I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Romona on October 02, 2007, 08:37:24 PM

Title: Pain in Side.
Post by: Romona on October 02, 2007, 08:37:24 PM
I had my transplant June of 2006. I still get pain in my right side where my transplant is. I have never had any kind of surgery before. I was wondering if it takes a really long time for the muscles and things to heal. I have been checked out by my doctors for this. They say that the new kidney is fine and don't seem to be worried about this. Anyone else still have pain this long after transplant?
Title: Re: Pain in Side.
Post by: glitter on October 02, 2007, 09:06:32 PM
my husband had multiple  operations in 06- and he still has alot of pain...they explained that scar tissue can take as long as three years to settle down, it still pulls when he moves, and his belly where he had the nephrectomy tingles pretty bad. and the pain is not trivial either.
Title: Re: Pain in Side.
Post by: angela515 on October 02, 2007, 09:37:54 PM
glitter eplained it well.... hopefully your not in pain much longer  :cuddle;

I don't have pain with either of my transplant areas, or c-sections... however after my first transplant, I did have pain during sex, like it felt as if my kidney was being hit  :lol;

I haven't had sex since 2005, sooo... idunno how it will be after this transplant.
Title: Re: Pain in Side.
Post by: okarol on October 02, 2007, 11:13:43 PM
I have heard of scar tissue causing discomfort for some patients after surgery. My husband had 3 back surgeries and a hip replacement and all his scars are painful.
Sometimes abdominal surgery can cause a small hernia and it can hurt even if it is very small. By far most hernias develop in the abdomen, when a weakness in the abdominal wall evolves into a localized hole, or "defect", through which adipose tissue, or abdominal organs covered with peritoneum, may protrude. Hernias may present either with pain at the site, a visible or palpable lump, or in some cases by more vague symptoms resulting from pressure on an organ which has become "stuck" in the hernia, sometimes leading to organ dysfunction. Fatty tissue usually enters a hernia first, but it may be followed by or accompanied by an organ. It is generally advisable to repair hernias in a timely fashion, in order to prevent complications. Most abdominal hernias can be surgically repaired, and recovery rarely requires long-term changes in lifestyle. Uncomplicated hernias are principally repaired by pushing back, or "reducing", the herniated tissue, and then mending the weakness in muscle tissue.
Title: Re: Pain in Side.
Post by: Romona on October 03, 2007, 04:02:19 AM
Glad to hear that this maybe normal. I see my nephrologist on the 13th, I'm going to mention it again.  :thx;
Title: Re: Pain in Side.
Post by: keefer51 on October 05, 2007, 02:26:25 AM
Romona, When i had my transplant there was a certain amount of pain for around a year. Then my thigh started to become numb and the doc. said it would go away. Well that took several years to go away. I always had a certain amount of discomfort with the new kidney. When i slept it was the worse i had to sleep with my left hip up cause it took awhile to get used to sleeping on it. The whole area was and still is sensitive to touch. Now that the kidney is no longer functioning i get sharp pains there every so often.
Title: Re: Pain in Side.
Post by: Romona on October 05, 2007, 03:56:44 AM
Thanks Keefer!
Title: Re: Pain in Side.
Post by: Romona on October 29, 2007, 03:32:51 PM
I got a call from my nephrologist Friday that he had results from my ultra sound I had Tuesday. I have fluid collecting around one of my kidneys (I had gotten 2 kidneys from a small child). I am going for tests tomorrow. I'm a little nervous.
Title: Re: Pain in Side.
Post by: goofynina on October 29, 2007, 04:18:36 PM
Did you ask them what the procedure is for this?  I just hope they fix the problem and you are painfree again soon, please keep us posted  :cuddle;
Title: Re: Pain in Side.
Post by: paris on October 29, 2007, 05:07:35 PM
Lots of hugs, Romona. I will be thinking of you tomorrow.  Post when you can so we know how you are :cuddle;
Title: Re: Pain in Side.
Post by: Romona on October 29, 2007, 07:14:17 PM
The irony of all this, is the pain is not as bad as it was. I would get mostly on the weekends when I was doing some major house work. I didn't have any at all this weekend. I'll post as soon as I get back. I have tests at 7:45, transplant clinic at 9:30 and sleep clinic at 4:00. It will be a very long day! Thanks for all of the moral support.  :)
Title: Re: Pain in Side.
Post by: tamara on October 29, 2007, 09:09:06 PM
Good Luck Romona  :grouphug;
Title: Re: Pain in Side.
Post by: kelliOR on October 30, 2007, 09:06:59 AM
Thinking of you, Romona.   Hope all is well....kelli
Title: Re: Pain in Side.
Post by: livecam on October 30, 2007, 09:30:19 AM
I had my transplant June of 2006. I still get pain in my right side where my transplant is. I have never had any kind of surgery before. I was wondering if it takes a really long time for the muscles and things to heal. I have been checked out by my doctors for this. They say that the new kidney is fine and don't seem to be worried about this. Anyone else still have pain this long after transplant?

