I Hate Dialysis Message Board
Off-Topic => Off-Topic: Talk about anything you want. => Topic started by: paris on March 05, 2008, 07:14:25 PM
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They are back, hanging over head again and I hate it. I am trying so hard to be "up and bubbly" but it just isn't working right now. Transplant center #2 called yesterday, basically to remind me how slim my chances are. They do not offer just IVIG therapy, but will continue to test anyone who is willing to donate. They are the center that has the sensitized program. But, as most of you know, after 5 people tested, there is always a reason to rule them out. No news from transplant center #1 regarding getting me into their IVIG program ---- but I keep bugging them. Maybe they will get sick of hearing from me and accept me. Medical bills keep coming; always stressful. And this week, I have missed my job more than ever. I should be working on spring projects, Mother's Day Tea, end of year parties. I am tired of having to give up or change so much and it will only get worse before it ever gets better. I know there is so much good in my life, but I think this week just took the wind out of my sails. Thanks---just needed to put it into words.
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:grouphug; :cuddle;
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:grouphug;
Sometimes the silver linings are really hard to find. Hope you get a break in the clouds soon.
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Thinking of you and my prayers are with you. :grouphug;
Love, Mimi
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Oh Paris you sound so sad, I wish I could give you a big hug :cuddle; I hope that knowing we all care about you will make you realise that you are a special person and help you feel just that little bit better. Hope the cloud soon starts to lift and a beautiful sunshine fills your heart :grouphug;
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Paris, I hope things look up for you :cuddle;
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:grouphug; Love you, Paris. I hope the dark clouds go away soon.
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This doesn't sound like the Paris who is my tower of strenghth, I'm so sorry you're feeling like this Paris. I take it IVIG is some kind of transplant build up is it? Are they saying that it's family donors who are unsuitable or that your tissue and blood group are difficult to match. I do hope those clouds clear away soon. I'm thinking of you Paris. Would it cheer you up if I let you loose with my credit card again? ;D :grouphug; :grouphug; :grouphug;
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:grouphug; Try to do something fun today. Like you could jet set to Milwaukee and make sure Boxman's hospital gown is the right size. :)
or you could come along and make sure me and Kit have bail money. :) or last but not least you could come to Milwaukee and get a couple of really needed hugs. :grouphug; :grouphug; here they are just in case you can't make it to Milwaukee on short notice. Hope you are feeling better today.
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Paris I have no words of wisdom. :grouphug; :'(
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Dear Paris:
You always have the perfect thing to tell others that are going through just what you are going through, all I can say is that I am thinking about you today. Its hard to believe what you are givin, but you will overcome :)
Kim
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Thinking of you, Paris, and sending good thoughts and hugs your way. :cuddle; :grouphug; Hugs to Styx, too! :grouphug;
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Paris, so sorry you're going through such a rough time. I wish I had just the right words to comfort you. :grouphug;
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I'm sorry you are feeling so down, it's definitely understandable why you are. Is there any way you can help volunteer at the school you worked at or perhaps be a substitute teacher? Maybe you could volunteer at an Old Age Home or something like that. Maybe getting out now and then to take your mind off things might help. Big hugs, you need them :cuddle;
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sounds like what you need is a big dose of spring. hopefully today is finding you a bit better. big hugs for you :cuddle; :cuddle; :cuddle;
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We all have dark days , hopefully something will come along out of nowhere to brighten yours :cuddle;
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No words, just hugs, and comfort.
:grouphug; :grouphug; :cuddle; :cuddle;
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Me too
:grouphug; :grouphug; :grouphug;
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I;m sorry Paris that you're having a down time.
Come to Ohio and we'll do Donatos or Der Dutchman.
That's sure to lift your spirits.
Wishing you brightr days ahead.
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I;m sorry Paris that you're having a down time.
Come to Ohio and we'll do Donatos or Der Dutchman.
That's sure to lift your spirits.
Wishing you brightr days ahead.
Sorry but I just have to ask what (or who) is Donatos and Der Dutchman ........ my (british!) mind is boggling :rofl;
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Paris,
All I can think of is your strength and love as you held my hand at Susie's rosary.
You seem to be a pillar of strength and a sea of calm on the outside.
I pray you have better days. Answers will come, even if there are bumps along the road.
I love you so much :cuddle;
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Thanks, everyone.
Okarol, that time with you and Vandie was so special. Quietly saying prayers, feeling the love everyone had for Susie. It is a memory I will always cherish. What can make me laugh out loud is "GeeeJuusss"
Rose, they are my two favorite places to eat in Ohio. I grew up there and my family is still there. Donatos is my favorite pizza and Der Dutchman is good old Germain cooking; lots of pork, saurkraut, potatoes,boiled vegetables and tons of side dishes. My mother loved it and in her last stages of Alzheimers, it is the only place we could take her. She love the lemon pie, especially.
Ohio Buckey, I am coming to Ohio in April. We need to plan a time to meet. :2thumbsup;
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"GeeeJuusss" :rofl; :rofl; BWAHAHAHA! Funniest thing ever!
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Thanks Paris, I thought they were some sort of game you were going to play :rofl; I am learngin such a lot about world culture. I'm glad you have posted on here and (hopefully) read all the comments. Hope you will feel brighter soon :grouphug;
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Rose, :cuddle; you are so sweet and you always brighten my day.
