I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Naynay99 on May 03, 2018, 01:29:44 PM
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Hey. Just wanted to say hi and let everyone know that I am now on the list. As there was a lot of testing and stuff I had to do first, this feels like a big deal and a first step to a new tx, so I wanted to share some good-ish news for a change.
I don’t think other people uunderstand that u don’t automatically get listed for an organ just bc u need one, that it takes a bunch of testing and reqts first. And it feels weird to be happy during such a shatty health thing going on, but at least it gives me some hope.
I got an new Apple Watch as a gift from my parents, and it makes me feel more secure that I won’t miss a phone call. I know that realistically I have many years to wait for a kidney, but u never know...
I hope my brother is still considering donating. Things are already weird between us as we r not that close, so I am trying to not make things more awkward. My friend was like “of course ur brother will donate, he’s ur brother, and u could die!” But if that were always so then the tx list wouldn’t be so long. And I want to make sure I don’t inadvertently make him feel some sort of pressure to donate. Although he was the one who offered, I fear he will change his mind. I feel like bc I’m not that sick yet ppl don’t see it as a priority. But it’s my life so it’s pretty up there for me anyway. I really want to do this preemptively before needing dialysis if at all possible.
Anyway, I am one step closer to a transplant! I am on the list!! Hopefully until that happens my 29 year old cadaver transplant kidney can hold on a bit longer. My dietician put me on a restrictive diet to try to buy me some time. It’s hard to follow but hopefully will help some.
Anyhow, hope everyone is doing okay.
Take care.
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Congratulations! That's a great achievement. Now the waiting begins. Good luck.
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Very good news indeed, good luck my darling
:flower;
Love, luck and strength, Cas
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Congratulations. Good luck with (A) Your brother donating, or failing that (B) Not waiting too long for another "dead" kidney.
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Good luck