I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Whamo on October 17, 2018, 11:28:22 AM

Title: Purple Bags
Post by: Whamo on October 17, 2018, 11:28:22 AM

My nurse and doctor discussed purple bags as possible option for me next month.  Does anyone have any experience using them for PD?

Title: Re: Purple Bags
Post by: Simon Dog on October 17, 2018, 02:12:42 PM

I think purple is Icodextrin, which can be used for very long dwell times.

Title: Re: Purple Bags
Post by: Indajen on October 17, 2018, 05:11:52 PM

Simon Dog is correct. The purple bag is Extraneal. It contains Icodextrin as its osmotic agent and is used for long dwells, typically up to ~16 hours.

I used 2L of Extraneal overnight when I was on CAPD, but now that I am on APD, I use 1.5L for my 'last fill' and carry it throughout the day.

Title: Re: Purple Bags
Post by: Mr Ken on October 21, 2018, 06:45:03 AM

I concur purple is extraneal..... My advice do not let them talk you into putting a large amount in.... ie 2500 ML... Keeping that crap in is uncomfortable. I use it and I told them no more than 2000ML. 2500ML is 5.51 POUNDS OF WEIGHT you are carrying in your front....... You do feel it.... 2000ml is 4.41 pounds..

Ken

Title: Re: Purple Bags
Post by: Whamo on October 21, 2018, 11:39:24 AM

Good advice, Ken.  I don't think they're in a hurry because it costs more.  We'll see.

Title: Re: Purple Bags
Post by: Simon Dog on October 21, 2018, 06:29:36 PM

I keep thinking of "Purple Rain" with the lyrics changed to "Purple Bags".

Title: Re: Purple Bags
Post by: pinkyD on October 25, 2018, 03:00:59 AM

After 10 days, I started to exhibit a severe exfoliative rash all over my body and had to quit. It is not very common, but one should be aware of the possibility.

Title: Re: Purple Bags
Post by: dialysisrn49 on October 28, 2018, 06:23:49 PM

Icodextran is typically used for patients who aren't meeting their adequacy needs. In other words your body may not be getting as clean as it needs to be. It's useful to "last fill" with because it takes away the need to do a mid day drain or exchange.

Title: Re: Purple Bags
Post by: Tío Riñon on October 30, 2018, 01:05:31 AM

I have been using purple bags (extraneal) for about 5 years.  It was prescribed by my nephrologist because if I left my regular solution (yellow or green) in during the day, it would be absorbed.  Mid-afternoon exchanges were tried, but it was a challenge to set aside time to during my daily schedule to get a manual in.

My run on the cycler is 10.5 - 11 hours/day, ending with a last fill of Extraneal, 2500 mL.  It is usually in me for about 12 hours.  I haven't had a problem with it and appreciate avoiding daytime fills.  Adequacy and UF are fine.

Give it a try and see if it works for you!

Title: Re: Purple Bags
Post by: kickingandscreaming on October 30, 2018, 11:37:48 AM

It is hard enough without having to be "full" all day long.  I can't imagine surviving that.  I can barely move when I do a manual exchange and feel like I just overate thanksgiving dinner.  But that, at least, is only for an hour and some minutes (high average transporter).