I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: frankswife on July 21, 2015, 03:42:26 PM

Title: Frank is getting a transplant!
Post by: frankswife on July 21, 2015, 03:42:26 PM

Here we are at the hospital waiting for Frank's new kidney to get here. They told us that the donor tested positive for Epstein Barr and CMV. They say it's not really a problem that alit if people carry these viruses, but I'm freaking out. Anybody know anything about this?

Title: Re: Frank is getting a transplant!
Post by: Deanne on July 21, 2015, 04:20:04 PM

Congratulations! I can't wait to hear all's well after surgery.  :yahoo;

It sounds like about 80% of adults test positive for CMV, so if Frank already tests positive, it's a wash / doesn't matter. Possible issues come in if Frank tested negative for CMV. It'll mean he needs to be on an anti-viral medication for much longer, and he's at greater risk for experiencing effects of the CMV himself. I know some here have ended up with CMV post-transplant and they got pretty sick from it. They told me during my transplant evaluation that I tested negative. Luckily, so did my donor.

I don't know anything about Epstein Barr. I don't remember them ever telling me that either the donor nor I were tested for it.

Title: Re: Frank is getting a transplant!
Post by: iolaire on July 21, 2015, 06:57:03 PM

Good luck. I hope it all works out.  Try to let the stress from the wait go.

Title: Re: Frank is getting a transplant!
Post by: MooseMom on July 27, 2015, 11:10:32 AM

Any news? 

Title: Re: Frank is getting a transplant!
Post by: PrimeTimer on July 27, 2015, 06:56:43 PM

That is great news! It's always a good day to hear when someone gave and someone received! Best wishes! Please keep us posted!  :thumbup;

Title: Re: Frank is getting a transplant!
Post by: frankswife on July 30, 2015, 07:43:08 PM

The surgery went well and the kudney worked right out of the gate. Frank's home now. We just had his first clinic today. His Creatinine is 1.1! He looks and feels 100% better already. His incision is draining alot if what looks like water, which they tell us is normal. All in all, so far so good!

Title: Re: Frank is getting a transplant!
Post by: cassandra on July 31, 2015, 02:12:14 PM

Fantastic news

     :yahoo;


Lots of love, and luck, Cas

Title: Re: Frank is getting a transplant!
Post by: PrimeTimer on July 31, 2015, 07:58:11 PM

Congrats! Thanks for sharing the good news. Hope the success continues!

Title: Re: Frank is getting a transplant!
Post by: Vt Big Rig on August 01, 2015, 06:26:35 AM

Keep going Frank, and CONGRATULATIONS. :yahoo; :yahoo; :yahoo; :yahoo;

Title: Re: Frank is getting a transplant!
Post by: McKay on August 11, 2015, 09:50:38 PM

Congrats, such GREAT news!  Keep plugging away, it is a complex journey but worth every second.  This is the most indescribably incredible experience of our lives - isn't it wonderful to have others to share with - who've been there!  I'm a wife/caregiver, too.  We are so blessed to be part of such wonder!

Title: Re: Frank is getting a transplant!
Post by: Jean on August 12, 2015, 06:12:02 PM

So happy for both of you!!! A new life starts now......................... :bow;

Title: Re: Frank is getting a transplant!
Post by: SooMK on August 12, 2015, 08:08:57 PM

Congrats!