I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Adam_W on March 16, 2007, 05:53:34 AM
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Hi, I've been lurking here for awhile, and I finally thought I would join. I'm 25 and I was diagnosed with ESRD on Jan 21st, '07. I started hemodialysis on the 25th. I just got put on the waiting list (four months....Booooooo!) to start training with the NxStage at home. I've taken quite an interest in studying the technical details of my treatment, so much so that I sometimes drive my techs crazy because I ask alot of really technical questions and I like to have the machine turned toward me so I can read my data screen. They are very open to that, however, and they are usually more than happy to turn my machine. My unit manager even gave me an operating manual for our machines (Fresenius 2008H). Obviously, I'm not exactly happy that I'm on dialysis, but I try to make the best of it, since I can't do anything about it. Take care.
Adam
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Welcome Adam to IHD.
Thank you for introducing yourself, it is the best way for us to get to know you better. Whatever your reason for joining our family here at IHD, I hope you find everything you need, but most importantly I want you to feel comfortable to ask questions and come back and post often.
Here are some links to help you out.
Site rules: http://ihatedialysis.com/forum/index.php?topic=540.0
Chat: http://ihatedialysis.com/forum/chat/flashchat.php
The best search engine for kidney related issues: http://www.kidneyoogle.com
Relationship advice: http://www.renalromance.com
Sluff, Administrator
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Hey Adam, you have a great attitude!
Welcome to the community.
:beer1;
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:welcomesign; Adam
I love your name its my sons also
I will look forward to reading your technical slant on things :)
Kim
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Welcome Adam, good to have you aboard.
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G'day Adam, and welcome!
I'm like you.. I ask questions and like to have the machine where I can read it and bug the nurses if the pump speed is wrong (for me) or I want a profile or whatever...
In general I think they don't mind really. I once had a chat with one about if they felt I really bugged them about the details, or the lab results or whatever it was and they said no it was good to show an interest in your treatment... they felt it was better than some who were more in denial or didn't want to know what was going on.
For me, knowing what is happening and why helps me personally to feel more in control.. well not in control, but understanding of where I am at.. and that in turn helps me with understanding why I need to keep the fluid down, or to watch the diet etc etc.
Gee Adam, starting HD after being hit with a diagnosis like that just 4 days before would have been tough.. what a double whammy to suddenly find out you're in a bit of trouble and then you have to go on dialysis right away! I can't imagine that (I had years notice).
Welcome aboard!
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Welcome to our community, Adam! When someone who has lurked finally joins I know that we have someone who really appreciates the site, because you have taken the time to assess us. But, NO FAIR!!! You get to see your machine. My nurses do not like to turn the machine towards me. My only recourse is to do what I saw another dialyzor (Bill Peckham's word) using a mirror. That is what I do. I only check 3 things, though - BP, pump speed, and TIME REMAINING!
I am looking forward to hearing from you. We like members to post regularly. Use this site to vent, when you need to.
Bajanne, Moderator
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Hello Adam, Nice to meet you!
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Thanks to everybody for the welcome. Knowing what's going on with my treatment is one of the biggest things helping me through this. Although I won't be able to be in full control until I start home hemo, I at least have some influence in my treatment. I'm able to let the techs know if I have any unusual readings in my data, and I've been given authorization to reset my own alarms (depending on what they are for) so I don't have to wait 10 min. with the alarm beeping in my ear, waiting for a tech to get a chance to reset it (our centre is VERY understaffed). The main thing I don't like about my centre is there is no option for self-care. I'm probably the only patient there who has been given permission to even touch the machine. Well, anyway, it's good to be part of this site. Take care.
Adam
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Welcome Adam,
You'll like it here. Everyone's very friendly and helpful!
By the way, your avatar almost made me faint!! I'm really afraid of needles!!
::)
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:welcomesign; Andy, You have a real positive attitude!
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Welcome to the site. There are a lot of answers out there.
kitkatz,moderator
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Hey Adam, welcome to ihatedialysis.com, I, too, enjoy your attitude and look forward to more posts. I am also glad that you have taken interest in your treatments, i am sure with the some of the info you have learned in such the little time of being on hemo, you can help others here in some way. I look forward to hearing more from you and if you have any questions, comment and/or concerns of your own, please do not hesitate to post them. ;)
Goofynina/Admin.
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:welcomesign;
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:welcomesign;
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:waving; Hey Adam,
Nice to meet you!
Karol
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hello Adam :welcomesign;
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Hi Adam! Just had my hemo catheter (same place as yours!) taken out a couple of weeks ago, since my pd catheter was officially declared healed! I must say, it wasn't too bad doing hemo that way. I do prefer PD though! Welcome aboard!
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It is my distinct pleasure to tell you all that Adam W is my 25 year old grandson that I spoke of in my original introduction.
He is one of the deepest loves of my life, and I am soooooooo proud of him and the way he has handled this health crisis.
He is very smart, and I plan to learn alot from him when I start my own dialysis. Dont tell him, but he is my hero.
I will make every attempt to NOT embarass him to badly on the boards LOL.
~ Cee / Nana
EDITED: Merged Thread - Sluff, Admin
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:welcomesign; Adam!!!! Glad to see you here.
Earlinda
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:welcomesign; to the community, Adam!
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Welcone to the site. You will learn a lot.