I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Sandi on February 14, 2007, 12:47:36 PM
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Greetings:
I am new to this site. I have been on dialysis twenty-four and a half years. I would not say I hate it but it is not my most favorite thing to do.
I look forward to getting to know many of you.
Bye for now.
Sandi
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Wow! That's a long time to be on dialysis! Which dialysis are you on? Good to have you here! :welcomesign;
Shannon~~
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Wow, Welcome to the IHD family Sandi.
Look forward to your posts.
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And WOW again. I can't wait to hear more about your story. Welcome aboard.
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Hello Sandi,
Twenty Four and a half years is a lot of years. I'll bet you have plenty of stories to tell both good and bad. We appreciate your interest in IHD.
You could post a picture in our family album if you wish here http://ihatedialysis.com/forum/index.php?topic=1227.0
You may consider becoming a Premium Member after reading the benefit section of becoming a premium member here
http://ihatedialysis.com/forum/index.php?topic=1482.0
and here
http://ihatedialysis.com/forum/index.php?topic=1162.0
Whatever you decide it's great to have you here at IHD.
Sluff, Moderator
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Welcome Sandi, good to have you aboard.
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Hi Sandi,
Welcome to IHD. I'm glad you have learned to live with dialysis. I would love to know more about you. Please go to your profile (click on your name) and put your gender down. Also, where are you from? We have people from all over the world on this site and it is fun to know where everyone is from. We have a few people on here that are over 20 years and one over 30 years on dialysis (and counting). That is encouraging!
Rerun / Moderator :welcomesign;
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WOW, Sandi! I love you! You give me hope!! Thank you for joining our community! You have so much to offer us. Please tell your WHOLE story, either here as a more comprehensive intro, or in General Discussion. I want to hear it!! (By the way, Epoman, our Admin/Owner likes long intros) We want to get to know you. Have a good look all over our site. There must be lots that you can add.
Let us know what dialysis was like 24 years ago!!
Here is a group hug from all of us!
:grouphug;
Bajanne/Moderator
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:welcomesign; Sandi, to our community!
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:welcomesign; Sandi. This year wil be 10 years for hubby. Please tell us what type or types of dialysis you have been on and the trials and tribulations you have encountered.
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WOW Sandi, you have been on dialysis a very long time and can teach us a few things! Glad you are here! :2thumbsup;
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You give us all hope. Please tell us more so we can learn from you! :welcomesign;
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Welcome to IHD, Sandi! :welcomesign;
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Triple wow!! Welcome to IHD look forward to your insights--Boxman55
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:welcomesign;
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Hi Sandi
:welcomesign;
I can't wait to see all of you experience from the last 24 years!
Kim
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:welcomesign;
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:welcomesign; and WOW! :clap;
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I am 56 years young, as i have said earlier I have been on dailysis 24 and half years and i have seen many changes especially in machines. Sorry for taking so long to put up this post, but I am unfamiliar with the post program. This is being typed by my grand-niece. We will close and will try and be back soon.
Thats all till next time
EDITED: Merged topic - Sluff, Administrator
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:welcomesign; Sandi your at the best place for support and people welling to answer your questions.
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Hi Sandi, glad you're here! kelli
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:welcomesign;
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:welcomesign;
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Well we are finally back. I think we have figured out how the forum works.
I am up here in Winnipeg, Manitoba, Canada and today the weather is very cold. The last few days have been warmer and we are expecting it to warm up soon.
I am on dialysis because of Lupus with which I was diagnosed thirty two years ago this month. In twenty four and a half years I have seen many different dialysis machines. When I started, it the Drake. Then came along what the nurses called the Cadillac of machines, AK 10. Some time later came the Cobe which must have been the super Cadillac as everything was computerized. With the Drake and the AK 10 one still had to work out some of the arithmetic. With the Cobe everything was worked out for you. Now we have an even more computerized machine but I do not know the name of it.
When I started the filters and lines were already disposable. At that time it was a flat dializer called the Plate Dializer. I heard that a few years before I started these Plate Dializers had to be sterilized and reused every time. This no doubt led to many infections.
I read a book on dialysis about an even earlier time when the machines were as big as the bed and you had to be on for twelve hours. I also read that dialysis was invented during the second world war.
I was on Hemo-dialysis for 15 years at HSC. Up to that time I had six fistulas -- 3 in each arm. The one in the lower left arm was removed after two months because of severe infection. In 1997 I started Peritoneal dialysis as I had no place left for access for Hemo.
In early October, 1997 I had a few minor strokes and lost most of the vision in my right eye. In August, 2005 I had a few more minor strokes and lost 90% of the vision in my left eye. In September,2005 I had Peritonitis and my line had to be removed. Because of this and the vision loss I had to return to Hemo. For access I have a catheter in my chest on the right hand side. The vision loss qualifies me as legally blind. Someone reads and types all my computer messages. I as yet do not know braille and there is a long waiting list for those wishing to to learn. This is why my Grand-niece typed out the last message and someone else is typing this one. Yes, there is technology and equipment to upgrade the computer for visually impaired persons but this is very expensive.
In 1983 I was given a transplant but it hemorrhaged and only lasted a month and had to be removed. This was a little disappointing at first but I think it worked out better in the long run. I was on Prednisone for the Lupus and if the transplant had taken I would have had to stay on it for the rest of my life. As it turned out, the dialysis puts the Lupus in remission and therefore I was able to wean myself off the Prednisone and come completely off by January, 1985. I have had to take the Prednisone a few times since. Like Epoman I prefer to stay on dialysis. It is a sure thing.
Until next time.
Sandi
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Hey Sandi, i also have Lupus. Im sure we could swap alot of experiences. Welcome again.
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:welcomesign; Sandi, to the community~ You have been on this road a very long time~ Congrats!!!
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Holy Cow! Twenty four and a half years! Oh my!
Welcome! You have a wealth of knowledge to impart to us by now!
kitkatz, moderator
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Hi Sandi, it's real good to have you join us.
I recently celebrated my 25th year on hemodialysis, so welcome to the club!
:beer1;
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:welcomesign; Welcome to IHD. :bow; That's a long time on dialysis. Well done you!
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Hi Sandi, 24.5 years, that's double the time Ive been on dialysis, and I thought that i was a old-timer!
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Welcome aboard, Sandi! You have had a lot of experience! Glad to have you with us!
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Sorry to have been away for such a long time. I was not sick but just didn't take the time to put up a new post. Also, I've been too busy reading the story. I hope none of you were overly concerned as to why I was away.
Here in Canada it has finally warmed up after a very long cold spell. One person told me her daffodils were starting to come up.
Further to when I started dialysis in 1982........Shortly before I started a new type of dializer had been introduced. This one was a round cylinder about 10 inches long. The inside was narrow celephane material where the blood moved from one end to the other. When they broke the dializer in half it looked like and reminded me of my father's shaving brush. These dializers were disposable.
That's all for now let me know if you have any questions or find this confusing. Sandi
EDITED: Merged Thread - Sluff/ Admin
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Welcome back Sandi great to hear from you again.
Sluff/ Admin
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Hi Sandi, Glad to hear that the weather is improving in Canada, it seems to be a little colder a little longer everywhere these days. Glad to have you back, you have alot to read here so hope your done with your story, lol, Looking forward to hearing more from you soon. :cuddle;
Goofynina/Admin.
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:welcomesign;
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:welcomesign;
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Sandi - good to hear from you anytime!
Karol