I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: maddawg on November 11, 2018, 11:32:35 AM
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hi everyone! My name is Madison and I am 22. I was recently diagnosed with ESRD and have been on peritoneal home dialysis for about a month now. I was diagnosed on 9/1/18, after being so fluid overloaded I couldn't breath enough to walk into work. I drove myself into the ER where they diagnosed me and almost immediately started my on dialysis. My creative and BUN were through the roof. The doctors ran ultrasounds, labs, and performed a biopsy to try and determine why my kidneys failed but ultimately no luck! I'm still adjusting to the diet and the overall lifestyle change. I'm glad I found this forum for some support, because no one in my family has ever dealt with such a serious disease. Thanks to everyone for sharing your experiences!
-Madison
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Welcome to the group. I’m glad you found the site it’s a great educational and more support group.
Many of us feel dialysis was easier to manager because we knew about our treatment options and have read about other people’s experiences so we could better manage our own care.
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Hi Madison :welcomesign; to the site.
I'm very sorry for the way you got into D. A bit like me. And I'm very happy you found this site. I owe my life to an awful lot of people, and the people on this site including the ones who are no longer with us are a main part of those. IHD changed my life for the better, I hope it does for you too.
Love, luck and strength, Cas
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:welcomesign;
Hello Madison. Welcome to the site.
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Welcome! and keep us posted how things are going!
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Maddawg Madison, I like it.
Welcome to IHD. You can find a lot of information here that your Dr and PD Team may not be so forthcoming with as they are on the other end of the hose. They are not the ones that are going through this.
You are very fortunate that you sought medical care when you did. You were very near collapse.
I did PD 3 1/2 years until I screwed up and caused an infection. Don't be like me. ALWAYS take your time making all set-ups and connections. CLEAN those hands better than I did.
Once I learned what foods I shouldn't have so much of, and which ones I could have more of, I did well.
It is a very steep learning curve but there are tons of information available on line both here and a couple of the kidney.org and kidneyschool.org sites.
Spend time studying, learn as much as possible about kidneys, your body, the different types of Dialysis, more knowledge the better decision making.
Take Care,
Charlie B53