I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: lotuspetal on September 19, 2019, 10:20:33 AM
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Hi all, I've been a bit of a lurker because I haven't had a lot of questions that I couldn't find answers to here. Now, I am 2 yr 9 months post transplant and have a question. I find that exercise always makes me feel better, and I am part of a local cycling club. I ride maybe 50-80 mile a week, which isn't that much if one rides regularly. For about the past 6 months I have also had some kind of illness. It generally starts with stuffiness below my eye area (no runny nose) a feeling of irritation in my throat, a low grade fever/chills and fatigue and some gut issues. I can tell when I'm getting it because i am very cranky for no apparent reason when it is starting. I had some immune issues and was hospitalized the first year due to an overly suppressed immune system. I have had blood tests whenever this happens, and the neph says that everything is good and my numbers are normal for someone who is immunosuppressed. No BK, active CMV, EBV --once I was even tested for parvo! This is now happening almost every week, and I'm not even riding all that hard.
Has anyone experienced this? Could it have something to do with exercise? I've read that the idea that exercise suppresses the immune system has been debunked
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Maybe you’ve developed an allergy?
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Maybe you’ve developed an allergy?
Good suggestion Cassandra.
Pre dialysis I was getting yearly colds in the fall and spring that would not go away. Finally I went to a minute clinic at CVS and they said they say allergy stripes in my mouth. Since then I've been on the once per day generic Claritin offered by Costco under the name AllerClear - https://www.costco.com/Kirkland-Signature-AllerClear%2c-365-Tablets.product.11602332.html - its about $11 for a years supply, three dollars off right now. Sometime later I told my primary care doctor and she ran blood tests that claim I have no common allergies but I know its stopped those annual colds that don't go away. I'm happy to be free of the congestion...
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Hi friends, thanks so much for the comments. I don't think I have an allergy exactly, although I think histamine is involved. If you google "flu like symptoms after exercise" there are a lot of people who report flu like symptoms after exercise, and not particularly strenuous exercise. I have had histamine related issues in the past, before the transplant, and I think that is what is going on. I have trouble with high histamine food and drink and now am being very careful to avoid those. It got worse after my doctor increased my tacrolimus by 50%. It was to the point that I was getting it evert 3 to 4 days, for several days. I have been taking antihistamines, vitamin C, lysine and a couple of other things, and maintaining a strong mental attitude and though I have still been getting the fatigue, nasal congestion, digestion issues and fatigue, it seems to be better with this regime. This week it only lasted a day. I saw an infectious disease doctor, but, really, these kinds of things kind of fall between the cracks for most western trained doctors, and seeing a naturopath involves a lot of time and money, unfortunately, as nothing really shows up in blood work or other tests.
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I haven't had a transplant and not on dialysis but I do have Asthma and Pulmonary Sarcoidosis and any physical activity, including exercise definitely affects my sinuses. It all goes hand-in-hand, acting as if I've got a bad cold or having an attack from allergies. And it doesn't matter if I'm indoors or out. I'm on Prednisone but if I have to, I use an anti-histamine or my Asthma inhaler. A hot wet cloth over my face will also help. Some people wear masks when they go out and I certainly understand that. For me, windy days can be the worst.
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Hi all, I've been a bit of a lurker because I haven't had a lot of questions that I couldn't find answers to here. Now, I am 2 yr 9 months post transplant and have a question. I find that exercise always makes me feel better, and I am part of a local cycling club. I ride maybe 50-80 mile a week, which isn't that much if one rides regularly. For about the past 6 months I have also had some kind of illness. It generally starts with stuffiness below my eye area (no runny nose) a feeling of irritation in my throat, a low grade fever/chills and fatigue and some gut issues. I can tell when I'm getting it because i am very cranky for no apparent reason when it is starting. I had some immune issues and was hospitalized the first year due to an overly suppressed immune system. I have had blood tests whenever this happens, and the neph says that everything is good and my numbers are normal for someone who is immunosuppressed. No BK, active CMV, EBV --once I was even tested for parvo! This is now happening almost every week, and I'm not even riding all that hard.
Has anyone experienced this? Could it have something to do with exercise? I've read that the idea that exercise suppresses the immune system has been debunked
Hello lotuspetal (what a lovely name!),
I have not experienced any of the symptoms you describe and since your blood tests appear to be alright, I wonder :
Where exactly are you cycling? Does it happen to be near an industrialist site, where the air you breath in is not exactly as clean as it should be? Are you near a hillside where cycling becomes sometimes a bit difficult and you are "working and breathing hard" whilst cycling?
Do you have any air-conditioning at home and has anything changed there within in the past few months?
Those are my thoughts and I do wish you all the best from Kristina. :grouphug;