I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Working while on Dialysis => Topic started by: MelissaJean on January 07, 2008, 06:26:40 AM
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I was reading a post and someone mentioned they only had 4-4 1/2 hours of free time per day. So I started thinking.. I have about 4 1/2 to 5 hours (M-F) that I am not working, sleeping, commuting, or being dialyzed (I currently do PD). I have always felt I have a decent amount of free time, but maybe not? Anyway just curious.. how much free time do you have?
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Hi Melissa, when I was working Monday thru Friday, days that I went to dialysis M-W-F I had none I would finally get home at 9:30 or 10pm and go straight to bed. On T-T I would get home from work at 6pm so I would have 2-3 hours before I would go to bed. Not a lot when you add it up. Then on the weekend all I felt like doing was sleeping...Boxman
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Not much. I work full time 8-5, do my pause (on the cycler) when I get home, then I have supper to get, chores to do, then it's back on
the cycler for the evening. I do my exchanges lying down, it's so much better that way, but it costs me time, since I can do nothing else
but read or get the computer.
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Zero
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I work Mon-Fri from 8am-5pm. I'm very fortunate that right now I only have 2 exchanges/day. I'm on CAPD. So, I'm pretty much have free time between 5pm-11pm durin the week. Unless I have to attend school meetings, basketball, piano lessons, cook, etc.... Weekends are pretty flexible.
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Not on dialysis yet. I work M - F, 8 - 5, so I'm gone from about 7:30 - 5:30. Bed is usually 9:30 and I get up ~6:30. I guess that leaves about 4 hours/day in free time during the week. I don't count that hour in the morning as free time since it all goes to getting ready for work and doing "farm chores." (taking care of the cats & dogs). I'm too tired at night to do anything other than throw a ball for the dog, watch tv, and find something quick to fix for dinner. Weekends are for errands, housework, laundry, meeting a couple of friends for a walk or coffee, and napping. I seem to spend a lot of weekend time on the couch. I'm hoping to perk up a bit in the spring.
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If my husband works that day:
4:45-5:45 Get up, shower, dress for work
5:45-6:40 Get my son up, dressed, breakfast eaten, etc.
6:45 Get him on the bus
6:45-7:30 Drive to work
7:45-4:45 Work
5:30 Pick son up from school
5:45-6:45 (Mondays) Son's basketball practice
6:45-7:15 (Mondays) Dinner
5:45-7:15 (other days) Prepare and eat dinner
7:30 Connect to dialysis (PD cycler)
If he doesn't work, I can sleep about an hour later (he gets our son up) and connect to dialysis about an hour or an hour and a half later. So I guess I have up to an hour or two of free time each day.
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And now with all your free time you can join gamezrus... :rofl; :rofl; :rofl;
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Up at 5:45. showered dressed, pills, feed the cats, out the door 6:30a.m. School at 6:45. School begins with kids 7:30a.m. to 2p.m. Out the door to home for fifteen minutes, then off to the big D MWF. Home 8p.m. In bed by ten.
T TH same schedule only no dialysis those days.
Probably have MWF two hours free.
TTH I have about 5 hours.
Weekends are pretty much my own.
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Well, since July, I have had TOO MUCH FREE TIME!! I can't wait to have a job again. I find that free time means snacking and drinking more. The days that i am out of the house, my liquid input is much less.
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There's not much free time during the week...up around 7, work around 8:30, home around 5, dinner with the family, on the dialysis machine by 7, off around 10:30 (then holding, weighing, etc.) in bed by 11...start all over again. Fortunately, being at home for dialysis gives me time with my family w hile I'm plugged in, and our new schedule of 5 days a week means I have 2 days with no treatments, which are heavenly!! I try to take at least one day off on weekends so I don't have to work OR dialyze...those are the best!
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Hi Melissa, when I was working Monday thru Friday, days that I went to dialysis M-W-F I had none I would finally get home at 9:30 or 10pm and go straight to bed. On T-T I would get home from work at 6pm so I would have 2-3 hours before I would go to bed. Not a lot when you add it up. Then on the weekend all I felt like doing was sleeping...Boxman
sounds just like me when I was teaching and oh, do I miss it (teaching) and how and where are you Boxman
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I do in center M-W-F and usually get home around 7:30. Later if I have to go to the store which I usually do. But 8-11 or so is my "Free time" on those nights and T and Thu I take about a 3 hour "nap" when I get home from work. So 7 to 11 or so on those nights as well.
I guess I have pretty decent amount of free time. Wish I didn't feel like napping most of it away. :)
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Plenty of free time. I usually get up about 8:00, shower and do a few chores. Leave for dialysis at 11:00 and work on my laptop until I finish. Off about 3:00 and run errands. Usually in bed between midnight and 2 am. Non-dialysis days are much easier.
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Visit friends.
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Formerly I'm used to travel in my classic cars, but now wondering around at home with the childrens. :guitar:
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Formerly I'm used to travel in my classic cars, but now wondering around at home with the childrens. :guitar:
You traded your cars for kids?
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Now that I'm on hemodialysis, no time. Except on weekends, which is usually spent recuperating from working/being out of the house for more than 12 hours at a time.
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I must laugh. Free time is not on the agenda. I work full time, get home around 6:00pm, cook dinner, clean up, do dialysis. I dialyze at home, 5 days/week. On my non-dialysis days, I run errands and clean up the house. It is difficult having no spare time. I can adjust my schedule to dialyze later, but that means I go to bed later, but still must get up and go to work the next morning.
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My plans were to go on disability when I started dialysis. I thought anyway. My mother worked on dialysis, but she was 30 years younger than me. My energy level after work is nearly non existent now, before dialysis. I'm I mistaken that this is an option? ???
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dkerr, you should apply for Social Security and disability through your work if you have it, NOW. It takes time for them to kick in. Good luck and let us know.
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Disability is almost automatic if you are on dialysis and choose to apply.
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But it ends if you get a transplant.
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But it ends if you get a transplant.
Not that I am close to applying for disability OR getting a transplant...but how soon after getting the transplant does it end?
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My understanding is that it's basically up to the doctors and if they think you can return to work.
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I was actually thinking of Medicare. It ends 12 months after you stop dialysis. So, if you get a transplant and no longer require dialysis, Medicare will end 12 months after the transplant.
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I thought it was three years after transplant because of the meds.
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I just checked on the Medicare web page - 12 months. How would one pay for that without insurance?
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Isn't that supposed to change with some new law that was passed?
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If you already had Medicare based on age, it wouldn't end if you got a transplant would it?
Free Time. Almost all of my time is free and I could always find something to do with it. Now, after starting dialysis last week, my favorite thing to do is sleep. I can sleep everywhere and anywhere and anytime except during dialysis.
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Oh yeah DW. I could sleep in a train station I am sure. It takes time to get used to the noises at the centers.