I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: bonkers on February 01, 2018, 11:19:20 AM
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Hello, from Melbourne Australia, end stage renal disease caught me by surprise in January 2017 I've been on HD dialysis for a year now, (8 hours 3 times a week) I'm coping with it reasonably well, the main thing I notice is restrictions on where I can go, travel has to be organized hospitals notified etc. On a websearch I found this BB so I'll look forward to reading of other peoples experiences. I'm making one mistake on occasions I'm having too much phosphate I pay the penalty with getting itchy skin. (Basically cause I like yoghurt)
Regards to everybody bonkers.
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Welcome! You've come to the right place! There are many people who would be very happy to answer questions and share experiences!
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:welcomesign; Bonkers
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Welcome to the site Bonkers
:welcomesign;
Take care, Cas
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Bonkers, I LOVE the name. Welcome to IHD!
8 hours per session? WOW!!! And to think that I thought my 4 hours at a time made my butt tired!
Binders can help with you phosphorus. I was taking one or two at a time and found out it wsn't enough. Now I regularly take three with a small meal, usually 4 when I know anything has much more phosphorus in it. And it is working much better. My Labs are within our allowed range.
Two Ladies seated near me told me how they were taking one capsule of a spice to reduce their itching. Turmeric. I had forgotten the name there for a minute. I hate it when I forget words. Give me a few minutes doing something else and it comes back to me. Anyway, I bought a bottle of Turmeric Capsules and added one a day to my pill boxes. Within three days I noticed my itchy Lizard Skin was NOT itching! Amazing!!!
Always glad to have more members. There is much greater power in numbers.
Take Care,
Charlie B53
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:welcomesign;
Hello bonkers, welcome to the site. Eight hours? Wow, safer for you to do longer, but it would drive me mad (I'm on four and a half and that is more that I would like).
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Gday Bonkers! I’m in Melbourne too, be great to learn from you. Check my intro post. Good luck mate..
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Hello and welcome to IHD and I am amazed about your 8 hours three times a week dialysis-treatments ... I "only" have three hours three times a week... and I am not quite sure, how I would be able to cope with 8 hours three times a week...
Hello again and welcome to IHD and best wishes from Kristina. :grouphug;
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Welcome Bonkers! I think you'll find a great array of experience here - lots of information, many views, very helpful indeed.
I can understand how travel is restricted - that's probably the #1 reason my hubby chose peritoneal dialysis: He wanted to head out in the motorhome to do some fishing in remote spots each year.
I also 'get' how phosphorus can creep up: So many good foods, so little budget. It was a big deal for me to understand, so I put it all together in a website ( https://mylowphosdiet.wordpress.com/ (https://mylowphosdiet.wordpress.com/) ) for all to see.
:welcomesign;
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Beware of phosphorus. The itching is only the tell-tale symptom. The real damage is being done to your bones and arteries and it ain't pretty. So watch what you eat and take your binders.