I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Simon Dog on January 07, 2016, 12:43:10 PM
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I found that changing the PAKs on the NxStage was a real pain. My care partner has nothing to do with maintaining my setup, so I had to start a two hour prime, arrange to be there when it was done, and get in a 7 hour SAK fill before the next treatment. My PAKs would last 12 to 13 treatments, so I was dealing with this every other week.
NxStage support put me on a waiting list for a Linx water filter, and it finally arrived last October. I've been holding off this post since I wanted to wait until I knew how long a PAK would last. My answer is 56 SAKS (13 50L+38 60L) and 81 days (10/16 to 1/6). The message seems to indicate the PAK "expired" (though I thought that was supposed to be 90 days) rather than failed the water resistance test. In any case, I an delighted with the results, and I expect my clinic will be as well since they get billed $500 per PAK.
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Men how come I overlooked this post. Fantastic news. Do you know how much the cots are for the Linx water filter?
Love and luck, Cas
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I get the same 12 -14 treatments in a PAK before needing to be changed. Sometimes more if I keep the water softener working good.
They sent me a Linx. I unpacked it and read up on the directions. They said it had to be 6 feet away from the existing machine and that I had to run a separate drain line. Most of you know I am relatively new to this and I spent a bit of time setting up the "room" to work for dialysis just 9 months ago. I ran the water line and drain line through the crawl space and up through the floor. We did not want lines across the floor.
After studying the manual, which said I could not TEE into the drain line we decided not to rearrange all this as we hope to be moving in a few months. So for now I will keep changing PAKs.
And cass, NxStage never mentioned a cost, I am guessing it saves them a bunch of PAKS. But then again I don't see the bills anyway.
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I had to run a separate drain line.
The Lynx has two filters, and only one is in use at any time. The system will occasionally back-flush the filter not in active use, which requires a drain line. Although this wastes a little water, it is a LOT than the amount wasted by an RO system which typically discards as much water as it uses, and also uses water while in "Standby" mode.
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Strange Linx problem. I had the Linx replaced for maknig funny noises and alarming with both leds solid red. I blew through two PAKs after 10 treatments each; was getting 55+ treatments (almost 3 months) on the previous Linx.
When I was down to ZERO Paks except the one in the Pureflow, I called tech support. They refused to send a new PAK outside my regular order until I have absolutely none. The RN at my clinic worked it out with customer support and a spare PAK is arriving.
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Strange Linx problem. I had the Linx replaced for maknig funny noises and alarming with both leds solid red. I blew through two PAKs after 10 treatments each; was getting 55+ treatments (almost 3 months) on the previous Linx.
When I was down to ZERO Paks except the one in the Pureflow, I called tech support. They refused to send a new PAK outside my regular order until I have absolutely none. The RN at my clinic worked it out with customer support and a spare PAK is arriving.
That doesn't sound like the NxStage I use to know. They always wanted us to have a spare, whether we asked for it or not. Maybe it was a new tech or they didn't read your recent history/problem with the Linx and thought you were trying to hoard. But Linx or no Linx, they should not argue with a customer when they say they need another PAK or anything for that matter.
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The RN spoke with NxStage and was told tech support will only send out a PAK if one is down to zero, and that apparently includes the one in the pureflow, but that customer service will.