I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Frankie24 on January 28, 2019, 03:03:02 PM

Title: Introduction
Post by: Frankie24 on January 28, 2019, 03:03:02 PM

Hi,  I am Frankie, I have Hereditary Polysistic Kidney Disease.  I began Dialysis on November 5, 2018 and already dislike how it interferes in my life.  I am currently working with Nephrologist to get approved for home dialysis, I am on hemodialysis right now due to my large kidneys but will be seeing a surgeon to see if I am a candidate for peritoneal dialysis because my kidneys are so large.  I pray that I will be a candidate for peritoneal dialysis so I can do it at home by myself.  I am also listed for transplant.  I have continued working and must admit that the day after dialysis I do feel much better, though I still dislike having to do it, just everyone else I guess.  I am a 58 year old widowed female.

Title: Re: Introduction
Post by: Paul on January 28, 2019, 03:34:33 PM

 :welcomesign;
Hello Frankie. Welcome to the site.

Title: Re: Introduction
Post by: Cupcake on January 28, 2019, 04:54:01 PM

greetings Frankie. I agree-PD is better on your overall health and good luck for a speedy transplant

Title: Re: Introduction
Post by: gabor1982 on January 29, 2019, 12:47:54 AM

Hello, Frankie! I just joined the forum as well. I'm on PD for a few months now. It's better for me than HD. So I hope it will work out for you as well. :)

Title: Re: Introduction
Post by: Charlie B53 on January 31, 2019, 04:29:44 AM

Hi Frankie!

Welcome to IHD!

I started on PD and did very well for 3 1/2 years.  It was great not having any diet or Fluid restrictions.

Sadly I must have failed to be careful enough one night and eneded up in the ER with an infection long before morning.  It came on that fast!

So if you do go on PD ALWAYS stay careful with EVERY connection as it is too easy to give yourself a potentially fatal infection.

My infection set up residence inside the cath.  Months of antibiotic treatments would not kill it.  This forced surgery to remove the cath and I had to immediately start Hemo.

I was amazed how much LESS time Hemo took!

PD took soo much time every day.   I did it, because I had to.  But it really did interupt my life, a lot.

Hemo take some hours, but with an early seat time I get in, get done, and get out.  And it is only three times a week.  NOT Seven.

So Hemo is working out very well for me.

There is Diet and Fluid restrictions.  But I have managed to adapt to them well enough that my Labs are still as Fine as they were on PD.

So I think I am Fortunate and will continue to do alright.

Treatments type really depends on the attitude and needs of the individual.

What works fine for me may be totally awful for you.

You just about have to try it and see what you prefer.