I Hate Dialysis Message Board
Off-Topic => Other Severe Medical Conditions => Topic started by: Epoman on December 20, 2005, 12:31:08 AM
-
http://www.requip.com/
I just saw the commercial for the first time. Ask you doctor about it. But it is for people who have 15+ episodes a month. It sounds promising let us know if any of you try it out.
-
I went to the Neph today and asked him about the restless legs and cramping all the time. He told me to try drinking a little tonic water. Remember though, I'm not on Dialysis so I don't have to watch my intake yet.
-
oh ya I saw that commercial on TV advertising it!
-
Epoman have you tried requip yet? Does it work?
-
Epoman have you tried requip yet? Does it work?
No, sorry I don't get it that often anymore. I usually get RLS only once or twice a month now.
-
does it get a lot better on daily/nightly dialysis?
-
That tonic water is for the traces of quinine in it. Quinine is an old drug that works for leg cramps.
Mom 3
-
That tonic water is for the traces of quinine in it. Quinine is an old drug that works for leg cramps.
Mom 3
I am so glad to hear that. I would not say that I have definite RLS, but sometimes before I go to sleep they do get a bit restless. The other thing is that I really like tonic water.
-
One of my cycler patients use this and he says it really helps him.
-
I only get RLS mainly when I am feeling crappy or have too much fluid on me or am overly tired .. okay .. that is a lot of the time .. but I don't get RLS as much as other people seem to and I don't know why.
-
This probably won't be appropriate for everyone, but I deal with RLS (no formal diagnosis of that, by the way) by pedalling on a set of bicycle pedals. They're just pedals mounted on a frame. I've bought two over the years, the first for $55 and the second for $30. It helps me burn off my restlessness, it gives me an excuse to change positions, and I get a little exercise to boot. The staff at my unit is fine with it. In fact, they encourage me to use the pedals.
-
This probably won't be appropriate for everyone, but I deal with RLS (no formal diagnosis of that, by the way) by pedalling on a set of bicycle pedals. They're just pedals mounted on a frame. I've bought two over the years, the first for $55 and the second for $30. It helps me burn off my restlessness, it gives me an excuse to change positions, and I get a little exercise to boot. The staff at my unit is fine with it. In fact, they encourage me to use the pedals.
Where did you buy them?
-
This probably won't be appropriate for everyone, but I deal with RLS (no formal diagnosis of that, by the way) by pedalling on a set of bicycle pedals. They're just pedals mounted on a frame. I've bought two over the years, the first for $55 and the second for $30. It helps me burn off my restlessness, it gives me an excuse to change positions, and I get a little exercise to boot. The staff at my unit is fine with it. In fact, they encourage me to use the pedals.
Where did you buy them?
Medical supply stores. The first set was at a chain called American Home Patient, the second set at a local store that just started up a few months ago.
-
I thought all units have those! Mine does! It helps the body remove 20% more toxins from the body during dialysis to use the peddles.
-
I thought all units have those! Mine does! It helps the body remove 20% more toxins from the body during dialysis to use the peddles.
Not that I doubt you, but do you have any evidence to back that up? I'd like some documentation for the nurses at my unit.
-
I thought all units have those! Mine does! It helps the body remove 20% more toxins from the body during dialysis to use the peddles.
Not that I doubt you, but do you have any evidence to back that up? I'd like some documentation for the nurses at my unit.
Yes, but I will have to search the D&T City forums again for it. I will post it when I find it again. Wait .. I have it in my Copernic backups ..
http://www.medicalnewstoday.com/medicalnews.php?newsid=43306
-
What is a copernic backup?
-
What is a copernic backup?
Copernic Search Software (http://www.copernic.com/) and by backup I meant past search results I have saved in it.
-
Thanks for the link, Angie.
-
Thanks for the link, Angie.
No problem! Anytime ;)
I also have a list of search engines (http://angieskidney.com/search_engines.html) ;) lol
So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt :P
-
So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt :P
I only had time to skim it. I intend to look at it more closely. I showed it to our dietician today and she was quite excited about it. I believe she'll share it with the staff. Not sure what will come of it. They've always encouraged me to pedal just for the exercise, but with a kt/v stuck around 1, anything that improves my results is crucial. (Low kt/v is why I do four days.)
