I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Whamo on June 18, 2015, 08:51:26 AM

Title: Phosphorus Spike
Post by: Whamo on June 18, 2015, 08:51:26 AM
I've been eating edible marijuana to sleep at night because my 10 hour dialysis routine keeps me awake.  It works like a charm, unfortunately, my phosphorus numbers spiked.
I did some searches and discovered others have had the same experience.  I didn't sleep at all last night because I stopped using it.  Does anyone else have
any experience with this?
Title: Re: Phosphorus Spike
Post by: Deanne on June 18, 2015, 09:20:56 AM
I'm post-TX, so I can't talk about phosphorus spikes, but what if you take extra binders with it, and/or use less? I used about a quarter-sized bite of edible cookies and it was enough to help me sleep.
Title: Re: Phosphorus Spike
Post by: Rerun on June 18, 2015, 10:27:45 AM
I would agree... take a binder or two.
Title: Re: Phosphorus Spike
Post by: Charlie B53 on June 19, 2015, 05:50:48 AM

Lots of common sense in here.

Take the binders.

I had a high phosphorus once.  Dr prescribed binders and I didn't take them as I knew it was a one-time thing caused by something I eat the night before the labs were drawn.  Sure enough next months labs I was back to the 'normal' range for me.  So now I have THREE big bottles as every once in a while the pharmacy must think I must be running out and send me another.  I've written my Primary Dr and told her I am NOT taking these and PLEASE make sure they do not send me any more.   The co-pay isn't that bad, but These bottles are simply going to sit on the shelf until they get thrown away.  I haven't found any place yet to donate un-used meds.  What a waste.  I could almost fill a grocery bag with un-used meds.  Many with unbroken seals,  a lot more partial bottles of discontinued meds.  It would be very neat to find an organization that would take these and USE them for people that otherwise could never afford or have any access to meds that they need.  That would sure beat trashing them.


Title: Re: Phosphorus Spike
Post by: iolaire on June 19, 2015, 06:02:41 AM
I've been eating edible marijuana to sleep
Don't they also offer it as an oil?  I wonder if using oil or a butter would have lower phosphorus since its less of the green part?  (Alternatively that might even more concentrate the phosphorus...)
Title: Re: Phosphorus Spike
Post by: Deanne on June 19, 2015, 07:32:40 AM

These bottles are simply going to sit on the shelf until they get thrown away.  I haven't found any place yet to donate un-used meds.  What a waste.  I could almost fill a grocery bag with un-used meds.  Many with unbroken seals,  a lot more partial bottles of discontinued meds.  It would be very neat to find an organization that would take these and USE them for people that otherwise could never afford or have any access to meds that they need.  That would sure beat trashing them.

I so agree with you! I also have a stash of unused meds. I don't want to throw them away because I know someone could use them. Not everyone has great insurance and some of these are exceptionally expensive. I'd rather give them to someone than throw them out, but it's illegal, so I'm reluctant to offer them up too freely. I tried sending someone locally a vague message based on something I saw online that told me he's on dialysis, but I'm sure he thought I was a spammer so he didn't respond.