ;D
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:cuddle; Sounds exhausting Rerun, I hope it gets better!
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Let's hope the problems you encountered are due to the change in routine. Best of luck to you. I hope the next few rounds go easier. And, thanks for detailing your plans and "take-alongs". That information could be very helpful to the rest of us!
-Devon
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Rerun, I sure hope the next few nights are a lot better!!!! At least you're well prepared, and yes, the shot of whisky just may do the trick!
If only we could get our babies to understand where we are going...it's probably gonna take them a couple of weeks to get adjusted to the
new schedule. But ick!! Barf AND poop???? Only our furbabies.
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the first thing I did when I got home from dialysis was to check and see if you posted
I thought about you this morning at 4:15 am when I got up to go to dialysis
Please give your dogs a big :-* from me
maybe you should take that shot of whiskey before you go to dialysis :yahoo;
things will improve; you'll see
I am learning from you and thank you for that
you bring your own ice?
did the egg shell make a difference
did it seem like you were there twice as long as usual
anyone snore
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I'm so sorry! I absoilutely hate it when I can't sleep. I think the stress doesn't help. Try taking some Benadryl before you leave for the clinic. That way it will kick in a lot sooner.
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The place doesn't have a 'freaking' ice machine, so I bought a bag of ice and take a travel cup full. It isn't the same as the ice you get at most centers. But, this is better than nothing.
I'll let you know how Tuesday goes. :secret;
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Hope things get better for you. No sleep and upset doggies is a bummer. Better luck Tues.
Mimi
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bit jealous, if they had nd in center at my center i reckon i'd jump at it, probably sleep better than know and drink more.
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Are conjugal visits permitted with nocturnal dialysis?
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Are conjugal visits permitted with nocturnal dialysis?
:clap; :thumbup; :yahoo;
do you think the alarms would go off
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Only with the Doctor, which would be fine with me. He is so handsome!! :guitar:
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Rerun,
Hope things are beginning to work a little better for you (and your furbabies ;D). I plan to even have a shot of whiskey in your honor. Let me know if it helps or not. I may need to take 2 or 3 for you to actually feel the effects.
Seriously, I hope things get better.
NolaGail
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Rerun - I'm sure that things will work out. Too bad no bed. That almost seems cruel and unusual. Chalk it up to things dialysis patients have to deal with. I bet your puppies miss you at night when you are gone. They will adjust after a few times.
Good luck - and peaceful dreams.
Sandyb
:bunny:
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Rerun,
Hope things are beginning to work a little better for you (and your furbabies ;D). I plan to even have a shot of whiskey in your honor. Let me know if it helps or not. I may need to take 2 or 3 for you to actually feel the effects.
Seriously, I hope things get better.
NolaGail
I love the word "Furbabies". That is just what they are. I've spent a lot of time with them today. I'll take them out at 7:15-7:30PM tonight. I have to leave after that. I will get home at 4:30AM if all goes well. I hope they can handle that.
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Goodluck :big hug:
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Nocturnal went better last night. I was able to sleep until I heard an alarm at 1:42 and thought it was time to get up. So, then I took an Advil PM and was tired until 10 AM! I'll get it right one of these times.
When I let the furbabies out at 4:30 AM Adrianne went down the stairs too fast and hurt her leg. The way she was crying and carrying on I thought for sure she really hurt herself. The Emergency Clinic is too far for me to drive a night, but I called them and they said to put her in a crate and keep her quiet so she didn't injure it further. At seven I called the Vet and made an appointment. I went to get her out and she came running out bouncing all over as usual. Not even a limp!
:angel;
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Hope it get's better and better. Can't believe they don't do the treatment from a bed ! I felt it hard enough to do nocturnal from home and in a bed. If you can put up with it in centre Rerun you go for it, you'll end up feeling a lot better for the extra treatment time that's for sure, unsure about that chair though are they crazy or what? :urcrazy;
Thinkin of ya
Take Care
Tamara xxxx oooo :grouphug; :waving; :grouphug;
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:) Can you bring your own bed???
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Karol.....where on earth did you get my picture!!???