EDITED: Fixed Quote Tag - Goofynina/Moderator
-
So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt :P
I only had time to skim it. I intend to look at it more closely. I showed it to our dietitian today and she was quite excited about it. I believe she'll share it with the staff. Not sure what will come of it. They've always encouraged me to pedal just for the exercise, but with a kt/v stuck around 1, anything that improves my results is crucial. (Low kt/v is why I do four days.)
Wow my kt/v is always around 1.7+! But I DO bike ;) When I printed that out and brought it to my unit the nurse just put it in my "bin" so I actually had to take it and pin it up on the board myself >:(
I was hoping any of the other patients would read it but it seems I am the ONLY one in the "Self Unit" who cares to learn more .. the others just want to get in .. do their time .. and leave. :-\
-
very interresting topic. I always thought that I too suffered from RLS until my neph doc had me see a neurologist who Dx me with Myoclonic jerks(seizures). He said it was due to the BUN levels changing during dialysis. I take 1 Rx everyday, an anti-convulsant...and 1 Rx on dialysis days. Most days at dialysis are controlled now, and the jerking at night isn't so bad anymore. Now if I could just get my phosphorus under control and stop all this itching!!!!!!
-
Scratch scratch! I send a scratch to you. I itch too.
-
very interresting topic. I always thought that I too suffered from RLS until my neph doc had me see a neurologist who Dx me with Myoclonic jerks(seizures). He said it was due to the BUN levels changing during dialysis. I take 1 Rx everyday, an anti-convulsant...and 1 Rx on dialysis days. Most days at dialysis are controlled now, and the jerking at night isn't so bad anymore. Now if I could just get my phosphorus under control and stop all this itching!!!!!!
What is Rx?
-
Rx=prescription
-
How can you "take" a prescription? :-\
-
Thanks for the link, Angie.
No problem! Anytime ;)
I also have a list of search engines (http://angieskidney.com/search_engines.html) ;) lol
So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt :P
I did read it, and it makes sense to me. But to me, that's a side benefit. My pattern is that I can sleep sporadically in the first hour or so, and then I wake up and start squirming like mad. Pedalling allows me to channel that energy. I also get a little exercise. Granted, it's not strenuous, but I need all I can get. And it gives me a break from being stuck in one position for four hours. I don't find it easy to turn on my side in our chairs. The pedals have even been good for a few laughs. I tell people I get a discount for generating my own electricity. :D
-
How can you "take" a prescription? :-\
Like, ingest it.
I thought you were a nurse...are you not?
-
A prescription is a piece of paper. Imacrash said "I take 1 Rx everyday". What I wanted to know was, what drug is it?
Sorry I just don't understand what is meant by that saying.
-
A prescription is a piece of paper. Imacrash said "I take 1 Rx everyday". What I wanted to know was, what drug is it?
Sorry I just don't understand what is meant by that saying.
We sometimes use the word "prescription" to mean "prescribed medicine." Sorry, I didn't mean any offense, just was wondering.
-
Oh ok. I always say what the meds are called, as they could be anything.
-
Thanks for the link, Angie.
No problem! Anytime ;)
I also have a list of search engines (http://angieskidney.com/search_engines.html) ;) lol
So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt :P
I did read it, and it makes sense to me. But to me, that's a side benefit. My pattern is that I can sleep sporadically in the first hour or so, and then I wake up and start squirming like mad. Pedalling allows me to channel that energy. I also get a little exercise. Granted, it's not strenuous, but I need all I can get. And it gives me a break from being stuck in one position for four hours. I don't find it easy to turn on my side in our chairs. The pedals have even been good for a few laughs. I tell people I get a discount for generating my own electricity. :D
Ya I find I can't turn on my side neither. With how my fistula is I would be too scared to screw up my dialysis. I would sleep through the alarms (I know after awhile i wouldn't just like when I was on PD at night times but somehow needles seem more scarey than a tube in my peritoneum). But even when my permcath was being used alone I still could not sleep on my side. And that is normally the most comfortable for me.
