I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Zach on August 13, 2015, 07:21:38 AM

Title: EVERYONE Should watch: Video Presentation from UK Home Hemodialysis Patient
Post by: Zach on August 13, 2015, 07:21:38 AM
Queen of Dialysis describes her dependence on a machine | Maddy Warren | TEDxRoyalTunbridgeWells
https://www.youtube.com/watch?v=wxhbkn4H02U

Maddy was a trustee of Kidney Research UK and has been a lay advisor to the London Strategic Clinical Network for Renal Medicine and a member of the national Kidney Health 2032 future strategy initiative. She volunteers as a peer supporter for dialysis patients at Guy’s Hospital and is a passionate advocate for promoting home dialysis and patient independence.
She's been on dialysis for over 16 years.

 :beer1;
Title: Re: EVERYONE Should watch: Video Presentation from UK Home Hemodialysis Patient
Post by: cassandra on August 13, 2015, 02:37:57 PM
Thanx Zach

         :cheer:
Title: Re: EVERYONE Should watch: Video Presentation from UK Home Hemodialysis Patient
Post by: Vt Big Rig on August 13, 2015, 03:55:28 PM
Her attitude is inspiring. Thanks for posting.
Title: Re: EVERYONE Should watch: Video Presentation from UK Home Hemodialysis Patient
Post by: PrimeTimer on August 13, 2015, 06:43:39 PM
Thinking of Maddy Warren will give me a boost and help me help my husband do our next home-hemo session. 
Title: Re: EVERYONE Should watch: Video Presentation from UK Home Hemodialysis Patient
Post by: Hootie on August 13, 2015, 07:34:41 PM
Great message! We feel same way at our house. Thanks for sharing Zach!
Title: Re: EVERYONE Should watch: Video Presentation from UK Home Hemodialysis Patient
Post by: JW77 on September 04, 2015, 01:32:45 AM
Brief touch on 'diet and lifestyle changes'  THAT needs to change internationally to have any effect of slowing/reducing CKD  . Oddly KR doesn't do much to research that.

Nice bit of inspiration porn:)

Still a lot of issues around heamo, you can't travel easily (most units are at full capacity), and privatisation often results in reduced patient care..:)