I had some slight intermittant pain in the area of the transplant for around two years after the surgery.  I mentioned this to my neph who said it was likely surgical adhesions causing it and that it should go away over time.  I would feel it most often while walking or while lying on my right side.  The good news is that it did go away over time and there is nothing there in terms of pain or any unusual sensations now.  If you are feeling something it is most likely not a sign of anything being wrong with the kidney.  If it changes or gets worse I would talk to your docs about it.
Title: Re: Pain in Side.
Post by: Romona on October 30, 2007, 06:13:07 PM
I had a voiding cytogram done today. That was fine. No reflux or anything like that. I saw the surgeon that did my transplant. He said there is an obstruction in one of the kidneys. He wants to try to put a stent in. If that doesn't work, I will lose the kidney. I'll keep you all posted.
Title: Re: Pain in Side.
Post by: angela515 on October 30, 2007, 07:02:24 PM
I hope it gets fixed with the stent!!!!! Thinking about you hunni!!  :grouphug;
Title: Re: Pain in Side.
Post by: Romona on October 31, 2007, 02:39:54 PM
My coordinator called me today. The obstruction wasn't there when I had an x-ray in September. This is something that just happened with in the last few weeks. She said it sometimes happens with small kidneys. They are going to try to do the stent Nov 14th.
Title: Re: Pain in Side.
Post by: 2_DallasCowboys on October 31, 2007, 03:34:20 PM
Sending prayers your way, that all will be OK


Anne
Title: Re: Pain in Side.
Post by: Romona on October 31, 2007, 06:08:46 PM
Thank you all for the well wishes. It means so much to me.  :thx;
Title: Re: Pain in Side.
Post by: Roxy on October 31, 2007, 06:43:22 PM
Romona I hope everything goes well.  :grouphug;
Title: Re: Pain in Side.
Post by: Chris on October 31, 2007, 06:50:32 PM
Just read this. Sorry to hear about your pain. I hope that the insertion of the stent will do the trick and releve you of pain and not the loss of the kidney.
Title: Re: Pain in Side.
Post by: Romona on November 13, 2007, 08:39:37 PM
Thank you all for the well wishes. My sister is picking me up at 4:15 a.m. I am to going to have a nephrostogram and nephrostomy. I am going to the short stay unit. I'll let you know what happens. I am nervous and wish I was done already. I'll update all of you when I get back.  :)
Title: Re: Pain in Side.
Post by: MyssAnne on November 13, 2007, 08:46:29 PM
Good luck Romona. We'll be thinking of you tomorrow morning.  :grouphug;
Title: Re: Pain in Side.
Post by: angela515 on November 14, 2007, 06:38:48 AM
Good luck hun  :grouphug;
Title: Re: Pain in Side.
Post by: paddbear0000 on November 14, 2007, 02:16:14 PM
Best wishes!  :cuddle;
Title: Re: Pain in Side.
Post by: Romona on November 14, 2007, 02:30:09 PM
I had the nephrostogram done. I can not believe this, but the obstruction is gone. The kidney is swollen a little bit and there is still some fluid around it. I didn't have to have the nephrostomy. The Interventional Radiology department is going to talk to transplant clinic. I'll call tomorrow and see what is going on. Thank all of you for your prayers. I believe your prayers helped with this miracle.  :angel; :angel; :angel;
Love you all.  :bandance; :bandance;
Title: Re: Pain in Side.
Post by: paddbear0000 on November 14, 2007, 02:35:47 PM
 :yahoo; Yeah!  :bandance; :bandance; :bandance;
Title: Re: Pain in Side.
Post by: goofynina on November 14, 2007, 03:42:24 PM
Oh what a relief  :2thumbsup;  So glad to hear the good news girlfriend and yes, never underestimate the power of prayer ;)  :clap;
Title: Re: Pain in Side.
Post by: MyssAnne on November 15, 2007, 03:07:22 PM
YAY!! :yahoo; That is wonderful news!!!!! :clap;
Title: Re: Pain in Side.
Post by: Romona on November 15, 2007, 04:06:51 PM
I talked to my coordinator today. They still have to figure out what the fluid is from. I should find out early next week what the next step is. In the mean time I am scheduled to see my gynecologist to rule out a problem there that maybe causing pain. I see him on Black Friday. I don't think that is where the pain is coming from. I had an ablation done in June. I had all sorts of tests before I had that done.
Title: Re: Pain in Side.
Post by: Black on November 15, 2007, 04:23:19 PM
Hope the news continues to be good news.  :2thumbsup;
Title: Re: Pain in Side.
Post by: okarol on November 15, 2007, 06:18:48 PM
 :cuddle; Glad you are getting some answers!
Title: Re: Pain in Side.
Post by: Romona on November 23, 2007, 06:19:38 PM
I thought it was time for an update. I don't need the stent. The smaller of the two kidneys is draining slow. But there is no blockage. So they are thinking the pain is not kidney related. I saw the OB/GYN today. My exam was fine. He wants some more ultra sounds, he doubts he will find the cause of my pain. This is such a mystery.
Title: Re: Pain in Side.
Post by: Romona on November 30, 2007, 06:14:29 PM
I am baking cupcakes right now for a bake sale tomorrow. Anyway, the pain is back, it comes and goes. I am thinking I missed home ec the day they said to prevent injury stretch before baking.  ;)

I hope they figure this out soon.
Title: Re: Pain in Side.
Post by: Aldente on November 30, 2007, 07:08:03 PM
Would you be willing to swap cupcakes for a backrub?  ;)  I love cupcakes.
Title: Re: Pain in Side.
Post by: Bajanne on November 30, 2007, 08:26:38 PM
That has been some good news.  Hope the news continues to be good.  Our caring thoughts and prayers are always with you.
Title: Re: Pain in Side.
Post by: Romona on November 30, 2007, 09:26:25 PM
Would you be willing to swap cupcakes for a backrub? ;) I love cupcakes.

Sure. Got milk??  :rofl;
Title: Re: Pain in Side.
Post by: Romona on August 17, 2009, 07:49:33 PM
 :bump;Kelly I bumped this for you.