I like to bike for 1 hr as it keeps my legs from jumping and while watching TV I don't notice the time. For some reason the nurses always seem to be surprised that I bike for a whole hour.
-
Well to answer the question that Epo posted in the begining of this post... Yes, I take Requip... and for me, it works. I haven't had a RLS episode since I started taking Requip a few months ago. :thumbup;
-
Well to answer the question that Epo posted in the begining of this post... Yes, I take Requip... and for me, it works. I haven't had a RLS episode since I started taking Requip a few months ago. :thumbup;
Wish they had that in Canada :(
-
Well to answer the question that Epo posted in the begining of this post... Yes, I take Requip... and for me, it works. I haven't had a RLS episode since I started taking Requip a few months ago. :thumbup;
I have to do something, my legs have been terrible. I go to the neph tomorrow.
-
I've been taking requip now for 5 days and it is finally starting to help. Whew it was getting pretty bad. But why did it take five days to start helping. I was given a 14 day trial pack.
-
I've been taking requip now for 5 days and it is finally starting to help. Whew it was getting pretty bad. But why did it take five days to start helping. I was given a 14 day trial pack.
Let me ask you this... did they start you on a certain dosage and then tell you after a few days to lower it? Or not? The reason I ask is when I started taking Requip I was started on a certain dosage (i dont remember the dosage) for like 2 days and then it was lowered to the dosage I take now... and I was told it takes a few days before you start to feel the effects of the medicine working, but once it starts working, and as long as you take it each night, it will continue to work. I have been taking Requip for 3 months now and haven't had any problems with my RLS since. Hope it works well for you! :thumbup;
-
I've been taking requip now for 5 days and it is finally starting to help. Whew it was getting pretty bad. But why did it take five days to start helping. I was given a 14 day trial pack.
Let me ask you this... did they start you on a certain dosage and then tell you after a few days to lower it? Or not? The reason I ask is when I started taking Requip I was started on a certain dosage (i dont remember the dosage) for like 2 days and then it was lowered to the dosage I take now... and I was told it takes a few days before you start to feel the effects of the medicine working, but once it starts working, and as long as you take it each night, it will continue to work. I have been taking Requip for 3 months now and haven't had any problems with my RLS since. Hope it works well for you! :thumbup;
I was given a 14 day trial pack and it starts at 0.25 mg for the first 2 days then 5 days at 0.5mg and now I start the next 7 days will be 1mg tablets.
-
I've been taking requip now for 5 days and it is finally starting to help. Whew it was getting pretty bad. But why did it take five days to start helping. I was given a 14 day trial pack.
Let me ask you this... did they start you on a certain dosage and then tell you after a few days to lower it? Or not? The reason I ask is when I started taking Requip I was started on a certain dosage (i dont remember the dosage) for like 2 days and then it was lowered to the dosage I take now... and I was told it takes a few days before you start to feel the effects of the medicine working, but once it starts working, and as long as you take it each night, it will continue to work. I have been taking Requip for 3 months now and haven't had any problems with my RLS since. Hope it works well for you! :thumbup;
I was given a 14 day trial pack and it starts at 0.25 mg for the first 2 days then 5 days at 0.5mg and now I start the next 7 days will be 1mg tablets.
Sounds right.. So are you going to be getting a prescription? Do you like it?
-
I'm going to wait until monday to requesta perscription. Last night was a little rough again but still better than without requip.
-
Sluff, what helped me alot was when my sister gave me one of those stationary peddling things, they sell them at Walgreens. I would do it right before i went to bed for 10 minutes or so. Just a suggestion...:)
-
Sluff, what helped me alot was when my sister gave me one of those stationary peddling things, they sell them at Walgreens. I would do it right before i went to bed for 10 minutes or so. Just a suggestion...:)
Thanks
I'll have to try it.
-
Update!!
I have been taking 2mg requip now for 3 weeks and my RLS has greatly improved. Occasional achiness but the restless part is gone at night.
-
Update!!
I have been taking 2mg requip now for 3 weeks and my RLS has greatly improved. Occasional achiness but the restless part is gone at night.
Very good news!!! Hope it continues to improve.
-
Thanks Black.
