I Hate Dialysis Message Board
Off-Topic => Off-Topic: Talk about anything you want. => Topic started by: Bajanne on July 05, 2006, 12:30:25 AM
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We now have over 200 members. I am curious. How did you come upon this website? I was running scared after my diagnosis and before dialysis and I was trying to check out everything I could. I found this message board, and there was this guy with this strange name posting there - Epoman. He said there was a site with this equally strange name - I hate dialysis. com - and that this was a no-holds-barred site and that there would be frank and open discussion. I clicked on it, in September 2006, and I am still here ( at 3.24 a.m.)!!
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I was looking around dialysis sites through a web search on yahoo and came upon the name of this site. Now anything that said I hate dialysis had to be worth looking at. This site said exactly what I was feeling at the time and was a place I could finally express how I felt to people who might understand a little bit. So here I am posting yet.
Katherine
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I am a member on a couple other forums.. not dialysis related..
Everyone on the other forums know about my kidney disease but they
don't really understand all the crap associated with it.. and I hate boring people
with my tales of woe.. Soooo, I went searching for some like minded folk and
found Ihatedialysis.com. (the name kinda "spoke" to me) said yep, I belong here.. ;) :D 8)
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Well, Once upon a time, sitting at my desk, feeling tired, lonely and sorry for myself while surfing through this amazing world wide web of ours i noticed this tiny little light while i was googling anything on kidney disease. I tried to ignore the light but no matter which way i turned there it was , so, me, being as nosey as i am decided to investigate what this "tiny little light" was. As i got closer and closer i felt this sign of peace, as if someone was telling me, "your not alone" and "there are people who care" So, when i came upon this light, i seen all these wonderful beautiful people there, people who are like me, people who know what i am going through, people who are willing to help, people who care, they asked me my story, i gave them my story and i was greeted with open arms to this AWESOME WEBSITE: ihatedialysis.com. And now, i am living happily ever after. LOVE TO YOU ALL....
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I voted ;)
- Epoman
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I was hating the fact that I was back on dialysis and how much I hated it. So, my favorite search engine is dogpile.com and I typed in "People who hate dialysis." Wallah..... There was ihatedialysis.com. WOW this has to be the place for me.
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I voted ;)
- Epoman
Thanks. (and thanks for the site!)
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Got fed up of the other renal site, they come out with he same crap all the time. Just was looking around, for a laugh I type Ihatedialysis. Then was sent to Epoman's site. Post very few on other sites now. If any on a couple.
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Got fed up of the other renal site, they come out with he same crap all the time. Just was looking around, for a laugh I type Ihatedialysis. Then was sent to Epoman's site. Post very few on other sites now. If any on a couple.
;D 8)
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I found out about the site when I saw a copy of lifeonhold's different types of nurses list sitting on my desk. My boss had been looking around at the website and left it for me because he thought I would get a kick out of it. Not only was I LMAO, but I was able to go around and find those attributes in the staff at my clinic. I joined shortly afterwards.
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This is a real coincidence, because we just revisited Life on Hold's classic posting. Goofynina just discovered it a day or so ago. Life on Hold still rocks!!!
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Life On Hold rock on! Her wit was brilliant. I wish I had known her longer than the month before she passed.
Katherine
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Life On Hod rock on! Her wit was brilliant. I wish I had known her longer than the month before she passed.
Katherine
Really, I've never hear of Life On Hod. ;) I have heard of LifeOnHold
- Epoman
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I came here when Epo posted about it on D&T City (http://groups.msn.com/DialysisTransplantCity/_whatsnew.msnw) ;)
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From another kidney site, takes for ever for people to write back if they write at all. Thats why I like this site, cause I can't keep up with it at times, it's faster than me. hehehe :D
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From another kidney site, takes for ever for people to write back if they write at all. Thats why I like this site, cause I can't keep up with it at times, it's faster than me. hehehe :D
Ya that is the sole reason I keep coming back! I like how active this forum is. I have to admit I was a little intimidated at first by Epoman but now that I have been here for a bit (not long, still am relatively new) I think I will stay ;)
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You can't let a day pass without checking this forum. You will find yourself with too many posts to read!! Sometimes I am reading and thinking that I have all covered, then by the time I am finished, there are already new posts before I even sign off.
