I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Raven999 on May 24, 2018, 06:51:41 AM

Title: Introduction Posst
Post by: Raven999 on May 24, 2018, 06:51:41 AM

Hi there, I'm a 61 year old female who came out of a three week coma to find myself on dialysis. So I suppose you could say I was thrown into it. I'm just beginning to understand the options that may be available to me a little further down the line once I've recovered from all the other things that went wrong this year...lol.

I found this site while searching for information regarding phosphorous. I've recently found that added phosphorous is in almost every cereal there is out there. Rice Crispies is my friend.  :) I look forward to soaking in as much info as I can.

Raven

Title: Re: Introduction Posst
Post by: iolaire on May 24, 2018, 07:09:47 AM

Welcome to the group. 

I hope you are able to recover from your other medical concerns.  Dialysis can become a long term kidney replacement.  For many its manageable especially if you have the freedom to focus on adjusting to dialysis without piling it on top of many other medical issues.

Title: Re: Introduction Posst
Post by: kickingandscreaming on May 24, 2018, 12:22:52 PM

Welcome, Raven.  You certainly had an abrupt landing.  But congrats on landing at all. 

I'm 76 and I've been doing PD for 2 years now.  It works well for me. But on top of the kidney issues, in the last year I've developed several heart problems.  So I know how hard it can be to have comorbidities.   I used to be a VERY healthy person until my 74th year when I was hit with a ton of health issues.  I hope you have a better time of it.

Title: Re: Introduction Posst
Post by: Paul on May 24, 2018, 01:11:13 PM

 :welcomesign;
Hello Raven, welcome to the site.

Yeah, not the sort of wake up I'd like to have.

Title: Re: Introduction Posst
Post by: cassandra on May 24, 2018, 02:39:35 PM

Welcome to the site Raven


   :welcomesign;




Take care, Cas

Title: Re: Introduction Posst
Post by: Charlie B53 on May 26, 2018, 05:21:15 AM

Welcome to IHD, Raven!

So glad that you did wake up as far too many people do not.  This just proves that there is something yet for you to accomplish.  At least so I Believe.

One bright spot, you skipped the anxiety/anticipation/fear of having dialysis looming in your future.  You might say you jumped straight in with both feet.

My biggest challenge switching to Hemo was learning to take my binders with everything I eat.  Learning to severely limit so many of the foods that I used to pig out on.  And above all, not to gulp any liquids.  I have learned to force myself to 'sip' and set it down, walk away.  That ain't always so easy.

Take Care,

Charlie B53

Title: Re: Introduction Posst
Post by: Marilee on May 28, 2018, 03:02:13 PM

Hi Raven999 and glad to meet you!
I imagine your head is still spinning with all the changes in your life, glad to be alive but perhaps angry at all the change.

I'm a 61 year old female too whose hubby started dialysis one year ago, and I've spent half the year learning about Phosphorus as a result.
I put together a little website about what I learned that might be useful to you: https://mylowphosdiet.wordpress.com/the-protein-to-phosphorus-ratio/ . One thing I learned about cereals is that Crispix and Special K have about half as much phosphorus as Rice Krispies (I was amazed).

Best wishes as you navigate these new waters!

Title: Re: Introduction Posst
Post by: LorinnPKD on May 30, 2018, 02:53:00 PM

Hi Raven, and welcome!

Do be sure to check out Marilee's website.  It's excellent!