I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: cassandra on November 19, 2020, 06:48:09 AM
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Hi all I hope you find yourselves as well as can be. I just hope someone can help me.
As I suffer now pretty badly from D related Amyloidosis, my neph wants me on a different machine. Either Gambro 98 or Quanta. I understand the Gambro needs an RO machine, does anyone know if a Quanta sc does too?
Does a lot needs to change in the house concerning water supplies etc in comparison with the Nxstage?
Thanx already,
love, Cas
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Will you be getting a Lixelle column with your new setup?
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Hi Simon, I seriously don’t know. Still waiting for any info. But thanx for asking
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Hi Simon, I seriously don’t know. Still waiting for any info. But thanx for asking
Lixelle would seem to be the main reason for switching from NxStage to a machine that uses conventional filters. It's worth asking your doc and would answer the obvious question "why?".
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Anyone using the Tablo? I'm considering it right now-- after 3 horrible turns with the NxStage (and another 3 horrible turns of PD, too) over a 17-year period.
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Anyone using the Tablo? I'm considering it right now-- after 3 horrible turns with the NxStage (and another 3 horrible turns of PD, too) over a 17-year period.
Do you have to change clinics, or does yours offer both NxStage and Tablo?
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Dear Cassandra, I feel very sorry for your suffering from a rare D-related Amyloidosis and I am very shocked about it and do hope very much that your doctors can treat you as well as is possible with the appropriate medical treatment and medication for it? I wish you all the best, lots of luck, keep my fingers crossed for you and keep you in my thoughts...
As for my (nearly) four years of dialysis-treatments, I had a chest-inserted tesio-line, which one of the nurses connected 3 x every week to one of the BRAUN dialysis machines and the whole connecting-process appeared very simple and reassuring, since the nurse concentrated very much "on the job" (no talking during connecting or disconnecting) and all the nurses I met were extremely careful every time ... and since I was also very careful and took the greatest of care to make sure that no water-drop could ever come near my tesio-line, I feel very lucky that these precautions kept me without infection "around there" throughout my dialysis-years. I do hope that the best medical way forward is found for you a.s.a.p. and please take great care and I send you my best wishes from Kristina. :grouphug;
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Anyone using the Tablo? I'm considering it right now-- after 3 horrible turns with the NxStage (and another 3 horrible turns of PD, too) over a 17-year period.
Sorry, I can’t help you there Treasure
Dear Cassandra, I feel very sorry for your suffering from a rare D-related Amyloidosis and I am very shocked about it and do hope very much that your doctors can treat you as well as is possible with the appropriate medical treatment and medication for it? I wish you all the best, lots of luck, keep my fingers crossed for you and keep you in my thoughts...
As for my (nearly) four years of dialysis-treatments, I had a chest-inserted tesio-line, which one of the nurses connected 3 x every week to one of the BRAUN dialysis machines and the whole connecting-process appeared very simple and reassuring, since the nurse concentrated very much "on the job" (no talking during connecting or disconnecting) and all the nurses I met were extremely careful every time ... and since I was also very careful and took the greatest of care to make sure that no water-drop could ever come near my tesio-line, I feel very lucky that these precautions kept me without infection "around there" throughout my dialysis-years. I do hope that the best medical way forward is found for you a.s.a.p. and please take great care and I send you my best wishes from Kristina. :grouphug;
Hi Kristina, the Amyloidosis is, so far, much better under controle, thanx
Love to all, Cas
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Dear Cassandra,
Many thanks for the information and hopefully the Amyloidosis continues to be kept under control - with the help of good medicines and the medical care of your doctors - and I do send you my kindest thoughts from Kristina. :grouphug;