I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: AJ1963 on June 23, 2006, 11:17:37 PM

Title: Too young to be in clinic
Post by: AJ1963 on June 23, 2006, 11:17:37 PM
I'm 42. Twenty years ago that was sooooo old.Now it's still pretty old but what ya gonna do, right?
When I started this E ticket ride that is renal failure almost 3 years ago I was told it was uncommon for someone my age to be on dialysis. So when I walked into the clinic the first time and found myself surrounded by, let's call them senior citizens, I was not surprised.Don't get me wrong. I like my clinic,(won't name names, but starts with a "D" and rhymes with Gavita).Where was I? Oh yeah, like the song sez, "I ain't got no body" that I can relate to, that is. So it goes without saying (but I'll say it anyway) that to find a website just full to the rim with brim and young pin cushions is indeed a treat. By the way, I tend to ramble. I have found, however, if one rambles enough,,,I forgot where I was going with that. HEY, let me tell ya something, I got good nurses, good doctors, and I'm on the transplant list at the best hospital around, (Mayo, Jacksonville Florida), BUT I DON'T LIKE MY SOCIAL WORKER. The s.w. at my second home, Sally, (not her real name) is God's gift to the renal industry. She knows EVERYTHING. She NEVER makes a mistake. And she is without a doubt 110% Da vi taaaaaaaaarrrrrrrrrrggggggggggghhhhhhhhhhh. I pretend to be asleep when she comes round but she will wake me up to ask me some stupid something that's none of her business. It's OK though, I learned a long time ago how to look a person in the eye and lie like a cheap rug. Gonna end this rant-fest for now but don't worry, I'll be back to bore you some more later.
Title: Re: Too young to be in clinic
Post by: Epoman on June 23, 2006, 11:23:55 PM
I'm 42. Twenty years ago that was sooooo old.Now it's still pretty old but what ya gonna do, right?
When I started this E ticket ride that is renal failure almost 3 years ago I was told it was uncommon for someone my age to be on dialysis. So when I walked into the clinic the first time and found myself surrounded by, let's call them senior citizens, I was not surprised.Don't get me wrong. I like my clinic,(won't name names, but starts with a "D" and rhymes with Gavita).Where was I? Oh yeah, like the song sez, "I ain't got no body" that I can relate to, that is. So it goes without saying (but I'll say it anyway) that to find a website just full to the rim with brim and young pin cushions is indeed a treat. By the way, I tend to ramble. I have found, however, if one rambles enough,,,I forgot where I was going with that. HEY, let me tell ya something, I got good nurses, good doctors, and I'm on the transplant list at the best hospital around, (Mayo, Jacksonville Florida), BUT I DON'T LIKE MY SOCIAL WORKER. The s.w. at my second home, Sally, (not her real name) is God's gift to the renal industry. She knows EVERYTHING. She NEVER makes a mistake. And she is without a doubt 110% Da vi taaaaaaaaarrrrrrrrrrggggggggggghhhhhhhhhhh. I pretend to be asleep when she comes round but she will wake me up to ask me some stupid something that's none of her business. It's OK though, I learned a long time ago how to look a person in the eye and lie like a cheap rug. Gonna end this rant-fest for now but don't worry, I'll be back to bore you some more later.

 ;D Nice rant.

- Epoman
Title: Re: Too young to be in clinic
Post by: kitkatz on June 24, 2006, 12:49:37 AM
Hey, here is another 43 year old. Been staring at dialysis for the past seven and a half years.  I rant and rave all over this site.  Helps alot!  I go to clinic and see the elderly.  We have a few patients close to my age.


Katherine
Title: Re: Too young to be in clinic
Post by: Panda_9 on June 24, 2006, 04:42:17 AM
I first went on dialysis when I was 14, hows that for young?  :) Im now 26 and back on dialysis  :( I havent seen many others my age, or close to it, only about a handful if that.
Title: Re: Too young to be in clinic
Post by: kevno on June 24, 2006, 12:53:57 PM
I first went on dialysis at the age of 10, on a dialysis unit in a children's hospital. All of us were under the age of 16. There was 6 of us on the machines at one time causing chaos, on the unit. 1977 that was.  81 had transplant. 88 at the age of 21 years back on dialysis been on ever since. I have known a lot of younger people on dialysis. But the unit I am on now, there are a lot of oldies (like kitkatz ;D) 60+.
Title: Re: Too young to be in clinic
Post by: Epoman on June 24, 2006, 01:13:35 PM
there are a lot of oldies (like kitkatz ;D)60+.

