I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Larry Robinson on May 14, 2020, 11:30:24 AM

Title: Introducing myself
Post by: Larry Robinson on May 14, 2020, 11:30:24 AM

I'm Larry, a 62 year old who's been on nocturnal PD (AMIA cycler) for about 2½ years. I'm doing 4 3-liter cycles of yellows (1.5%) per night. It's going OK, except for alarms more often than not. I've been on the waitlist for a transplant for about 4 years now, but I'm not getting my hopes up.

Cheers,
Larry

Title: Re: Introducing myself
Post by: cassandra on May 15, 2020, 04:47:11 PM

Welcome to the site Larry


   :welcomesign;




Keep taking care, Cas

Title: Re: Introducing myself
Post by: PrimeTimer on May 19, 2020, 11:20:37 PM

 :welcomesign; Welcome to the site, Larry!  :clap;  I applaud you for doing your dialysis at home. Keep it up!

Title: Re: Introducing myself
Post by: Hereware on September 25, 2020, 01:38:22 AM

Hi there Larry. How have you been?

Title: Re: Introducing myself
Post by: kristina on September 25, 2020, 04:01:14 AM

Hello Larry,

Welcome and good luck for your progress on the waiting-list. It should not take too long anymore since you have already been waiting for 4 years, but there again, it depends on your medical history and where you are. Are you in America, Canada or here in England?

Best wishes from Kristina. :grouphug;

Title: Re: Introducing myself
Post by: iolaire on September 25, 2020, 06:28:41 AM

Welcome to the group.  You probably already found the wealth of experiences we all share?

Title: Re: Introducing myself
Post by: frugallyzing on November 24, 2020, 12:59:03 PM

Hey Larry! Welcome to the group. I hope you are well. I wish you the best, and I'll see you around!

Title: Re: Introducing myself
Post by: Blodwyn on January 02, 2021, 02:07:41 PM

75 years of age; routine physical found excess protein in urine at approx. age 55; kidney biopsy at approx. age 60 diagnosed nephrotic neuropathy; admitted to transplant waiting list
November 2017 when GFR down to 15; GFR has been hovering at 9 and 10 for past 6 months; had fistula established 6months ago; matured very slowly but just now deemed useable; am about to start in clinic hemo.
Don't know much about being on dialysis other than that there are in clinic hemo,  home hemo and home peritoneal.
Just read that peritoneal apparently involves ingesting limited amounts of fluids. Hoping to learn more about that and whether that also applies to hemo.

Title: Re: Introducing myself
Post by: MooseMom on January 02, 2021, 02:57:57 PM

Quote from: Blodwyn on January 02, 2021, 02:07:41 PM

75 years of age; routine physical found excess protein in urine at approx. age 55; kidney biopsy at approx. age 60 diagnosed nephrotic neuropathy; admitted to transplant waiting list
November 2017 when GFR down to 15; GFR has been hovering at 9 and 10 for past 6 months; had fistula established 6months ago; matured very slowly but just now deemed useable; am about to start in clinic hemo.
Don't know much about being on dialysis other than that there are in clinic hemo,  home hemo and home peritoneal.
Just read that peritoneal apparently involves ingesting limited amounts of fluids. Hoping to learn more about that and whether that also applies to hemo.

Hello, Blodwyn.  Quite a few of us here have experienced lengthy and gradual declines in kidney function, so your story is not at all unusual.

Kidney School is one of the best, if not THE best, resources for education about kidneys and treatments for renal failure. 

https://kidneyschool.org/

Just click on "Learning Modules", and you will have really good information on hand!

Title: Re: Introducing myself
Post by: Simon Dog on January 03, 2021, 03:07:59 PM

Peritoneal involves pouring in large quantities of fluid into your peritoneum (hence the term) via a surgically planted cather and draining the fluid after it dwells for a while.  You are still on a fluid restricted diet, though less than hemo, and in particular, less than in-center hemo (if you compare to home protocols more than 3x/wk).