I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: flatxlander on December 20, 2007, 10:25:41 AM
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I just received notice from the Mayo Clinic I am no longer considered to be on the transplant list for a cadaver kidney. After contacting my neph at Mayo's, he stated that: 1-My condition was not much worse that any of the previous annual tests. 2-I did have an enzyme that showed up making me a greater risk to succeed as a transplant receiptcant. This was a new test, I am sorry I don't know much about the test or the actual enzyme's name yet. 3-The Mayo Clinic was making an effort to show an excellent success rate on their "public report card".
He then stated he was afraid the Clinic was getting away from treating the difficult medical cases. He hated to see this, because their mission was historically to treat the cases that no other medical institutes would tackle. He felt anyone who had been on their list for four years like I had been should be treated much more fairly by their obligation to keep me on their list. Such is not the case now. If the great Mayo Clinic is shedding cases that show more risk to make a good public grade, I fear many more medical clinics/hospitals will do the same.
Maybe my case is a unique one, I hope others are not treated so badly. But please be aware of such things if you are on a transplant list.
Good luck to all.
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If it were me I would appeal the decision. I would ask for an explanation in writing. And I would find a new transplant center.
I am sorry about this, but every center has their own guidelines, which can change over time. Next year they will be different again. Hang in there!
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:banghead; Hang in there flatxlander. If all transplant centers work this way my husband would not of ever been put on the list. Find another center. Get your neph to give you a referral. What one center won't do, another will. Take care.
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I agree with willie. If my transplant team didn't take the tough cases, I certainly wouldn't have made it (this will be my third transplant). My surgeon told me just the other day that he's put six new kidneys into one person! (not all at the same time, of course!) Find a new center.
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Come on over and sit in my corner. I cannot be listed either.
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Unfortunately, the Mayo's practice is becoming quite common. Transplant centers want to brag about their excellent success record for their kidney transplant programs, so the best way to inflate the good results they need for added prestige in the medical community is to take only the healthiest people for transplant. Doctors who are willing to play such games with people's lives in order to enhance the prestige of their programs are in the wrong profession, in my view.
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Please try another center. All of us have heard success stories after people were turned down by other centers.
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Unfortunately, the Mayo's practice is becoming quite common. Transplant centers want to brag about their excellent success record for their kidney transplant programs, so the best way to inflate the good results they need for added prestige in the medical community is to take only the healthiest people for transplant. Doctors who are willing to play such games with people's lives in order to enhance the prestige of their programs are in the wrong profession, in my view.
You're absolutely correct on this one.
8)
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You need to appeal the decision . Let them know you will not just say "Okay and go away "
Eventually they will give in . Get your Dr. behind you on it also .
Best wishes
Katonsdad