-
It's been a full week since I've had a nights sleep which didn't involve lying wide awake for about 6 hours and eventually getting off to sleep at about 5am. Every night I get hooked up to the cycler at 11pm and settle down for a nights sleep. So far so good. After feeling nice and comforable for about half an hour I then start feelling not so comfortable and change sleeping position. And then again about a minute later and then I find I can't seem to keep my legs still.This then progressively gets worse as the night continues until I'm just in perpetual motion for hours. When I sit up or get out of bed and pace the bedroom for about five minutes then it appears to go. So I get back to bed and within five minutes it's back again. Iv'e tried doing a first fill and disconecting during dwell time and then going to bed just before the next drain is due which is then about 1am but it hasn't made any difference. Has anyone else experienced this as I understand it can be a feature in ESRD. The doc has given me clonazapam which I've taken over 3 nights without any effect. It really is pissing me off as I've had to take sick leave from work all this week. :banghead;
EDITED: Merged Topics RLS - Sluff, Moderator
-
I used to take conazapam, but its especially made for Parkinsons Disease. You shoud talk t your doctor about trying Requip, especially made for RLS, it worked for me and a few others I know who have tried it. Good luck.
-
My husband has done very well on Lyrica. He ran out and was off of it for a few days and he said he had forgotten how bad it was without it. Back on it was huge difference and he has slept much better.
-
Does anyone know if there is an equivilant to Requip in Canada?
I was on Levocarb and now am on Mirapex but both aren't working. I got so tired of nothing working and those being my only option that I started taking both at the same time. I am tired of only sleeping 2 hrs per night.
I really need advice :( I gotta go to work today and am soooo tired right now.
-
Dunno angie, theres not an equivilent here in the US yet cuz Requip is so new.
-
Dunno angie, theres not an equivilent here in the US yet cuz Requip is so new.
:(
Well just asking because they keep putting me on these pills that are made for people with Parkinsons Disease which I don't have. How is that supposed to help RLS?
-
I have developed RLS (Restless Legs Syndrome). I would love to hear from others who are dealing with thiis and dialysis. What you do for it, what meds you might be taking, etc. They tell me that it will go away when I get my second transplant. ???
EDITED: Merged Topics Restless Leg Syndrome - Sluff, Moderator
-
I was also on Parkinson Disease medicine for RLS before Requip, that was how they treated RLS until Requip came along. With Parkinsons Disease, you cant control your movemnt, ou are constinatly moving, so they belve it can help with RLS to stop the movement. To be honest I was on clonazepam (for parkinsons) before Requip came out and it did help me. Good luck nun. Keep trying diff meds until you ind one that works. Idunno if ur on any blood pressure meds but clonidine is a blood pressure med but it can also help with RLS too.. just a fyi.
-
Heres a good topic to read: Error - Link not meant for this post.
Requip is a great medicine especially made for RLS... also some Parkinsons Disease meds help. Ask your dr
Link Error was made - Rerun / Moderator
-
Heres a good topic to read: http://ihatedialysis.com/forum/index.php?topic=2561.0
Requip os a great medicine especially made for RLS... also some Parkinsons Disease meds help. Ask your dr
It says "The topic or board you are looking for appears to be either missing or off limits to you. "
That is very annoying! Most boards, when a thread is moved, updates itself! I thought Epoman hated broken links and here there are ones in his own forum :(
Can someone put the right link? I am very interested in reading it.
-
Maybe I did it wrong. Sorry if I did. :-\
-
I'll look into it........
Rerun / Moderator
This was a mistake. Angela meant to post that in a introduction spot and when she came here to copy the link she didn't make it back to introduction. I won't delete it because then none of this would make sense. I'll just modify the link.
-
Heres a good topic to read: Error - Link not meant for this post.
Requip is a great medicine especially made for RLS... also some Parkinsons Disease meds help. Ask your dr
Link Error was made - Rerun / Moderator
Angela it says on the package of requip that it is also perscribed for treatment of Parkinsons disease also. I am on 4mg per day of requip for RLS.
-
I understand that sluff, but its also the ONLY medicine made especially for RLS. No other drug is made for RLS. I'm on 5mg
-
I thought 4 mg was a lot maybe I need a higher dose then because it doesn't work sometimes.