 :o Oh man Kevno, is just ASKING for it.  ;)
Title: Re: Too young to be in clinic
Post by: Sara on June 24, 2006, 05:29:47 PM
Hey, we're neighbors!  Kinda anyway.  We're in Jacksonville, Joe's been going to Mayo for pre-list workup/evaluation.  He's young too, only 36.
Title: Re: Too young to be in clinic
Post by: Panda_9 on June 24, 2006, 05:32:24 PM
I sure wouldnt of liked to be on dialysis back in the good ol days, sounds scary to me.
Title: Re: Too young to be in clinic
Post by: kitkatz on June 24, 2006, 08:24:03 PM
Kevno,
    How did you know I was so old??? LOL  43 here and a karate chop to the head!

Katherine
Title: Re: Too young to be in clinic
Post by: angieskidney on June 24, 2006, 08:52:07 PM
First time I was on dialysis was when I was 16 but that was PD. I did see HD however when I went to a "Kidney Kids Camp" and girls my age where on HD there. It scared me because I saw them get bad leg cramps! This is my first time on HD thought. I started last summer. I still have yet to have the fistula to be used. I am sooo nervous about that. I was hoping I would not have to start HD so soon ... I feel I am too young :( I am 32. But since I was first on dialysis (PD) while in the Toronto Hospital for Sick Kids I have seen LOTS of kids on dialysis.
Title: Re: Too young to be in clinic
Post by: karen547 on September 03, 2007, 02:38:25 PM
I understand that you're frustrated but do you realize there are KIDS on dialysis, like practically babies. I'm 22! So please don't say youre to young. No offense but that kind of iirritates me when ppl say they're too young, as if ESRD discriminates because it doesnt!
Title: Re: Too young to be in clinic
Post by: glitter on September 03, 2007, 03:01:59 PM
perhaps he was talking about the majority on dialysis...my husband is not the youngest at his clinic- but they(younger peeps) are WAY outnumbered by the older folks. If he feels he is personally too young....thats his feelings. Don't take his comments personal, he was just speaking his own mind. :twocents;
Title: Re: Too young to be in clinic
Post by: jbeany on September 03, 2007, 09:16:02 PM
Yeah, I get that from some of the nurses at my clinic, too.  "You're too young to be this sick!"  or "You're so young to be on dialysis!"  Right.  Cause it's sooooo much better when you are old.  I think everyone is "too" something to be on dialysis - none of us like it!

At any rate, it was a good rant!
Title: Re: Too young to be in clinic
Post by: Adam_W on September 03, 2007, 09:46:29 PM
I was the youngest patient in my old centre by about 20 years (I'm 25). When I first started, I would look around the clinic at all these old people on their machines, some on oxygen, some with no legs, and I would think to myself "what am I doing here? these are all sick people. I'm not like any of them, I'm supposed to be young and healthy." That thought would instantly go away when I would turn my head and look at my own machine that I was hooked to. I don't know if one can ever fully get used to dialysis, but I've definitely adjusted to it enough that it usually doesn't bother me anymore. It's just one more thing I have to do. Home dialysis has helped so much with that adjustment.

Adam
Title: Re: Too young to be in clinic
Post by: goofynina on September 03, 2007, 11:01:22 PM
When i am feeling depressed and sorry for myself, i think of Gavin, http://ihatedialysis.com/forum/index.php?topic=3209.msg31872#msg31872, and all the other kids that have to endure this damn dialysis crap and that pretty much snaps me out of my pity party  ::)
Title: Re: Too young to be in clinic
Post by: st789 on September 03, 2007, 11:52:57 PM
Yeah, it irritated the heck out of me when nurses at clinics and hospitals commented about my ages being this sick.  WTF..... do they think I planned and wanted to start dialysis at this young ages.  Hell no.
Title: Re: Too young to be in clinic
Post by: keefer51 on September 04, 2007, 03:09:13 AM
When i was first on dialysis i was in my thirties. I don't remember anyone from that center. Now i am in my fifties and on it again. I think allot of us "old" folks hate to see someone young on dialysis because of how it has interupted our lives. There is no better age to be with this crap. At my center we have a young woman who is blind i think she may be in her twenties. We also have a gentleman who is in his nineties still married over sixty years! He is in a Barber shop quartet. My family had him and his boys sing at my fathers birthday. So i have found out from my experience ESRD never discriminates. I guess if i was given a choice i would rather be on my death bed and be on dialysis.
Title: Re: Too young to be in clinic
Post by: poohkari on September 04, 2007, 06:29:31 PM
I understand that you're frustrated but do you realize there are KIDS on dialysis, like practically babies. I'm 22! So please don't say youre to young. No offense but that kind of iirritates me when ppl say they're too young, as if ESRD discriminates because it doesnt!

