I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Roadrunner on January 27, 2008, 02:08:14 PM
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Is everyone getting iron at the clinic? My husband is taking daily iron pills. Should he be receiving iron by IV. That was what he was getting when he was in clinic but now he is just taking iron capsules. The same ones he took before he was on dialysis.
Roadrunner
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Depends some people take iv iron others the pills. The pills gave hubby a very upset stomach so he had to change to iv iron. We do home nocturnal and he still gets iv iron once a month during one of his treatments.
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Iron by IV is very expensive (what isn't?) so it depends on what your insurance will pay for. Iron by pills don't absorbe as well as a shot right in your blood stream.
Pen your doc down and get an asnwer.
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Not everyone can take pills. I think I tried at least a dozen different pills, liquids and formulas before they gave up and started giving me infusions pre-dialysis. Everything orally made me sick. I got IV iron at the clinic when I was in-center. I have needed any since switching to home hemo, but I'm not sure how that will work if I ever do. They've looked into sending it home with me, but I don't think they are allowed to, so I may have to visit the infusion center again.
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When my hemoglobin was 9, I took iron infusion at my Dr's office. It took about 2-3 hours. I also had Aranesp shot monthly until my #'s reached 12.
4-5 weeks into my dialysis treatment, they tried another iron infusion at the dialysis clinic. After 5hrs, I ran a fever of 103. I called the clinic to inform them and come to find out I was having a negative reaction to the iron. So now, instead of having an iron infusion, I've been taking Ferrex 150 once a day. I can't understand why the clinic iron infusion is to different from what was given to me at my Dr's office. I had no problem before until the clinic incident. I hate taking the iron capsules.
I don't think it's working anyway. When I started dialysis 3 months ago, my hemoglobin was @ 12.1, now I'm at 9.1 I started taking EPO shot last week 9000u 3x/week. I have to self administer the shot. I wish they could put me back on Aranesp monthly, but my stupid insurance will not cover Aranesp anymore because I'm on dialysis. I DON'T GET IT!!! :rant;
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When my hemoglobin was 9, I took iron infusion at my Dr's office. It took about 2-3 hours. I also had Aranesp shot monthly until my #'s reached 12.
4-5 weeks into my dialysis treatment, they tried another iron infusion at the dialysis clinic. After 5hrs, I ran a fever of 103. I called the clinic to inform them and come to find out I was having a negative reaction to the iron. So now, instead of having an iron infusion, I've been taking Ferrex 150 once a day. I can't understand why the clinic iron infusion is to different from what was given to me at my Dr's office. I had no problem before until the clinic incident. I hate taking the iron capsules.
I don't think it's working anyway. When I started dialysis 3 months ago, my hemoglobin was @ 12.1, now I'm at 9.1 I started taking EPO shot last week 9000u 3x/week. I have to self administer the shot. I wish they could put me back on Aranesp monthly, but my stupid insurance will not cover Aranesp anymore because I'm on dialysis. I DON'T GET IT!!! :rant;
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iv iron here,can be taken weekly, monthly,fortnightly, all depends on your labs.