I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: MyssAnne on October 08, 2007, 08:27:43 AM

Title: 3rd tube replacement in one year.
Post by: MyssAnne on October 08, 2007, 08:27:43 AM
That has got to be a record. I have to have a 3rd tube put in. The 1st tube was clogged from all the peritonitis I got the first year. This one has the first cuff showing, and I've had 2 infections at the exit site. So, both the neph and the surgeon recommend replacing it. I am not happy.  :boxing; :boxing; It's nobody's fault, but I feel so angry and upset right now.
Title: Re: 3rd tube replacement in one year.
Post by: paddbear0000 on October 08, 2007, 11:47:03 AM
I'm sorry about that! I hope you get this fixed soon though! Good luck!  :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: fluffy on October 09, 2007, 06:46:59 PM
im getting my tube removed because of recurrent peritonitis, :( i dont mind pd, but peritomitis hurts like hell
Title: Re: 3rd tube replacement in one year.
Post by: angela515 on October 09, 2007, 07:05:01 PM
Awww, so sorry hun... hopefully this one lasts awhile!  :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: angellady07 on October 09, 2007, 10:19:43 PM
MyssAnne, I'm sorry you are going through so much right now. I'm sending positive thoughts your way. Take care.
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 10, 2007, 06:16:22 AM
Fluffy, I had the 2nd replacement because of P 3 times in one year. Grrrr... so far, no P, but two infections on the exit site was just two too many for my neph's comfort. Of course he isn't the one going through this procedure....it was easy for HIM to say it had to be replaced!!!  :boxing; :boxing;

I called the surgeon, the EARLIEST I can even see him is the 23rd. So it's hurry up and wait.
Title: Re: 3rd tube replacement in one year.
Post by: Amanda From OZ on October 10, 2007, 07:53:34 AM
Sorry to hear you have to go through that crap.

Hope it gets better soon.  :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: goofynina on October 10, 2007, 01:41:37 PM
Let's just hope that saying "3rd ones a charm" is true :) ;)  Hope all goes well and your feeling well besides all this crap your having to deal with.  :cuddle;
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 10, 2007, 02:05:28 PM
Third time had better be the charm, I can only hope!!! I called my nurse and BEGGED her to see if she could call the surgeon and get me in earlier. Sure enough, she did!! The 16th!! Hopefully I'll get the surgery that week if not the next. I'm a bit more philosophical about it. I don't like it, but I'll be cooperative. Gotta get done, right?
Title: Re: 3rd tube replacement in one year.
Post by: donnia on October 10, 2007, 04:19:25 PM
It sucks that you are going through all this.  I am sending you happy thoughts and prayers on a speedy surgery and speedy recovery! :cuddle;
Title: Re: 3rd tube replacement in one year.
Post by: Laurie on October 10, 2007, 06:12:28 PM
Good luck, I hope the tube replacement goes well  :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: fluffy on October 11, 2007, 09:42:12 PM
good luck  :cuddle; and watch out for that peritonitis
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 23, 2007, 12:08:55 PM
I've been so busy reading other posts, I forgot to post on this thread! I go in Thursday (25th) for my 3rd tube replacement. I'm kinda nervous, but more because of the discomfort afterwards than anything else. 
Title: Re: 3rd tube replacement in one year.
Post by: Bajanne on October 23, 2007, 12:21:43 PM
And I am so sorry I only just saw this thread.  Please be assured of my caring thoughts and prayers.  We are right there with you.  Please let us know how everything is going.
I hope everything just heals quickly and let you get back to normal (???) as soon as possible.
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 23, 2007, 02:01:11 PM
Hey. I represent that remark. I am as normal as anyone else on this site. Really. Just don't ask anyone who knows me in real life. I told my kittahs I was having surgery and that I would be home ALL day with them!!! Oooo!!! They were excited. Especially Agatha. She promised she would NOT bounce on my belly this time.
Title: Re: 3rd tube replacement in one year.
Post by: fluffy on October 23, 2007, 06:44:07 PM
i just had my pd catheter removed today.............ow.  the surgeon did a good job and the anesthesia techs and the nurses were all super nice, so i got lucky
its just sore now, and the demerol isnt working  :D on the bright side no more peritonitis  :bandance;
Title: Re: 3rd tube replacement in one year.
Post by: KT0930 on October 24, 2007, 05:30:51 AM
Myss, I just now saw this post, I'm so sorry you're having to go through this (AGAIN!!). I hope replacing your cath fixes the problem and the third time is the charm, as Nina said. Sending good thoughts your way for your surgery tomnorrow.