I know exactly how you feel. I think that because dialysis sucks so bad and totally puts peoples lives on hold, anyone who is on it feels they didnt do enough pre-dialysis, so they feel cheated and "too young"!


Title: Re: Too young to be in clinic
Post by: kidney4traci on September 04, 2007, 06:42:09 PM
We are all too young.  Even at 40 now I feel too young.  I agree w/ Adam, being at home vs. the clinic helps.  The clinic always made me depressed, and at home I feel I am managing my own care.  No one getting sick next to you, no hospital beds, bare butts( and not cute!), nurses, techs, social workers, misc dr's doing rounds, snoring, on and on....
Title: Re: Too young to be in clinic
Post by: Rerun on September 05, 2007, 12:21:35 AM
The person that started this post did so over a year ago and has not posted since August 1, 2006.  Probably dead.

I wish people would read the post date before they start ripping into someone who won't or can't respond.
Title: Re: Too young to be in clinic
Post by: thegrammalady on September 06, 2007, 01:00:39 PM
Yeah, I get that from some of the nurses at my clinic, too.  "You're too young to be this sick!"  or "You're so young to be on dialysis!"  Right.  Cause it's sooooo much better when you are old.  I think everyone is "too" something to be on dialysis - none of us like it!

At any rate, it was a good rant!

only the uninformed say things like "you're too young to be this sick" the nurses at dialysis clinics should know better. kidney disease has no age barrier.

The person that started this post did so over a year ago and has not posted since August 1, 2006. Probably dead.

I wish people would read the post date before they start ripping into someone who won't or can't respond.

true, but sometimes responding to an older post makes for an interesting "new" conversation.
Title: Re: Too young to be in clinic
Post by: Meinuk on September 06, 2007, 02:01:11 PM

The person that started this post did so over a year ago and has not posted since August 1, 2006. Probably dead.

I wish people would read the post date before they start ripping into someone who won't or can't respond.

true, but sometimes responding to an older post makes for an interesting "new" conversation.
Wow, I am away for a while and come back to a reminder of what I love about IHD!  Yes, the original poster isn't here, but I do like the subject.

I have noticed that since I started on M/W/F nights at the clinic, the average age skews younger - quite a few working people.  At 41, I am solidly middle aged on our shift.  I am transitioning to nxstage this month :yahoo; - So, hopefully I'll have plenty to talk about in Vegas!
Title: Re: Too young to be in clinic
Post by: highlite36 on September 06, 2007, 07:41:11 PM
I'm on PD right now.....but what I really enjoyed about HD was that there were many people....and we became a very tight knit community.  It was good to see others who were going through the same thing that I was going through regardless of their age or ability.....  That was just really nice.........
Title: Re: Too young to be in clinic
Post by: fluffy on September 06, 2007, 08:13:33 PM
it makes me really sad to see so many ppl of different ages all suffering from the same thing. and it gets worse when i turn on the tv and see commercials asking for donations for aids, breast cancer alzheimers and even the spca, but not one commercial for ckd, in the eyes of the media we dont even exist.
Title: Re: Too young to be in clinic
Post by: angela515 on September 06, 2007, 08:20:01 PM
Your right, people barely understand ESRD and dialysis and transplants.... it's really sad. This guy I m talking to and who took me out to the movies a month ago knew I had a kidney transplant but didn't know what dialysis was or anything. I had to explain it to him... and then basically break it down to dialysis=Life Support for him to understand the severity and importance of dialysis.

I honestly can say I didn't know about it either before dealing with it... and to be honest when I was 14 and going through kidney failure the first time, I wasn't even shook when the doctor said if you don't get this chemo to reverse your kidney's you will need dialysis.. because I didn't know what it was and it wasn't even explained to me. Thank god the chemo reversed my kidney failure for some years and I didn't go on dialysis until i was 20.
Title: Re: Too young to be in clinic
Post by: Adam_W on September 06, 2007, 08:47:33 PM
An example of how uninformed the general public is about dialysis: A few months ago, I went into the local convenience store to pick up a few things. When I got to the register, the cashier asked how my day was, and I said it was ok, but I had a rough dialysis treatment (that was when I was still in-centre and I crashed all the time). She responded "Oh, I could never do dialysis, I hate water!" I just paid for my items, and left the store shaking my head. I don't begin to know how she came up with that one.

Adam
Title: Re: Too young to be in clinic
Post by: mrhecht on September 06, 2007, 09:16:38 PM
Ok this reminds me of the person sitting next to me in-center one time who I overheard tell the charge nurse that his fluid gain was from taking too many showers over the weekend!
Yes, seriously.

