I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: MonicaJade on March 27, 2018, 03:35:16 PM
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Hi, my name is Monica. I was born with one kidney, and it bled a tiny bit my whole life. I never had any problems from it, and we never paid it any attention. I have glaucoma and am totally blind in my left eye, and my vision is around 20/100 give or take in my right eye with bifocals. I also have cerebral palsy in my right shoulder which was misdiagnosed as a muscle desease until last year. One day when I was 23, my whole body, including my eyes got completely dry, and the doctor took a blood test and asked if I knew my GFR was 29. I had no idea and it was really hard. I had zero clue what dialysis even was, and I thought once your kidneys hit 0; that was it!
My mom set me straight (she had no idea that’s what I thought, and we always knew it was possible that it could happen, just didn’t worry about it) and I got a nephrologist and started a low protien diet. While this was going on, my dad said he would give me a kidney, except right after that, he hurt his back at work and got an unknown primary cancer that took him in 2010.
After that devastating summer, we moved from our tiny town with no dialysis to the bigger city an hour away where most of my doctors were anyway. I got a natual fistula about 3 or 4 years before I needed to start dialysis so it was good and ready. I started in 2015; in October, my birth month, right when I turned 31. My kidney was still working but I think he said my blood was turning to acid and I’d need a shot every week, but I was always tired so I decided just to do dialysis.
I like everone in my clinic, everyone is very nice and pleasent there. No one’s perfect, but I’m glad to have them. I haved also been on the transplant list for about a year and a half.and got my first kidney call in December 2017. I was the backup, so it wasn’t my turn for that just yet.
Well, that’s my story. Sorry for the novel, lol. Nice to meet you all. :)
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Hi Monika, and Welcome to our IHD 'Family' of the afflicted. It wasn't a novel. You have been flirting with disaster for a long time, and the time for treatment has arrived. It is a slightly different version of life as most people know it. We just have to be careful with what we eat and how much fluid we take in, including our food. And we have to stop by the clinic a few days every week to have that fluid removed and our blood cleaned. Soo?
It sure beats the alternative. I, for one, am no where near ready to give up yet. I may be twice your age but there are still a number of things I wouldn't mind getting done. Places to go, People to see. That sort of thing.
As long as we stay VERY careful with our fluid intake, we can get by O.K.
I hope to hear much more from you in the future.
Take Care,
Charlie B53
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Welcome! Thanks you!
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Welcome to the group. I'm glad you are appreciative of your clinic. Those Kidney calls are quite stressful, its nice to get them, but they cause a roller-coaster of emotions.
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Welcome, Monica! Wishing you all the best.
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Actually, Charlie, I haven’t been given any fluid restrictions yet, and I love my family and my life. I have a 3 year old nephew and my sister is pregnant with her second boy who is due in July, I believe.
Thanks for the replies, nice to meet you all.
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:welcomesign;
Hello Monica Welcome to the site.
Sorry for the novel, lol.
Actually I prefer a long introduction, it is easier to chat with someone if you know a bit about them.
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Welcome to the site Monica
:welcomesign;
Take care, Cas