Talk about an active site!!
I think Epoman should just write up the thousands on the home page, like 7000+. He put 7100+ and we are already to 7262 at this posting!! He will be having to change it everyday!!
I LIKE IT!!!!!
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You can't let a day pass without checking this forum. You will find yourself with too many posts to read!! Sometimes I am reading and thinking that I have all covered, then by the time I am finished, there are already new posts before I even sign off.
Talk about an active site!!
I think Epoman should just write up the thousands on the home page, like 7000+. He put 7100+ and we are already to 7262 at this posting!! He will be having to change it everyday!!
I LIKE IT!!!!!
Very true! I have noticed this! The most active kidney site I have seen in a long long time
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I have added a new section since many members have been added since July. Take the poll and then make your comments. We now have 315 members - our poll should have much more than 20 respondents!
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I have added a new section since many members have been added since July. Take the poll and then make your comments. We now have 315 members - our poll should have much more than 20 respondents!
Very good idea, thank you bajanne. :)
Now to everyone else, YEAH please vote. >:( That data helps me in promoting the site.
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i saw a documentary about a bloke with parkinsons desease and how he went to a discussion board on the internet to meet people like him, so i thought i'd do the same.
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and we're glad you did Thom... :)
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Python told me about this website on the Kidney patient guide site in the UK. Thanks Python!
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I simply expressed my feelings about dialysis to a search engine. ;D
I Hate dialysis, dialysis Prison ect.
and there it was.
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I simply expressed my feelings about dialysis to a search engine. ;D
I Hate dialysis, dialysis Prison ect.
and there it was.
Why prison, have you been there?
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No, but after the freedom me and my wife were experiencing just after we were married, dialysis was prison. I was just chained to this gurgling machine, and I hated every second of it, and it stole time from me and my wife .. >:(
feel better about everything now though. still hate dialysis ....
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I was desperately searching for information regarding ESRD on the internet and got to the Nephrology News website. I signed up, and read the article about this website. I came here, and now I don't go anywhere else, it's great!
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After I was told I had ESRD, I was scared and wanted to find out more about it all in English. My doctors were all speaking Portuguese to me, which I also speak, but when it came to something super serious, I wanted it in my native language, English!!!, I first found a site about the book The Lighter Side of Dialysis and linked from there.
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I really don't remember how I ended up here .... but I do know I was on brumley for a little bit and I found that forum chaotic.
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Ya brumley (http://brumley.com/renal/) is one that I never stayed at because it was hard to follow..
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Ya brumley (http://brumley.com/renal/) is one that I never stayed at because it was hard to follow..
Yes, that was one of the biggest flaws with that site brumleys Dialysis Online! (besides the enormous about of spammers) it was very hard to follow. And it was one of the sites that inspired me to create this site. :thumbup; I wanted a site that was very USER friendly.
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Angie told be about it in D&T City. She said she normally chats on this site ... but I see she may have lured in me in with a fib . . . I haven't seen anyone chat just yet ;). Then again ... I'm cruzing around at wierd times. The forums are keeping me busy with research right now, which is wonderful .... So thanks Angie!
Also, thanks Epo! I haven't been on-line with my issue too much, just kinda kept it to myself, but now I'm slightly addicted to this site. It's good to know we are not alone. :thx;
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Angie told be about it in D&T City. She said she normally chats on this site ... but I see she may have lured in me in with a fib . . . I haven't seen anyone chat just yet ;). Then again ... I'm cruising around at weird times. The forums are keeping me busy with research right now, which is wonderful .... So thanks Angie!