And back to the rant that started this thread (yes I know it was last year's): may I continue his rant by picking up on the social worker he was ranting about. Do they all suffer from some kind of mental deficiency? Is it a requirement to get into the social work field that you must first
a) develop a sad puppy dog watery eye look of pity stare?
b) have some kind of obvious mental disturbance?
c) be completely obtuse?
d) consider your job well done if you come round your captive audience once a week, waking people up in an attempt to engage them in conversations which should most certainly be private, but aren't because you're in a room full of people?

I have two fond memories of social workers.

The first is just, well it's just unbelievably stupid. It was Valentine's Day or some such insipid greeting card "holiday" and I was in-center and napping quite peacefully. The social worker came round and quite forcefully (by saying my name loudly and repeatedly over and over; I guess she didn't understand being ignored) woke me up and stuck a plate with a piece of cake on it right in my face saying one word, "CAKE?" in this bright cheery Betty White kind of loud voice.  I'm sorry, but the whole idea of eating anything, much less being woken up to do it, in a place where that type of medical treatment is going on, was pretty repulsive to me. (To those of you who eat at your clinics, my apologies. I used to do it too, in the beginning.....but food in the unit is another rant.)

The second.....well I wasn't nice. There was this social worker who did virtually NOTHING for the patients. What she DID do was round in the unit once a week and it was as if she had this certain amount of time that she was determined to spend with the patients. I have yet to meet a social worker that I like, I avoid them always by "being asleep". This one, however, was determined. She would sit beside my chair until the time she had alloted herself was up.....never said a word, just sat beside the chair and stared at me. I could FEEL it. To her credit, she didn't try to wake me up, I guess she was just going to be there in case I wanted to "talk". After the second week of that, I opened up one eye and told her that I didn't require social worker services, that I would NEVER require social worker services and I would appreciate it if she would just leave me alone and not attempt to interact with me. If I needed anything from her, I would let her know. After that, she stared at the other sleeping patients and every quarter she would write on my PCC "does not require social services" which worked for me!

All social workers seem to have "issues".
Title: Re: Too young to be in clinic
Post by: fluffy on September 06, 2007, 09:35:04 PM
mrhecht, i completely understand how you feel about social workers. i think the problem with them is they way they get into professional detachment. im studying to be one so i can hopefully do  some good, but i've seen some other students trying so hard to go by the book. i watched one in a roleplay once and she had this dead faced stare with a slight smile. i called that the social worker face. i figure it becomes habitual and after so many years of doing the work they become dese3nsitized to other peoples suffering so the face they put on becomes a reality internally as well
Title: Re: Too young to be in clinic
Post by: jbeany on September 06, 2007, 11:27:25 PM
Actually, the social worker at my clinic was pretty good.  She's not an in-your-face sort of person, but if you need paper work help to deal with medicare or social security, she's very helpful.  She's got personal experience with both, though, as she put herself thru college while raising a daughter while in a wheelchair.  She may never have been on dialysis, but she "gets it" better than most of them.

There are good ones out there - but I'm betting mine is good because of dealing with a few social workers of her own!
Title: Re: Too young to be in clinic
Post by: mrhecht on September 07, 2007, 07:47:32 AM
Ok I confess I have met ONE social worker that I could deal with one on one as two people rather than that "patient/professional" thing. I actually remember her name. It was Barbara and she was the first social worker at my first clinic. Sense of humor, practical advice on wading thru paperwork. The big problem I have with social workers is that they all seem to want me to "share" how I feel and really have a go at "helping" me with all of my difficult issues. The reality is.....I don't want to be psycho evaluated everytime I have to talk to someone. I don't have the need to tell you how I "feel".

And then are the ones who have just assumed that because I'm on dialysis that I'm incapable of working and would offer me state assisted "re-training" on computers so I could get a job. So ok, you didn't have time to read my file before you came out on the floor to "help" me....so you couldn't have known that I've been working as a technical writer for the past 5 years or as a bookkeeper for 15 or as an administrative manager for 10, you couldn't have known that I've been training people on office PCs since they first arrived in offices in the late 80s. So you couldn't have known all that BEFORE you met me but can you at least remember that AFTER I tell you that I'm not in need of work re-training? Can you remember that I do meaningful work and have never stopped working after I tell you? Can you remember that because I work, I don't qualify for all this free aid that you keep trying to sign me up for? Can you not have that one size fits all approach to every person you come in contact with in a dialysis clinic.