I bought a twin size egg shell pad for $15 and I take that. It seems pretty comfortable. Although I look around and the others have no pad, sheet, nothing. Some don't even bring a pillow. Then there is me who totally moves in. I thought about bringing an extra TV tray to have more space!
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Sorry that I am only now weighing in on this topic. I was so jealous when I read the first post. Nocturnal dialysis is a dream of mine! I would really love that. And to think you don't have the phosporus problem! I am convinced that this is the best kind of dialysis. I like in-center (other people doing the work! ;D) and I would love to have my days FREE!!! A girl can dream, can't she?
So happy to hear that you are becoming more used to it. I like the way you are making yourself comfortable. Maybe the others will take a leaf out of your book.
Extremely sorry that you are not making it to Vegas! I wanted to meet you. You are the only person alive whom I first met when I joined IHD!! Not possible to even just come for a few hours? Please? Pretty please?
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You are really coming to Vegas?? I thought you were just going to call in. Hmmmm I'll have to reconsider. I have on my list of things to do..... Visit Aurora in Barbados.
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You are really coming to Vegas?? I thought you were just going to call in. Hmmmm I'll have to reconsider. I have on my list of things to do..... Visit Aurora in Barbados.
Please, I need to see you. I hope you can work things out.
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Rerun, I hope nocturnal works out well for you. It is crazy that there isn't beds. Do they have any plans to add them? And about Vegas, I hope so much you will find your way back there. It will be so amazing to meet Bajanne. And you are one of the "originals" of IHD. Plus you are FUN and we need you there! :cuddle;
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Karol.....where on earth did you get my picture!!???
The Paparazzi, of course! 8)
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Oh, I want to see the look on the nurses' faces when you stroll in with the areo-bed and start pumping it up in the middle of the floor. That would be awesome! :bandance;
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My third night went well. I watched a movie (A Good Year :thumbup;) and then fell asleep about 10. I woke up at 1:30AM and didn't sleep again until I got home about 4:45PM.
I feel great. I think this is really going to be a good option for me.
I'm wondering what percent kidney function this longer dialysis has. I figure that 9 hours a week is about 10%. Just enough to keep you alive. Any ideas??
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Proud of you :big hug:
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It's got to be more than 9%. Hey wehere's Bill - he knows all those numbers!
Rerun, is it the same kind of improvement I got with home? By the end of the second session, I could already feel a massive difference - no "wash out", and tons more energy the rest of the time.
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I have asked the social worker to see if there is nocturnal dialysis available in the area. Something has got to give here.
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I've been on Nocturnal for almost a month now. I'm sleeping better. I get about 4-5 hours of sleep and then come home and sleep a few more. I get on at 8PM and off and 4AM. It is better then the day shift.
1. I get more dialysis while I sleep.
2. I get the same chair and tech. I like having the same tech stick me. He knows where he went last and can make a trail. Otherwise it is just a STAB in the dark. ;D
3. My days are free.... I need to find a job!!!
People ask me if I like it better. I like to say "I hate it less." I mean I still have to go to this CLINIC and get hooked to a machine and sleep with 9 other people who snore and fart and puke and get up to go pee/poo (whatever). Three nights a week I have to do this. Do I like it better? Better than my own bed? NO! I just hate it less than the day shift.
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Not for me. I still enjoy the night life. I'm usually off about 3 pm and the night is mine.
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This nocturnal dialysis seems like just the thing for me!! I WOULD LOVE IT!! It would give me back my days!
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This nocturnal dialysis seems like just the thing for me!! I WOULD LOVE IT!! It would give me back my days!
More people at my place are trying it. I still have my doubts about it for me. I just don't sleep well at all--last night I took (2) 30 mg of temazepam and I still had a hard time sleeping. It was offered to me and I said I'd think about it.........maybe reading all these great things about it will give me an incentive to try it.
Donna
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Glad that things are working out with the nocturnal Rerun and I bet the other 4 nights in your own bed are heavenly. I went to boarding school and even as a kid I wasn't crazy about other people's body noises.
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glad you are settling in so well and that you are feeling better. looking forward to hearing more about how it goes.
