I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: louman1961 on July 21, 2019, 02:33:57 AM

Title: Just joined IHD Message Board
Post by: louman1961 on July 21, 2019, 02:33:57 AM

Hi,
I was diagnosed with PKD in 2010, I found out by a catscan that showed bubbles on my kidneys on the diagnostic imaging scan.
I'm currently doing PD at home about a year and a half.
It was quite a life changing event and getting used to this new daily night dialysis routine.
I have my ups and downs, emotionally and physically and getting used to chronic pain on some nights.
I found this message board while searching on Google, for support for people who are on dialysis.
I'm looking forward to hear from members of this message board for support and some advice how to cope with dialysis and it's challenges and how to stay positive when dealing with kidney disease.   

Title: Re: Just joined IHD Message Board
Post by: cassandra on July 22, 2019, 04:24:07 AM

Welcome to the site louman1961


   :welcomesign;


Take care, Cas

Title: Re: Just joined IHD Message Board
Post by: kickingandscreaming on July 22, 2019, 04:43:51 AM

 :welcomesign; Sorry you have to be here.

Title: Re: Just joined IHD Message Board
Post by: Charlie B53 on July 22, 2019, 05:05:20 AM

Welcome to IHD!

Chronic Drain Pain can go a couple of different ways, either getting better in time, or continue.  I was on PD for my first 3 1/2 years and I soo learned I would wake up with drain pain while flat on my back. Turning on to my left side and it was much much better.  However in my sleep I would again roll onto my back and within a couple of cycles the drain would again wake me up and I would again have to turn onto my left side.  So for me, body position did make a huge difference.

I have other chronic pain from permanent injuries and my VA Pain Specialist has me taking Methadone.  Not being a Heroin addict I was shocked when he suggested Methadone but I soon learned it was originally invented as a pain med.  And it works wonderfully, NO Constipation which is a serious problem on PD when using any of the opiate based pain meds.

So if body position doesn't help you much then have a serious talk with your Dr's.

Take Care,

Charlie B53













Sp mod Cas

Title: Re: Just joined IHD Message Board
Post by: fightingPKD on July 26, 2019, 12:02:58 PM

Hey OP, PKD guy here as well.  Diagnosed when I lost a kidney to it in 2004.   Last one is slowly dwindling away now. Just went to register at my local transplant hospital this week.

Hang in there man, it is all pretty terrible.  Keep fighting.

Title: Re: Just joined IHD Message Board
Post by: louman1961 on August 03, 2019, 04:01:47 AM

I would like to thank everyone for welcoming me to this message board site. :)