So Fluff remember that not everyone responds to sympathy and pity and that we may all be dialysis patients but we're still inidividuals.
Title: Re: Too young to be in clinic
Post by: BigSky on September 07, 2007, 07:52:06 AM
An example of how uninformed the general public is about dialysis: A few months ago, I went into the local convenience store to pick up a few things. When I got to the register, the cashier asked how my day was, and I said it was ok, but I had a rough dialysis treatment (that was when I was still in-centre and I crashed all the time). She responded "Oh, I could never do dialysis, I hate water!" I just paid for my items, and left the store shaking my head. I don't begin to know how she came up with that one.

Adam


Ohh just wait till they tell you kidney failure can be cured with cranberry juice. ;D
Title: Re: Too young to be in clinic
Post by: Zach on September 07, 2007, 07:54:09 AM
Ohh just wait till they tell you kidney failure can be cured with cranberry juice. ;D

It can't??? Oh no!
Title: Re: Too young to be in clinic
Post by: Rerun on September 07, 2007, 08:46:33 AM
This really isn't the right place to talk about Social Workers but I have to tell you my experience last week.

I was laying there watching a movie when I saw her coming out of the corner of my eye.  "oh shit what the hell does she want now."
Luck would have it that her target was the HUGE black lady next to me.  I mean they have a hard time fitting her in the chair (not being mean but just giving you the visual).  Now this black lady has NO chance for a transplant.  First she is about 80 and in extreme poor health.  Has oxygen etc.  So this was the conversation.  (I was about ready to burst out laughing)

SW - Hi How are you.  (high loud squeeky voice)
PT - WHAT
SW - Hi How are you.
PT -  I'm as uncofortabel as hell.
SW - Would you be interested in a transplant?
PT - WHAT
SW - Have you thought about maybe getting a transplant?
PT - The doctor told me I can't have a transplant so I don't think I want one if I can't have one.
SW- Are you depresssssed?
PT - WAHT
SW - Are you depppprreeeesssed?
PT-  Yeah I think transplants are great my son's neighbor has one so I wish I could have one.
SW -  No, are you sssssaaaaaddddd?
PT - Yeah I want one bad but they say I can't have one.
SW - No, do you feel SSAAADDD sometimes.
PT -  Ya know I LOVE THE LORD JESUS AND HE HAS A PLAN FOR ME NOT TO HARM ME BUT TO PROTECT ME AND AS LONG AS JESUS WANTS ME HERE ON THIS EARTH I'LL BE HERE SERVING HIM. 
SW - Shhhhh you need to lower your voice.
PT - IT SAYS IN MATTHEW NOT TO BE AFRAID FOR THE LORD TAKES CARE OF THE LILLIES OF THE FIELD SO SHALL HE TAKE CARE OF ME.....
sw - (walks away)

Aahhhh that was a good day.   :thumbup;
Title: Re: Too young to be in clinic
Post by: highlite36 on September 07, 2007, 08:48:02 AM
Quote
Ohh just wait till they tell you kidney failure can be cured with cranberry juice. ;D


Cranberry juice?  HECK NO!!!!  Didn't they tell you that changed?  Now they recommend pepto-bismal with a shot of soy..... 


EDITED: Fixed quote - okarol/moderator
Title: Re: Too young to be in clinic
Post by: RichardMEL on September 07, 2007, 08:51:22 AM
I think younger people prefer M/W/F shifts so they have the weekend free. I know the 21 y.o. woman in my unit does that so she has the weekend to herself. I actually do it the other way - T/T/S so I can get more time in at work.. I think the prime difference there is that I have no life! LOL

As for Social Workers.... I'm a bit biased since my mother was Chief Social Worker for a major hospital here in the 80's/early '90's (before it shut down and was demolished). I think the problem is that you have to remain detached to do your job because becoming emotionally involved is a big no no for all sorts of reasons. Some handle the best way to approach patients better than others. I met one recently who just left me cold... but some others have been OK (of course comparing to my mum they have to be brilliant! :) )...

It is just a bit that it seems most of them seem so ineffectual at their job specially when it comes to Kidney Failure/dialysis requirements. Frankly I get better support out of the local nurses or co-ordinators or whatever.
Title: Re: Too young to be in clinic
Post by: okarol on September 07, 2007, 09:14:22 AM
This really isn't the right place to talk about Social Workers but I have to tell you my experience last week.

Aahhhh that was a good day.   :thumbup;

LOL so funny... so sad... so true...
Title: Re: Too young to be in clinic
Post by: mrhecht on September 07, 2007, 08:06:41 PM
Quote
Ohh just wait till they tell you kidney failure can be cured with cranberry juice. ;D


Cranberry juice?  HECK NO!!!!  Didn't they tell you that changed?  Now they recommend pepto-bismal with a shot of soy..... 