-
Interesting to see what you all take. Guess we all get different tablets in different countries? I take and have done for about 2 yrs now something called Co-beneldopa again its a tablet for Parkinsons suffers , but it works very well for me .(UK)
-
I thought 4 mg was a lot maybe I need a higher dose then because it doesn't work sometimes.
Sluff, i'm so sorry.... I told you wrong! I looked at my bottle later and realized my Requip is only .25 mg... So very small compared to yours, but now that I know it can go that high, next Wednesday I will be telling the doctor I would like mine increased b/c sometimes I have to take 2 or 3 tabs for it to help now instead of one. This is so weird b/c after my last transplant my RLS went away.... maybe I just need to give it some time.
-
I thought 4 mg was a lot maybe I need a higher dose then because it doesn't work sometimes.
Sluff, i'm so sorry.... I told you wrong! I looked at my bottle later and realized my Requip is only .25 mg... So very small compared to yours, but now that I know it can go that high, next Wednesday I will be telling the doctor I would like mine increased b/c sometimes I have to take 2 or 3 tabs for it to help now instead of one. This is so weird b/c after my last transplant my RLS went away.... maybe I just need to give it some time.
I'd rather give it a little more time before adding to all the meds you are currently taking. ;)
-
I thought 4 mg was a lot maybe I need a higher dose then because it doesn't work sometimes.
Sluff, i'm so sorry.... I told you wrong! I looked at my bottle later and realized my Requip is only .25 mg... So very small compared to yours, but now that I know it can go that high, next Wednesday I will be telling the doctor I would like mine increased b/c sometimes I have to take 2 or 3 tabs for it to help now instead of one. This is so weird b/c after my last transplant my RLS went away.... maybe I just need to give it some time.
I'd rather give it a little more time before adding to all the meds you are currently taking. ;)
yeah I would get permission from my Neph before I would medicate myself, although I do take Naproxin more than I should.
-
Oh yah, I know. I intend on asking the dr to raise it on Wednesday. Or for something different. :thumbup;
-
Going to ask my GP about Requip. If it's not yet available in Canada it's almost certainly not going be available in the UK.
Have had 3 good nights sleep so maybe the clonazapam has kicked in.
-
Had to stop taking clonazapam. It seemed to be working OK but was making me sleepy in mid afternoon. I had to finish work early on two afternoons last week because I felt so drowsy and couldn't concentrate, then I had to drive home with cold air venting through my car because I was rather afraid of falling asleep at the wheel. I Started getting RLS again after about 3 days off the tablets Saturday night being the mother of them all cause I didn't get to sleep untill six o'clock Sunday Morning. Last night (Sunday) was much better; I took a sleeping pill (Zopiclone). I not only slept well but up to now have had no side effects or drowsiness. Has anyone else used sleeping pills to successfully get a good night's restless leg free sleep. I like the idea that sleeping tablets seem to act for the period you want them to, ie, during the night without affecting you the next day.
-
I used to, then after so long, my body got used to the sleeping pills.. and they no longer worked without having the dosage rasied.
-
Anyone found a cure or any help for restless leg syndrome. I have tried Mirapex, Quinine, Ativan...all work in the beginning and then stop working. I am going crazy with this.
-
This topic was already discussed. http://ihatedialysis.com/forum/index.php?topic=2568.0
Don't know if it will help you - but you can check it out.
-
Is requip the same drug as Mirapex?
-
I don't think so, ILOVEFLUID. I don't know for 100% though, but Requip was advertised when it came out as the only drug of it's kind approved by the goverment specifically made for relief of RLS.
-
Have none of you tried Co-beneldopa or do you not have it over there ? I have been taking this for 2 yrs and it is excellent also it is NOT a sleeping tablet , so you dont get any hungover feeling in the morning! :thumbup;
-
Have none of you tried Co-beneldopa or do you not have it over there ? I have been taking this for 2 yrs and it is excellent also it is NOT a sleeping tablet , so you dont get any hungover feeling in the morning! :thumbup;
Requip is also NOT a sleeping tablet, and therefore you don't get a hungover feeling. :2thumbsup;