Also, thanks Epo! I haven't been on-line with my issue too much, just kinda kept it to myself, but now I'm slightly addicted to this site. It's good to know we are not alone. :thx;
I am glad you have found it a positive experience :2thumbsup;
Hey Epoman, wasn't a post made in the calendar to advertise a day to all go into the chatroom?
Okay, I couldn't find one, so I made one (through the calendar) here (http://ihatedialysis.com/forum/index.php?topic=1349.msg16367#msg16367).
Actually Fox_nc, it was actually Epoman who came to D&T City awhile ago who got me to come here ;) and as you can see by my post count .. ya I DO spend a great deal of time here :-[ :P lol
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I found the Davida site first, but didn't find the kind of open atmosphere I was looking for. I probably used a search engine (heck, I can't remember), looking for "dialysis forum" or some such.
When I saw this forum listed, I figured I had found what I was looking for. :)
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I linked from the sister site after googling NX stage earlier this evening. Now I'm surfing thru everything - there's an awful lot of info in a mighty small space here!
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I was looking up information on the nxstage machine also. I was happy to be taking a machine home, but its kind of intimidating too. I needed to read some success stories.
-Jaybird :clap;
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I found the Davida site first, but didn't find the kind of open atmosphere I was looking for. I probably used a search engine (heck, I can't remember), looking for "dialysis forum" or some such.
When I saw this forum listed, I figured I had found what I was looking for. :)
AWESOME, I love it :thumbup;
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I was looking up information on the nxstage machine also. I was happy to be taking a machine home, but its kind of intimidating too. I needed to read some success stories.
-Jaybird :clap;
Hell yeah at first it's very overwhelming but then it's a piece of cake. :thumbup;
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I linked from the sister site after googling NX stage earlier this evening. Now I'm surfing thru everything - there's an awful lot of info in a mighty small space here!
We try. :thumbup; In fact we have more posts by members than any other dialysis related site on the Internet, we are almost at 20,000 posts in just over 14 months. :o
- Epoman
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Sorry, stuff up!
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I came across this site while searching for info on NxStage. I should start training in December.
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IHD sure has grown since this poll was taken. Maybe time for a new one?
:bump;
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i came across another message board thru google, one of the posters (have no idea who) had a link to this site in their signature. this is a much, much better site. and the only one i use now
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Somebody mentioned it on one of my kidney mailing lists. It was solely mentioned, quite sadly, due to the death of Epoman, who I never had the pleasure of knowing.
So I thought I'd take a look at the forum, because I'd been searching for a kidney forum just like this for ages, and hadn't found one. At least none that were active.
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I used to visit a web message board, but it usually turned into name calling and swearing. I was looking for information cause I was just starting dialysis. I joined up here back wen it was EpoMan, Life on Hold, and only a couple other members. Its quite impressive where the site is now, and all the help its provided me.
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I used to visit a web message board, but it usually turned into name calling and swearing. I was looking for information cause I was just starting dialysis. I joined up here back wen it was EpoMan, Life on Hold, and only a couple other members. Its quite impressive where the site is now, and all the help its provided me.
I am happy that your still with us Mark and i hope and pray that we continue to help all others with this disease as well. so if you could please continue to spread the word about us :2thumbsup; Thank you :cuddle;
Goofynina/Admin.
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another bump :bump;
How did you find IHD? Take the poll above - post in the thread.
:thx;
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I was mad and in a bad mood
I typed F+++ Dialysis
then decided to use better langauge
and typed I HATE DIALYSIS
I mainly read the funny merchandise
it took me some time to join
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google is a wonderful implement :2thumbsup;
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I was told about this site from one of my MySpace friends who joined this group. However, I do not see her post anything since her introduction.
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i came across ihd when i was doing research to start my support group and I've been here every since
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The glory that is Google brought me here!
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When this poll started we had 200 members! Now we have over 2,000. Please let us know how you found out about us.
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:bump; Take the poll or post a response - or both!
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I took the poll...Boxman