I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: virrat on November 17, 2007, 01:58:56 PM

Title: Have Any Tips on Patient Resource Info?
Post by: virrat on November 17, 2007, 01:58:56 PM

Hello Everyone

I am interested in hearing from members about information resources that they've found helpful. This could be anything including books, video or audio tapes/cd's/dvd's, websites, blogs, brochures, etc.

My husband Virrat passed away earlier this year and I've been thinking about creating a patient resource centre in his memory. We're both librarians and very interested in consumer health issues and patient self-management.

I appreciate any feedback you're interested in providing. Feel free to reply on the message board or contact me directly: sjmiller@magma.ca

Cheers,  :thx;
Sandra

***************

Carpe Diem Chris
http://carpediemchris.blogspot.com/

Title: Re: Have Any Tips on Patient Resource Info?
Post by: paris on November 17, 2007, 02:28:59 PM

What a wonderful idea and such a meaningful way to honor his memory.    How are you doing now?  Keep us updated on your project.  :grouphug;

Title: Re: Have Any Tips on Patient Resource Info?
Post by: tamara on November 17, 2007, 03:28:00 PM

Sandra,

What a thoughtful thing to do. May his memory live on by helping others  :grouphug;  :cuddle;

Title: Re: Have Any Tips on Patient Resource Info?
Post by: Sluff on November 17, 2007, 04:05:22 PM

What a great idea.  :2thumbsup;

Title: Re: Have Any Tips on Patient Resource Info?
Post by: paddbear0000 on November 18, 2007, 01:48:21 PM

You're in luck! I just did a website for a class project on chronic kidney disease. There is a page on the site with a list of resources. Feel free to use them. Here's the link - http://www.yourbadkidneys.com/resources.html. Be warned though, the site will only be up until November 30th, so get the info as soon as possible. As I said, it was a class final project and I don't plan on leaving it up forever!

Good luck!

Title: Re: Have Any Tips on Patient Resource Info?
Post by: okarol on November 18, 2007, 03:52:55 PM

Kitkatz started a thread that has some good internet resources here http://ihatedialysis.com/forum/index.php?topic=858.0

I would have to say IHD is the best dialysis forum I have seen. I like this site regarding transplantation http://www.organtransplants.org/

Personal blogs regarding dialysis that I found helpful are Gil's http://gil1.home.pipeline.com/esrd/ and Sandra's mom http://kidneytransplantforkyliesmom.blogspot.com/

I know I have more, also some books, I will post later.

I admire you for taking on this project!