Fluffy, so is that the end of PD for you? I'm so sorry if it is. I dread the thought of possibly having to go to hemo someday. Hope you're feeling better after your surgery, though!
Title: Re: 3rd tube replacement in one year.
Post by: Aldente on October 24, 2007, 08:38:32 AM
Best wishes for your catheter replacement procedure.
Title: Re: 3rd tube replacement in one year.
Post by: fluffy on October 24, 2007, 08:57:47 AM
im in a bunch of pain, but its not so bad, i feel better having the whole thing over andf done with, and yeah looks like no more pd for me. and im not too fond of hemo, but im getting used to it :)
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 24, 2007, 09:06:04 AM
oh man, Fluff. Did you discuss that situation elsewhere? As to why you had to switch? Can I ask why?
Title: Re: 3rd tube replacement in one year.
Post by: goofynina on October 24, 2007, 05:00:01 PM
My neph laughs at my motto, i tell her i will go homo before i go back to hemo, lol, but i know i will eventually have to go back,  :thumbdown;
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 24, 2007, 05:51:12 PM
t.tI tell ya, Nina. two weeks this past January was enough to convince me how lucky i was to be on PD. And now another two weeks of it Oh well.  I"m trying to get myself to sleep so  I can get myself up tomorrow morning. Not working so far. I DO get to go to my fiancee's though! My nurse called and said she got me an EARLY time for my first hemo this Friday, which means my fiancee can pick me up after he gets off work in Indy!! Yay!!!
Title: Re: 3rd tube replacement in one year.
Post by: paddbear0000 on October 25, 2007, 08:52:55 AM
My neph laughs at my motto, i tell her i will go homo before i go back to hemo, lol, but i know i will eventually have to go back,  :thumbdown;


:rofl; I love it!
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 25, 2007, 11:29:46 AM
Update. I am typing this lying down in bed. Surprisingly enough, I am not in too much pain. Discomfort, yes. pain, not really. Of course, I am on percocet right now. My surgeon ended up making a new exit site for this tube, then put in a catheter for hemo, of course. THAT's what hurts, the most. It's in my throat, bugs the heck outta me!! I've drinking a jamocha milkshake, with no guilt, I may add!!
Title: Re: 3rd tube replacement in one year.
Post by: angela515 on October 25, 2007, 03:25:17 PM
Awww.. well I am glad your not in too much pain, and your doing ok.  :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: goofynina on October 25, 2007, 03:28:52 PM
Good for you, i am glad you are enjoying your Jamocha Shake girlfriend, (sounds good right about now) ;)  The pain will ease up with time, take care and keep it elevated.   I am sending good thoughts and prayers your way  :2thumbsup;
Title: Re: 3rd tube replacement in one year.
Post by: KT0930 on October 26, 2007, 10:20:54 AM
Anne, I'm glad the surgery went well and you're not in too much pain. I know what you mean about the hemo permcath, though. I HATE those things (I know, join the club). Anyway, glad to hear you allowed yourself a treat after a rough day. Take care of yourself and keep us posted on your progress.
Title: Re: 3rd tube replacement in one year.
Post by: paddbear0000 on October 26, 2007, 11:33:05 AM
 :cuddle; :cuddle; :cuddle;
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 27, 2007, 07:06:51 AM
Well, we tried the permatcath. It would NOT work. So. I had to go to the hospital again and have another one put in, this time, under local anesthesia. OW. That hurts. Man, as of now, I'm not in pain as much as it's discomfort and a lot of spaciness too. I can't type worth a darn right now. I'm with my fiancee, then he will take me to a friend's house tomorrow so she can take care of me. I did get washed up, got that gunk off me.
Title: Re: 3rd tube replacement in one year.
Post by: kidney4traci on October 27, 2007, 07:21:10 AM
This is one time I say - take the drugs!!   :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on October 27, 2007, 07:24:17 AM
so far I'm okay on tylenol!!! I do have the percocet, but thought I'd save that for traveling, especially tomorrow when Ran takes me back to Muncie. My friends ganged up on me, and have arranged me life for the next week or so. I am not allowed to be alone in my house with my kittahs. Which is just as well, really. Eating doesn't sound good. Drinking does, though. I had some chicken noodle soup, which goes down well.
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on November 08, 2007, 10:38:14 AM
AAARRRRGH!!! I was to have seen the surgeon to be cleared so I could use my pd catheter AND go back to work. Nope. He has  emergency surgery and cannot see me til the 15th. I have to continue with hemodialysis AND am NOT allowed to go back to work without that slip. I HATE this. I HATE it.  I HATE hemodialysis. I feel horrible, I feel sick, this stupid catheter is so uncomfortable and I cannot get comfortable lying down OR sitting up.  I can't eat, I don't want to, I want my life back!!!!

