I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Angiepkd on September 10, 2015, 08:53:49 PM

Title: Liver resection after kidney transplant?
Post by: Angiepkd on September 10, 2015, 08:53:49 PM

Has anyone out there with PKD also been diagnosed with PLD (polycystic liver disease)?  I have always known that multiple organs had cysts, but the liver never bothered me.  One day I had severe shoulder pain that stemmed from a huge cyst on my liver.  I had a liver cyst fenestration during my double nephrectomy almost 2 years ago.  This stopped the shoulder pain, and I thought the problem was resolved.  Recently, my liver has begun to enlarge and is now palpable on my abdomen (which really seems to excite interns).  I have a friend who had a resection of almost half her liver at the mayo clinic in Texas.  Since most people who have PLD due to PKD still have normal liver function, I wonder if it is something I should consider.  I have a lot of pain in my upper stomach and back, and it's starting to be difficult to sleep.  My friend said she was glad she had it done, since she was in tremendous pain, but the recovery was much longer than transplant.  Just trying to get another person's perspective.  Any help would be greatly appreciated!  :stressed;

Title: Re: Liver resection after kidney transplant?
Post by: cassandra on September 12, 2015, 02:56:00 PM

I'm sorry you have your liver pain now Angie. I would discuss it with a transplant Dr you can talk to, but as me, I would have the resection done because it's causing so much pain. Just make sure they know they can't give you any blood that's not leukocyte depleted.

Love, Cas

Title: Re: Liver resection after kidney transplant?
Post by: Angiepkd on September 16, 2015, 06:44:55 PM

Thanks, Cas!  I am afraid that I will have to start talking to the liver team, with or without my kidney docs approval.  I feel like I am pretty tough, but it is starting to get to me. I had to take a quick flight to Florida and back on Monday, and was pretty miserable the whole time.  I will see what the kidney doc says when I return on the 24th.  They usually just change the subject because I am finally doing well with the new kidney.

Title: Re: Liver resection after kidney transplant?
Post by: lainiepop on September 17, 2015, 05:36:18 AM

I know it's not the same thing but I had a bowel resection post tx with no adverse effects to the kidney. Xxx

Title: Re: Liver resection after kidney transplant?
Post by: Angiepkd on September 17, 2015, 06:41:09 PM

Thanks laniepop!  I worry about any surgery after transplant.  So many GERMS in a hospital!  I have put off another procedure for the same reason.  Kind of feel like I have been through enough this year!