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8 hours over night? No Thanks not for me. Never sleep on dialysis a couple of accidents happened :thumbdown; They have just put me on the machine for 5 hours 3x a week. That is I don't clear off and get a coffee from the cafe. Then I get back to late ;D and only do Four Hours ::) Get moaned at a bit, they say I need the extra hour pump speed now only 180 - 220. But I feel OK. Plus it is up to me what I do :rant; That gas sniffing thing you used to do might help you sleep Rerun :yahoo;
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I had to put one of my Furbabies down. Adrianne was such a good, loyal, loving dog. I'm so sad. Then the next morning I felt really bad and thought it was still the grief of putting Adrianne down, but then I started throwing up and realized it was the flu. I went to dialysis anyway and FROZE all night. It was either that or make arrangements to go on Saturday. I didn't want to do that. I'm feeling better. I still have Pebbles and she has never been alone as Adrianne was her Momma. Life is a bitch.
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:grouphug; Rerun, I'm so sorry. I just wanted you to know that I'm thinking about you. I know how sad you must be and your poor Pebbles> :(
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:'( i'm so sorry, it's hard to loose such a precious family member. glad that you're feeling better, having the flu on top of everything else just sucks.
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I am glad you hate it less. That is a very good way to explain it. You must really stretch out and enjoy your bed the other nights. :thumbup; And I am so sorry about your dog. I am struggling with our dog and know I have to make a decision. Wish someone would just tell me now is the time. Sending you love :cuddle;
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:cuddle; Awww Rerun.
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sorry :'(
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I'm so sorry about your furbaby rerun. :cuddle; :cuddle; :cuddle;
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I'm so sorry about the furbaby you lost! I had to put my cat of almost 14 years down right before Christmas so I understand. You are right. It absolutely sucks.
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I'm so sorry Rerun. I was just looking at the pictures of your babies yesterday (in the blue chair). Beautiful Adrianne was and sad she's gone.
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I know you will miss her lots. Love to you and the other furbaby.
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So sorry to here about you little friend, they become a big part of the family. :cuddle;
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Rerun,
I am so sorry to hear about Adrianne. :'(
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I still feel like crap with or from the flu. Going on 5 days. Then (DAH) I remembered that I'm supposed to be stress dosed with steroids (Prednisone) when I'm sick. Remember my bout with illness and I finally figured out they took me off Prednisone too fast after being on 10mg for over 17 years? Well that led to tests on my adrenal gland and they found that it is fine under normal circumstances, but if I'm sick or have surgery I need extra steroids. My adrenal gland can't handle it on its own.
I tired to call a doctor to help me with this but they are all "out" and the one that is in I don't like. So, I'm self medicating. I started with 20mg and will see if anyone has "time" for me tomorrow. I think I'm feeling better already.
I just pisses me off that the doctors act like they are always available but NEVER when I need them. I hate the office girls. Where do they get these women who just say "I'm sorry no one is in the office today" Well, then what are YOU doing? "If you have had the flu for 5 days you should go to ER". Why the hell would I go to ER to see a doctor who is a student only to get charged $5,000 for him to tell me to go home and take a Tylenol!
:banghead;
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Oh Rerun, try to hang in there. I know what you mean about office girls. I won't even go there because my blood pressure will go through the roof. Hope you feel better soon. How are the dialysis sessions going? I'll be thinking about you. :cuddle;
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My most frustrating experiences are ER related. Feel like crap, risk picking up bugs you don't even want to think about, as you say see some student type without a clue, argue because their plan for you is idiotic and misses the mark and up here at my hospital which is super busy the wait can be 6 hours or more. One out of every two times I feel the need to send a complaint letter and even with the transplant/renal management people working on my behalf nothing changes. The only bonus is that there is no payment.
Hope you feel better soon Rerun.
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Just wanted to report that I'm off all blood pressure meds. My usual blood pressure of 190/100 all of a sudden dropped to 120/70. They said this would happen with Nocturnal dialysis. You just get a better clense and your blood purssure straightens out. I'm a little light headed sometimes because I'm not use to this.
:stauffenberg;
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Rerun, glad about your BP
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Just wanted to report that I'm off all blood pressure meds.
Wonderful news, just wonderful!
:-*
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I want that too. That's wonderful.