Okay. My temper tantrum is over.  :rant;
Title: Re: 3rd tube replacement in one year.
Post by: paddbear0000 on November 08, 2007, 10:52:29 AM
I'm sorry! I know how you feel. I had to reschedule my appointment with my nephro the other day and now they can't see me until mid January! I hope things improve for you soon.  :cuddle;
Title: Re: 3rd tube replacement in one year.
Post by: okarol on November 08, 2007, 11:03:42 AM
AAARRRRGH!!! I was to have seen the surgeon to be cleared so I could use my pd catheter AND go back to work. Nope. He has  emergency surgery and cannot see me til the 15th. I have to continue with hemodialysis AND am NOT allowed to go back to work without that slip. I HATE this. I HATE it.  I HATE hemodialysis. I feel horrible, I feel sick, this stupid catheter is so uncomfortable and I cannot get comfortable lying down OR sitting up.  I can't eat, I don't want to, I want my life back!!!!

Okay. My temper tantrum is over.  :rant;

Take care MyssAnne  :cuddle;
Title: Re: 3rd tube replacement in one year.
Post by: goofynina on November 08, 2007, 03:56:20 PM
Thinking of you MyssAnne, i hope once you get to using your catheter and are no longer on Hemo that things will get better for you... :2thumbsup;
Title: Re: 3rd tube replacement in one year.
Post by: angela515 on November 08, 2007, 04:18:05 PM
 :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on November 09, 2007, 11:28:49 PM
It's Saturday morning and I haven't gone to sleep yet. I'm so wired and so sore at the same time. I DO get to go back to work,yay! However, I have to continue hemodialysis for another week til my surgeon sees me next week. Bummer.

I had a horrible time tonight. I cramped extensively for over an hour, from my feet to my knees, then my tube started hurting (weird, I know), then my hands. Man, that was miserable.  I've cramped before, but NEVER like this. I was crying, and hyperventilating, it hurt so much.

Now I can't sleep. I'm tired, but I just can't go to sleep. I hate this.

Title: Re: 3rd tube replacement in one year.
Post by: Joe Paul on November 10, 2007, 03:49:59 AM
Sorry to hear you are having so much pain & trouble. I hope you can get some rest  :grouphug;
Title: Re: 3rd tube replacement in one year.
Post by: goofynina on November 10, 2007, 03:09:30 PM
It's Saturday morning and I haven't gone to sleep yet. I'm so wired and so sore at the same time. I DO get to go back to work,yay! However, I have to continue hemodialysis for another week til my surgeon sees me next week. Bummer.

I had a horrible time tonight. I cramped extensively for over an hour, from my feet to my knees, then my tube started hurting (weird, I know), then my hands. Man, that was miserable.  I've cramped before, but NEVER like this. I was crying, and hyperventilating, it hurt so much.

Now I can't sleep. I'm tired, but I just can't go to sleep. I hate this.



MyssAnne, i have been keeping a bottle of Gatorade by my bed (for them damn cramps that only seem to come when i am in the deepest sleep)  >:(   But if and when i get them i just take a big swig of Gatorade, give it a minute and it goes away, just a suggestion, hope it helps  :thumbup;
Title: Re: 3rd tube replacement in one year.
Post by: MyssAnne on November 10, 2007, 09:38:43 PM
Nina, only problem....I was at clinic, darn it. I have gatorade by my bed too, swear by it!!! I'm thinking of taking a bottle with me to hemo next week though. man, that hurt. worse than I've ever had it before.
Title: Re: 3rd tube replacement in one year.
Post by: Amanda From OZ on November 11, 2007, 04:39:44 AM
Sorry to hear abour your troubles.. Hope things improve.  :cuddle;

Amanda
xxoo
Title: Re: 3rd tube replacement in one year.
Post by: thegrammalady on November 11, 2007, 04:51:07 AM
just found this thread. have know idea how i miss things, but i do.

hopefully by now things are going a bit better for you. sorry to hear you've had so much trouble.