Now wait that's wrong too.....copious amounts of Mangosteen juice followed by chelation and colon cleansing will do the trick. Oh and LOTS and LOTS of WATER....pure water to flush everything out of your system.

I have shortened my answer to these well-meaning but uninformed souls to, "It's a plumbing problem."


Rerun that social worker story was classic!
Title: Re: Too young to be in clinic
Post by: goofynina on September 07, 2007, 08:11:11 PM
You go Rerun, damn, i wish i could've seen the expression on her face, lol  :yahoo;
Title: Re: Too young to be in clinic
Post by: lcamanini on September 11, 2007, 11:23:12 PM
I hate that I'm the youngest one at my unit (I'm 21). Any time someone new visits a patient or there's a new patient, they stare at me through my entire treatment like they can't believe I'm there. It's really weird when people my age come to visit their grandparent on dialysis, because they really stare. I hate it. It makes me feel like some sort of animal in a zoo. Maybe I should start charging admission.  ;)
Title: Re: Too young to be in clinic
Post by: RichardMEL on September 12, 2007, 12:58:49 AM
no no no! you've got it totally the wrong way!! They're staring because you're way too cute for dialysis!!!!

:D
Title: Re: Too young to be in clinic
Post by: Lulu on September 12, 2007, 01:08:15 AM
This really isn't the right place to talk about Social Workers but I have to tell you my experience last week.

Aahhhh that was a good day.   :thumbup;

OMG!! Sooooo funny rerun.  :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;
Title: Re: Too young to be in clinic
Post by: mrhecht on September 14, 2007, 08:36:34 PM
I hate that I'm the youngest one at my unit (I'm 21). Any time someone new visits a patient or there's a new patient, they stare at me through my entire treatment like they can't believe I'm there. It's really weird when people my age come to visit their grandparent on dialysis, because they really stare. I hate it. It makes me feel like some sort of animal in a zoo. Maybe I should start charging admission.  ;)

I'm sorry that you are feeling their stares. I wasn't as young as you are when I started, (29) but I experienced similar situations. It may be hard to do at first, but you will be more comfortable in the long run if you just look them square in the eye and say hello. They'll either respond and stop staring or they'll look away and stop staring. I believe its born out of a combination of empathy and a kind of fear, because when they see someone closer to their age, the realization that it could be them is apparent.

And then there are just those without manners that are curious and wonder why you're there.

There were the occasional "bad" days where I was grumpy and told them if they had a camera.....well, you get the idea.
Title: Re: Too young to be in clinic
Post by: angela515 on September 14, 2007, 08:41:06 PM
I didn't mind the stares.. If I found someone staring I was like "Do you have a question?" Which they would immediately apologize but then ask all sorts of questions as to why I am there when I look so young. I started when I was 20... I remember when I first started chemotherapy (cytoxan) treatments, I was like 14 maybe 15, I forget exactly what year... people are curious as to why young people are going through so much.
Title: Re: Too young to be in clinic
Post by: okarol on September 15, 2007, 12:52:46 AM
I hate that I'm the youngest one at my unit (I'm 21). Any time someone new visits a patient or there's a new patient, they stare at me through my entire treatment like they can't believe I'm there. It's really weird when people my age come to visit their grandparent on dialysis, because they really stare. I hate it. It makes me feel like some sort of animal in a zoo. Maybe I should start charging admission.  ;)

Jenna was 18 when she began dialysis and everyone stared at her. I felt like making a sign for her chair that said, "Yes, I am as young as you think I am and Yes, I am on dialysis. Now move along!"
Title: Re: Too young to be in clinic
Post by: karen547 on September 15, 2007, 04:37:09 AM
okarol= yea thats EXACTLY how I feel at times when ppl stare- I just smile and think yes you're not seeing things!!
Title: Re: Too young to be in clinic
Post by: highlite36 on September 17, 2007, 08:34:57 AM
People used to stare at me all the time when I first started dialysis....   I was 20 when I started dialysis....and then again when I lost my transplant at 23......  I used to tell everyone that my "job" at dialysis was to be the pretty, young, sexual fantasy that social security required all clinics to have.....  It's not my fault that I'm so pretty with tubes hanging out all over my body!!!!!   :-P Some thought I was a weirdo for saying that....but it did bring a smile to some of the people there........and a smile is such a beautiful thing to see on these peoples' faced when they're down and out......  I don't dialyze there anymore....but I do volunteer at the clinic....and it's a line that always guarantees a smile....  :-)
Title: Re: Too young to be in clinic
Post by: RichardMEL on September 18, 2007, 06:40:51 AM
lol!! that's so funny hilite36 ! I love it... hmm I should try something along those lines sometime....

really good stuff! :)
Title: Re: Too young to be in clinic
Post by: angela515 on September 18, 2007, 11:51:38 AM
okarol= yea thats EXACTLY how I feel at times when ppl stare- I just smile and think yes you're not seeing things!!

