I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: RichardMEL on June 17, 2007, 08:55:50 PM

Title: I got extra time on the list...
Post by: RichardMEL on June 17, 2007, 08:55:50 PM
This is so minor but I thought I'd post my "news" as little as it is.

I think I explained in the other thread that here THE LIST is sorted after a match is made on the "time on dialysis" on the list, as opposed to the time you were first added to the list.

Well I was reminded yesterday that I had done this trial for my doctor where they started me LATER on dialysis to see about the effect on quality of life, health etc.. so I didn't start until my GRF was around 6% vs. the usual 10% or so you usually start at.

So I asked about this in terms of my "time on dialysis" date on the list given that I would have started much earlier if it wasn't for the trial. They came back and said that YES I get some credit (!) for the trial and they pushed my "dialysis start date" back to 1/2006 (from 4/2006 which was itself an error since I actually started 7/2006). So basically I got a 6 month credit for my trial which was kind of nice.

I don't expect it will make much difference in terms of when I might get a kidney, but every little bit helps hey?
Title: Re: I got extra time on the list...
Post by: Sluff on June 17, 2007, 09:01:27 PM
Well I hope it does make a difference and that you are surprised.  :grouphug;
Title: Re: I got extra time on the list...
Post by: tamara on June 17, 2007, 10:30:57 PM
Good Luck Richard, any extra tme bumps you up the list.

Title: Re: I got extra time on the list...
Post by: Wattle on June 20, 2007, 05:09:13 AM



 :cuddle;  Nice to hear you got some good news for a change Richard. I wish you luck. Waiting...waiting...waiting...   
Title: Re: I got extra time on the list...
Post by: Sara on June 20, 2007, 06:31:17 AM
You're right, every little bit helps.   :thumbup;