I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: News Articles => Topic started by: okarol on April 05, 2007, 05:45:04 PM

Title: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: okarol on April 05, 2007, 05:45:04 PM
Kidney Failure Victim Wants to Share Life Saving Secrets With You ... Before It's Too Late

MONTEREY, Calif., April 5 /PRNewswire/ -- Sheila Shaw wonders why most patients diagnosed with kidney failure don't take control of their health issues. "I lost my kidney function at 22 years old and was told that I wasn't going to make it through the night. That was 20 years ago."

(Photo: http://www.newscom.com/cgi-bin/prnh/20070405/NYFNST06)

As the CEO of Patient's Pride, Inc., a kidney transplant recipient, and a former peritoneal dialysis patient, Shaw states that you can reach forward and live the life that you deserve despite living with kidney failure or any other chronic illness.

"I was determined to make it through, and I'm shocked to find that most patients succumb to their diagnoses. It's like they just give up," says Shaw. Shaw created her company specializing in catheter support systems on the advice of her doctor who requested that she make her PD Security Bands(TM) available to his other patients, to prevent their catheters from accidentally being pulled out of their bodies.

"Become a pro-active member of your medical team," Shaw advises. She is always amazed at how many patients do not know their doctors' and nurses' names.

"So many patients are so intimidated by their medical team that they're too afraid to speak up when they are feeling serious side effects and discomfort from their medications."

Carry a Medical Alert Card on you at all times, so medical professionals can access your medical and emergency contact information should you be in a crisis situation and cannot speak for yourself, Shaw says.

"I was disappointed when I discovered that approximately 80% of the patients I've talked with who have diabetes, high blood pressure, and other serious health issues, do not have any type of medical alert card, nor do their caregivers. This is suicide," says Shaw.

"Full Tilt -- How to Reclaim Your Life In Spite of Living with a Chronic Illness," is available for $16.95 from Patient's Pride, Inc., 395 Del Monte Center, Ste 182, Monterey, CA 93940, telephone number 866-607-7433, or at http://www.patientspride.com/.

Note to Editors: Review copies available. Shaw is available for interview. Contact Peggi Speers, (831) 626-3705, Peggi@patientspride.com.

Photo: NewsCom: http://www.newscom.com/cgi-bin/prnh/20070405/NYFNST06AP Archive: http://photoarchive.ap.org/PRN Photo Desk, photodesk@prnewswire.com

Patient's Pride, Inc.

CONTACT: Peggi Speers of Patient's Pride, Inc., +1-831-626-3705,Peggi@patientspride.com

Web site: http://www.patientspride.com/
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: goofynina on April 07, 2007, 02:02:45 PM
So where are the "Secrets"  tell me something i dont know, these are not "secrets" she is full of it.  sorry, :P  ::)
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: okarol on April 08, 2007, 12:20:28 AM
 ??? Yeah, she wants to "share" the secrets -- for only $16.95??? WTF?
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: George Jung on April 08, 2007, 02:06:01 AM
That's just disgusting.
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: Sluff on April 08, 2007, 05:44:19 AM
Another money monger trying to make a buck of other peoples misfortunes.
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: MyssAnne on April 08, 2007, 06:52:23 AM
I think we would do better here on this forum than to buy any information from her. I've been
impressed with the quaility of integrity and outlook here and trust it (and you) to give me
pertinent information I need for a quality life.
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: Zach on April 08, 2007, 08:36:26 AM
Where's my royalty check?!
 8)
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: RichardMEL on April 08, 2007, 10:30:25 AM
I think the most important "secret" is the one talked about in the article - be proactive and a part of your medical team. By this I mean take an active interest in your health and what you can do to make the most of it.

The way I see it is that it's MY body not the nurses or the docs or anything.. if I don't give a damn about it then why should I expect anyone else to? So I get the results of labs and go over them (my last lot are very good except for Calcium which is a bit high). I almost always talk to the nurses about where things are at and I have the final say on the UF rate or other settings on my machine (and by now the nurses understand that I seem to have a fair grip on what is going on so accept what I request, or if they ask why I have wanted something in particular if I explain they are ok with it).

The other "secret" I think is to do the best to remain positive. Sometimes it is very hard specially when you can see nothing but dialysis ongoing with the diet and fluid restrictions and all the rest that we know so well.. but I think attitude can do as much help/damage as other things.

Not to say I am perfect or anything.. far from it (guess who is craving a coke right now? :) ).. but I definitely think an active interest and participatin in one's own health and care, and a positive attitude will go a long way to dealing with things well.

I'm not charging anyone here anything :)
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: Sluff on April 08, 2007, 12:28:55 PM
Did someone say coke?  >:D
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: goofynina on April 08, 2007, 12:43:45 PM
Did someone say coke?  >:D

Calm down Sluff, he was talking about Coke COLA!!!  lmao ;)
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: RichardMEL on April 09, 2007, 01:09:12 AM
yes... I'm not sure is Cocaine high in potassium???? :D lol

oh and another tip, and this is for Mina..... love a kitty and they will love you back and lower your stress levels!!!
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: Sluff on April 09, 2007, 07:28:16 AM
Did someone say coke?  >:D

Calm down Sluff, he was talking about Coke COLA!!!  lmao ;)


Let me down easy next time would ya. ;)
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: goofynina on April 09, 2007, 10:32:42 AM
yes... I'm not sure is Cocaine high in potassium???? :D lol

oh and another tip, and this is for Mina..... love a kitty and they will love you back and lower your stress levels!!!

That cat will be sooooo spoiled RichardMel,  is it possible to love something so much and you dont even have it yet?  My stress level does need some kitty attention though, i have been patiently waiting, now, it is time  ::)
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: Sluff on April 09, 2007, 12:51:21 PM
yes... I'm not sure is Cocaine high in potassium???? :D lol

oh and another tip, and this is for Mina..... love a kitty and they will love you back and lower your stress levels!!!

That cat will be sooooo spoiled RichardMel,  is it possible to love something so much and you dont even have it yet?  My stress level does need some kitty attention though, i have been patiently waiting, now, it is time  ::)


pprrrrr  ppprrrrrrrrrrrrr  pprrrrr will that help til you get your kitty?
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: kitkatz on April 28, 2007, 04:18:20 PM
God I hate people who think they have invented the wheel over again!
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: st789 on May 03, 2007, 04:49:03 PM
WTF....$16.95  I rather use that on some other magazines which would give me more enjoyment than reading the book to remind myself of my sickness.  What a bunch of bullcrap....Just imagine if the $$$$ he rolls in with the book. Blip................
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: Chicken Little on May 03, 2007, 11:04:41 PM
I do love Sheila's belts and she been very supportive, via phone, and helped me work through some PD issues.  I do like her very much.   I have a copy of this CD though and, well, she needs to stick to making PD belts.  The soundtrack playing behind her talking is so unbelievably corny and definitely good for a few laughs, although it's not meant to be funny.  I don't think I can upload and post snippets without breaking some copyright law.  It's up for grabs if anyone wants it though.   ;D
Title: Re: Kidney Failure Victim Wants to Share Life Saving Secrets
Post by: Rerun on May 04, 2007, 03:23:34 AM
I wonder if she realizes that selling the book will screw up her disability!!

I've had a poor attitude for 20 years and I'm still alive!