How old are you?
Title: Re: Too young to be in clinic
Post by: kitkatz on September 18, 2007, 04:05:39 PM
I just pretend I am the Walmart greeter, since I sit in the front of the unit. Hello. Welcome to Fresenius.  That is if I can say Fresenius while I am on dialysis.
Title: Re: Too young to be in clinic
Post by: George Jung on September 18, 2007, 07:51:43 PM
How old are you?

22
Title: Re: Too young to be in clinic
Post by: Zach on September 18, 2007, 09:28:55 PM
When I started hemodialysis, it was just a few weeks before my 24th birthday.
Both the early morning and evening shifts have people in their 20's and 30's.  Why, we could have a Baseball Team!
 8)
Title: Re: Too young to be in clinic
Post by: paddbear0000 on September 19, 2007, 10:01:48 AM
I hate that I'm the youngest one at my unit (I'm 21). Any time someone new visits a patient or there's a new patient, they stare at me through my entire treatment like they can't believe I'm there. It's really weird when people my age come to visit their grandparent on dialysis, because they really stare. I hate it. It makes me feel like some sort of animal in a zoo. Maybe I should start charging admission.  ;)

I think it would be fun if you bring a camera (or better yet, a video camera!) and just start taking pictures or filming whoever is staring at you. As soon as they feel like they're being stared at like zoo animals, like you are, then they'll stop!  ;D
Title: Re: Too young to be in clinic
Post by: Jannie on September 19, 2007, 01:44:33 PM
i just started hemo dialysis as an putpatient Aug 2-.  i really hate it. I look around the unit and everyone is OLD. I'm only 54, I know it sounds old. But in my head I'm still a young woman. I talked to the guy in the next chair. He told me he is 76 and has been dialysis for 12 years. He had a chance for a transplant but turned it down so someone younger could get a kidney. That was nice of him. I hope I'll never be 76 and still going to dialysis. I dream there will be a day in the not-too-distrant future when I will have a working kidney transplant and am used to the immunosuppressant medications. Think I'll dream about that.  By the way, there is no such thing as false hope. All hope is truthful.
Title: Re: Too young to be in clinic
Post by: st789 on September 19, 2007, 02:07:06 PM
When I was in the hospital, the dialysis nurse was sympathetic to see how young I am (25 yrs. but look like 18) and hooking up to the machine.  She   complimented me on my look and it definitely made me forget about the depression situation I am in.

A sense of humor is what get me through rough times.  I always could use a little laugh. :)
Title: Re: Too young to be in clinic
Post by: thegrammalady on September 19, 2007, 02:12:28 PM
let's face it, there is NO age "restriction" when it comes to kidney disease. the general public just THINKS it's a disease of the elderly, if they think about it at all.
Title: Re: Too young to be in clinic
Post by: Jannie on September 30, 2007, 08:22:59 AM
This is such a sad topic. None of us should be on dialysis. At my center, I see 10 to 16 people running at the same time. Most of them are in their 70's or 80's. By the way, I am "only" 54. One man talked to me a little once. He told me not to drink too much, and told me he likes this center because the staff is so good, so attentive. He told me he's 76 and he has been dialyzing for 12 years. He had a chance for a transplant but turned it down so a younger person could get a kidney. How generous!  The next time I saw him, I said hello but he seemed to be in a daze. He just sat in his wheelchair and stared. It was scary. I don't want to end up like him.
Title: Re: Too young to be in clinic
Post by: RichardMEL on September 30, 2007, 09:20:08 AM
I think different people handle it differently - even the older ones. There's this chinese lady at my unit. I understand she's been dialyising for 11 years. I think she's in her 60's and has just the most delightful husband.. they are both so cute.. speak little English but join in with us when they can. I've learned a little mandarin to say hello and goodbye and the delight when i first wished them goodbye in their language was so cute.. now whenever they see me they yell hello and grin and smile.... and some other guys in their 70's are pretty spritely and nice... others. yeah have the daze thing.. I think a lot of it has to do with coming to terms with the situation and how you handle it. Some can deal more than others... I think that's a very human reaction.
Title: Re: Too young to be in clinic
Post by: fluffy on October 01, 2007, 08:45:05 PM
im pretty sure im the youngest at the hospital i go to, the youngets person i've seen there is in her 30's. but i suppose when you go is a factor im on monday and friday at 5 pm
Title: Re: Too young to be in clinic
Post by: CCHT_8o8 on October 02, 2007, 12:23:32 AM
Too young???  I've seen one pediatric patient at our clinic... sad to see but it can happen to all walks of life.  I'm glad our pediatric patient was lucky enough to get a donor kidney from a young cadaver... she was 10 at the time of dialysis, and is now 16 years old.  I believe the youngest one we have now is about 24 years old. 
Title: Re: Too young to be in clinic
Post by: Bajanne on October 02, 2007, 12:40:51 AM
This really isn't the right place to talk about Social Workers but I have to tell you my experience last week.

