I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Whamo on August 15, 2018, 01:11:50 PM
-
:oops; :banghead; :banghead; :banghead; :banghead; :banghead; :banghead; My doctor gave me a choice today. I could either increase the volume of my PD cycles or add another cycle. I hate large volume so I bit the bullet. I already do 10 1/2 hours 7 days a week. Now I have do 80 minutes more a day. Transplant, please! I hoping I'll be back on the list once my three surgeries heal. Thank God they're doing well.
-
Sorry to hear that. You already are committing a lot of time to dialysis... Bumping that up to over 1/2 a day is quite a lot.
-
Bummer Whamo. Hope your transplant comes in soon.
-
I'm sorry to hear that! I also hate larger volumes with PD, I JUST got used to 2.0L and could not imagine more... :cuddle;
I hope your transplant comes through soon!
-
I'm in the same boat, Whamo. It is tolerable... barely. After I lost some of my peeing ability after a couple of hospitalizations, my clearance went way down. So They changed my PD RX to a program that eats up 14 hours of my day--I do a manual, followed by 6 exchanges on the cycler and ending in a final fill/dwell/drain on the cycler. So that's 8 exchanges total. It's a lot! In my case it's somewhat mitigated by my being a high average transporter, so each exchange is not more than 1 hour/25 minutes. And, apart from the manual which is 2L fill, all the rest are 2400ml each. So a lot of volume. At first it was hard and then with time it has become quite tolerable. I'm just a barely 5'4" woman so 2400 is a lot for my stature. If I can survive it so can you. Making that change increased my clearance by quite a lot. I'm expecting that the next time my clearance tanks I will have to go on HD or go to hospice (since I hate in center HD with a passion.)
-
Thanks to all for the kind words. Kicking and Screaming, :cuddle; :boxing; :boxing; :boxing; :boxing; :boxing;I feel sorry for complaining after hearing your plight. Later last afternoon I learned I will need another green bag. That is four bags a day. As Mick Jagger once sang on an "Emotional Rescue" song, "...Life just goes on getting harder and harder..." Now that I'm healing from surgeries I think I'll use the time to finishing a couple of writing projects. One is about a man of a thousand voices that never wants to leave Disneyland. When I was three I was the first kid to go into Fantasyland and I've always wanted to never leave there when I go. The other one is a story about Captain Cook's fatal voyage around the world three times. The Hawaiians kill him for some good reasons I reveal in the script. I'm also anxious to exercise again. It makes me feel better.