I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Alifetime on February 14, 2019, 01:33:54 AM

Title: Introducing Jeannie
Post by: Alifetime on February 14, 2019, 01:33:54 AM

My name is Jeannie. I was born with a congenital birth defect that caused reflux neuropathy.  I'm 59 and NIH told my parents that I wouldn't live to be 13!!  So I am currently 2 weeks in to perotineal dialysis after losing my second transplant after19 years.  I am struggling with dialysis.  Love that I can do it from home but since Christmas lost 30 pounds.  I am extremely weak with no appetite.  I have also hurt my back lifting the 6 liters of fluid from their boxes!  So I'm happy to be here but I too hate dialysis!




Split and moved to Introducing yourself- kitkatz. Admin

Title: Re: Introducing Jeannie
Post by: Kathymac2 on February 14, 2019, 07:20:43 PM

Hi Jeannie. Your post resonated with me because I am training now for PD.  It is hard enough to start dialysis. It must be crushing to have to go to dialysis after losing a long-term transplant. Maybe your appetite will return some after you get better established on PD. 

All my best wishes for you to be feeling better soon.

Kathy

Title: Re: Introducing Jeannie
Post by: Paul on February 14, 2019, 11:48:51 PM

 :welcomesign;

Hello Jeannie, welcome to the site.

Title: Re: Introducing Jeannie
Post by: cassandra on February 15, 2019, 08:00:24 AM

Welcome to the site Jeannie


   :welcomesign;


Take care, Cas

Title: Re: Introducing Jeannie
Post by: LorinnPKD on February 16, 2019, 10:23:44 PM

Jeannie, welcome!