I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: frankieb on April 30, 2007, 12:14:22 PM
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Hello all, been reading some posts and thought it was time to introduce myself. I was diagnosed w/ ESRD back in '82. Did hemo from 83-91 and transplanted since. Kidney function right now is 23%, Dr. recommended me for a tx eval. I have many questions concerning a second transplant that some member/s could address, I hope I could also help as I had a transplant for 16 years and had many bumps along the way. Prednisone is NOT my favorite drug. Peace, FrankieB
:beer1;
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Hello and :welcomesign;
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:welcomesign; Frankie,
This is a good forum to belong to. My son is 21 and going through dialysis right now. Been through the transplant evaluation now waiting on a kidney.
Nice to meet you.
Lori Dustin's mom
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:welcomesign;
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:waving; Hey Frankie,
I am sure there's lots we can learn from you, sounds like you have been through everything! I hope all goes well for you in the future.
Best wishes and welcome!
Karol
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Hi Frankie and :welcomesign;
Great to see you here !
Hope to see you around the forum or maybe even in the chatroom.
Have fun!
Tamara xxx ooo :cuddle;
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Welcome frankieb, good to have you aboard.
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Hey Frankie, Welcome to ihatedialysis.com. So glad you found us, hopefully you can find the answers your looking for here. Sorry to hear your transplant is failing but i must say, 16 years with it sure must've been a blessing, even with all those bumps along the way ;) I do hope you look into having a second one done and you do not have to go on dialysis. Please keep us posted. Looking forward to hearing more from you...
Goofynina/Admin.
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:welcomesign;
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:welcomesign; FrankieB, to the community. Glad you joined us as I am sure you can be of assistance and support because of all you have been through. Hope to hear more from you soon.
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Welocme to the site. We are full of information here. It sounds like you will be a superb addition. It will take you awhile to read everything. Take your time.
kitkatz,moderator
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Welcome to our community! Your name made me give a double take. My family (Barker) is full of Franks. My dad was Frank, my brother is Frank and assorted nephews are Frank. So we have lots of FrankieB's!
You have to come to the right place to receive answers. And even if you don't get specific answers, at least you know you will have lots of support, and a group of people who know EXACTLY what you are going through. Keep posting, and let us know how you are doing.
Bajanne, Moderator
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Hi Frankieb Welcome!! My sister is on Dialysis but I have had a Kidney transplant for 10 years now! What bumbs along the way have you had? I have no choice but to stay on oredinsone went off it and had an episode of rejection!
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:welcomesign;
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Thank you all for the warm welcome. I look foward contributing to this IHD community. :grouphug;
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:welcomesign;
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:welcomesign;
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Hi Frankie. Sounds like you had a good run with the transplant. I hope and pray you can hang on to the 20%.
Things are a LOT different than they were 15 years ago. Dialysis is different too. You were probably on the OLD Drake Willock machines that were LOUD. Well, these are quiet and with the hi-flux dialyzers things are a "little" bit faster.
I don't think it is as easy to get a transplant the second time especially since you had yours for so long. There is a catch 22 with having a transplant for such a long time. The good part is you had it for 16+ years. The bad news is it has screwed up your antigins so you are going to be hard to match. Other news is they can do things to help with this as you will read on this forum.
Welcome and I'm looking forward to your posts.
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Welcome to the IHD Family, FrankieB! :welcomesign;
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Welcome Frankie to IHD.
Thank you for introducing yourself, it is the best way for us to get to know you better. Whatever your reason for joining our family here at IHD, I hope you find everything you need, but most importantly I want you to feel comfortable to ask questions and come back and post often.
Here are some links to help you out.
Site rules: http://ihatedialysis.com/forum/index.php?topic=540.0
Chat: http://ihatedialysis.com/forum/chat/flashchat.php
The best search engine for kidney related issues: http://www.kidneyoogle.com
Relationship advice: http://www.renalromance.com
Sluff, Administrator
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Hi Everyone
My name is Donna and I am Frankie's sister. I am going to be tested next week to be a potential donor. I have thought about this for many years and I am 100% sure I want to donate my kidney to my brother if it is a match. Is there anything anyone can tell me about the screening process? I understand there is a psych evaluation too. I would love to hear any stories, advise or suggestions. thanks! :)
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Donna you deserve your own membership, and thread. Go ahead and join under your own member name.
Sluff/ Administrator
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Welcome to our site. I hope you are successful in your quest to GIVE a kidney to someone you love. There is a lot of discussion around transplants on the site. Read everything.
kitkatz,moderator
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Donna you deserve your own membership, and thread. Go ahead and join under your own member name.
Sluff/ Administrator
I still cant log in under my name.....awaiting administrative acceptance....could you please tell me what else i need to do?
Donna
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Donna you deserve your own membership, and thread. Go ahead and join under your own member name.
Sluff/ Administrator
I still cant log in under my name.....awaiting administrative acceptance....could you please tell me what else i need to do?
Donna
Donna you need to re register under your new name. If you did it is not there and you need to do it again.
Thanks Sluff/ Admin
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Welcome frankieb. My name is keith. i am on dialysis for the second time. I had a transplant from 93 to 04. i had a perfect match from my brother. Sitting back in that chair again can be depressing. I waited till my creatine was 10.6. I could hardly move my body was so sore. when i finally gave in it took a day or two to get to feeling better. I am on the list here in Pennsylvania. I am on dialysis now for three years. i hope to hear more from you. If you have the time try out the chat room. take care.
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:welcomesign; FrankieB and Donna! :grouphug;
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Hi donna, I was on dialysis before for a little over a year. It was during this time my brother greg gave me one of his kidneys. The tests aren't that big of a deal. Allot has changed. There is blood samples, x-ray's, ekg's etc... They just check and make sure are able to go through with it. You will have a psych. test well it's not a test you just sit and tell who ever that yes you really want to give a kidney. Sometime people can make a decision too fast. they just want to be sure you can handle it. When i received my kidney people were more interested in my brother than me!!! By the way that is how he met his wife.