Aahhhh that was a good day.   :thumbup;

OMG!! Sooooo funny rerun.  :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;
I hadn't seen Rerun's post before and it nearly killed me laughing.  I LOVE IT!
Title: Re: Too young to be in clinic
Post by: paddbear0000 on October 03, 2007, 11:09:33 AM
I'm 30 and not on dialysis yet, but every time I go into my neph's office, everyone in the waiting room is at least 60+ years old. I get stared at by everyone and a pathetic look. It's very depressing.
Title: Re: Too young to be in clinic
Post by: angela515 on October 03, 2007, 11:55:10 AM
I'm 30 and not on dialysis yet, but every time I go into my neph's office, everyone in the waiting room is at least 60+ years old. I get stared at by everyone and a pathetic look. It's very depressing.

Ask them if they wanna take a pic, it lasts longer  :pics;  ;D
Title: Re: Too young to be in clinic
Post by: paddbear0000 on October 03, 2007, 12:01:44 PM
Hmmm...Maybe I'll hand one of them my camera phone next time!   ;D  >:D
Title: Re: Too young to be in clinic
Post by: glitter on October 03, 2007, 12:33:30 PM
they probably won't know how to work it-
 :rofl;
I have a  stereo I bought 5 years ago- and (lost the book) only have one radio station choice because I can't remember how to change the station....why did they do away with knobs again?
Title: Re: Too young to be in clinic
Post by: paddbear0000 on October 03, 2007, 12:47:34 PM
they probably won't know how to work it-
 :rofl;
I have a  stereo I bought 5 years ago- and (lost the book) only have one radio station choice because I can't remember how to change the station....why did they do away with knobs again?

I ask myself that question all the time. I have CD player/stereo that I too lost the manual to. I have to use the remote to work it, but can't remember how. I'm not good with electronics. My husband is an electrical engineer and has a million components hooked up to the TV. He had to get a universal remote called the Harmony just so I could use everything. You literally only have to push a button that says "Watch TV," "Listen to music," Watch a DVD," etc. It's great! God forbid the remote dies, because I won't know what to do!  :o
Title: Re: Too young to be in clinic
Post by: Neo on October 03, 2007, 12:53:55 PM
Im 29 and i  got sick at 19 had a transplant at 21 it failed but because of a problem getting my pills or I'd probably still have it but anyway ive been back on since i was 25 im 29 now and I look pretty young as you can see by my pic I still get I.D'd at clubs..LoL
Title: Re: Too young to be in clinic
Post by: paddbear0000 on October 03, 2007, 01:24:11 PM
Im 29 and i  got sick at 19 had a transplant at 21 it failed but because of a problem getting my pills or I'd probably still have it but anyway ive been back on since i was 25 im 29 now and I look pretty young as you can see by my pic I still get I.D'd at clubs..LoL

I'm constantly getting carded! The "kids" at school all think I just graduated from high school! They are very good at making me feel old. Especially when they start talking about bands! It's fun to mess with them tho. I find that bringing in one of those old floppy disks (the ones that were actually floppy) and talking to one of the older students about it, really throws 'em for a loop! They get this look on their face, then they look at the disk like it's from the 1800's! What fun!!   >:D
Title: Re: Too young to be in clinic
Post by: highlite36 on October 06, 2007, 11:07:04 AM
Talk about looking young....  I'm 26....  I went to a movie last week that was rated PG-13 and I was ASKED if I was old enough to make it into the movie...  The WORST part was that after I paid for the ticket, I looked at it and realized that the reason why it was so cheap was that the guy charged me a CHILD's price rather than an adult......  FUNNY!!!!  I guess I shouldn't mind that I age this well.......  Maybe when I turn 50, I'll actually look 20ish because I know that at 50, I'll have gone through MUCH MORE than any other youngun I know.....  :-)