Okarol, I am just going to keep repeating "GeeJuusss" all day and it should help my mood :thumbup;
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Donatos is a very popular pizza shop in Ohio.
Der Dutchman is a wonderful Amish restaurant where the food is out of this world.
Paris is from Ohio so she is acquainted with these 2 well known eating spots.
Both places cause me to overeat. But they are goooooooooooooooooooooooood eating!
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Wow, I do hope we get to meet soon.
That would be so great!
I'm not driving yet but will find a way to work it out.
I'll be looking forward to seeing you.
Sorry, I didn't see that you had already answered the Donatos=Der Dutchman ?.
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Coming a bit late on this one, Paris, but I still need you to know that my caring thoughts and prayers are with you. You are really a very appreciated member of the IHD family, and it is hard to know that you have to go through your days of dark clouds. But i also know that you are strong, and YOU WILL MAKE IT THROUGH! :cuddle;
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Bajanne, I think I need to come down and visit you, sit on the tropical beach and have a cabana boy bring me fruity drinks with little umbrellas in them. I know this will pass, soon. Could just be a delayed reaction to losing Susie. You are always so kind to everyone. I love the phrase "caring thoughts and prayers". They sound just like loving arms feel. :cuddle;
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I know I don't post too much but you have always made me feel better when I'm worried about my mom....just wanted to give you a hug!
Beth
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Hope those dark clouds pass soon, Paris!!! :grouphug; :cuddle;
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Bajanne, I think I need to come down and visit you, sit on the tropical beach and have a cabana boy bring me fruity drinks with little umbrellas in them. I know this will pass, soon. Could just be a delayed reaction to losing Susie. You are always so kind to everyone. I love the phrase "caring thoughts and prayers". They sound just like loving arms feel. :cuddle;
Take me with you. I'll be real good.
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It won't be any fun if you are real good! :rofl; Maybe you could be the cabana boy? :rofl; Ok, you made me laugh!
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It won't be any fun if you are real good! :rofl;
Depends what he's real good at :rofl; :rofl; :rofl;
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Hang in there Paris. This too shall pass.
Try to get out there in the world and feel a connectedness with others.
Plan something you like for the near future so you can have something positive to look forward to.
Spring is just around the corner, and all the beauty that goes with it.
Wishing you the best.
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Paris, I am hoping you feel better today, sending you a hug!! :cuddle;
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Hope you're feeling better today Paris :cuddle;
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Thinking of you, Paris. :cuddle;
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Thank you friends. I can never be down for long---there is too much to do and I need to push through. Today I need to stain threshold boards, work on drywall, buy groceries, pick out paint,do laundry, clean, go to post office, bank, make dinner and then at 6 pm two grandchildren are coming over for the evening (5 and 6). Did I meantion I was up most of the night throwing up and not sleeping? I need a wife!! I think this is one of the hardest things for the wife with ESRD----the household still needs to run smoothly. Really all I want to do in crawl back into bed and pull the covers over my head. But, instead, I will start by sanding drywall. We tore a wall down and now are finishing the transition between the two rooms. And, I miss Susie :'( Again, thanks for being there when I need you :cuddle;
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Did I miss the GeeJuss joke? I want an explanation please.
Paris things are going to get better. I got through times where the clouds get up on top of me and I feel sad and depressed. But you know there are people out here who care and you reach out a hand to be lifted up!
:big hug: :bunny:
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At Susie's rosary there was a woman leading the Hail Mary's. She would say, Hail Mary full of grace, blessed art thou amoungst women and blessed is the fruit of the womb, JEEESUZZZZ!!!
I don't mean to be disrespectful to Catholics, it was just this woman's midwest accent and her monotone delivery until the end, when she gave it her all, that made it so humorous. Plus she went through about 20 Hail Mary's, so we were anticipating her delivery while stifling giggles. Susie would have laughed her ass off!
:rofl;
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It was probably good there was some comic relief! One minute we are crying, holding on to each other and then we had to hold back the giggles. Susie would have been right there beside us :rofl; :rofl; When the Rosary was over, Vandie, Okarol and I were in the parking lot--we looked at each other and broke out laughing. Much better to say goodbye with laughter than tears. It really was a beautiful, spirit filled service.
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I can relate to that, yes, Susie would have been laughing too!!! You ladies did well, holding it in for so long!! :bow; :bow; :bow;
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Thinking about dark clouds reminds me of my grandson.
One day we were looking outside and I was pointing out to him the clouds
in the sky and that it was a cloudy day. He looked and turned back to me and
said "It is a nice day Grandma". I thought it interesting I saw the clouds and he saw
a nice day. One can learn a lot from children.
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You are right OB. Children always make us look at the world in a better light. We took two of our granddaughters (Eliza and Emma) to the beach one day. As we were walking on the beach Eliza said "Look Nana, the waves are fantastic". The ocean was the calmest I have ever seen it, but to a 5 year old, the waves were perfect.
My dark clouds have parted and the sun is beaming down on me again. It never lasts long, and if I get very busy it helps. So my kitchen and dining room are newly painted! And tomorrow is my husbands birthday and Sunday is our grandsons (AJ) birthday , his fourth. We are having a party tomorrow for both of them. I have already made stromboli, meatballs, have lots of fruits, veggies, Beth is making quiche, and others are bringing food too. Looking forward to a fun day. Thanks everyone, for lending support when I needed it. You are all the best :big hug: