I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: skinnacat on October 18, 2014, 07:31:36 PM
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i am way nervous about this whole deal...sometimes i feel very alone in dealing with this kidney stuff and i am very glad i found this wonderful site
with all these great people that know exactly how i feel...it gives me some comfort thats for sure
its just really scary not knowing exactly how this pd dialysis is gonna go...i am a little paranoid about infection and a little worried about my kitty
but i really tried to sanitize my bedroom good for when the big day comes
so now its just a waiting game to see how fast my creatinine levels go up....i hate the not knowing...its almost like i just want to get it over with or
something ...i mean i dont want to be on dialysis but i am way tired of being sick too...wish there was a magic pill to take to fix my crappy kidneys but
no luck there...but i will try to stay positive...my only side effect from this stage 5 kidney disease is being pretty tired and i had the iitching thing pretty bad until
i cut way back on the phosphorus in my food...that helped so much..i couldnt believe it!!!
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G'day nervous wreak! The waiting is sometimes a worse time than the actual dreaded dialysis, because of the unknown. All the best with PD. I know it's hard but try not to worry - instead: ask, google, listen, learn. This site is a great place for that. IHD-ers love to help. I spent just 10 months on PD and while I found it daunting at the start, my hubby and I coped well. Having grown children helped, and being self-employed helped also, so we were lucky there. Follow the rules, be extra careful with the handwashing and other cleanliness routines and I'm sure things will be fine. Hope you are feeling better soon. :flower;
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Hello Skinacat, and a very warm :welcomesign; to IHD...
You've every right to be nervous... Anybody who has an ounce of common sense would be...
You'll find that we're a friendly lot, and we've lost of experience to share... Lean on us... That's what we're here for!...
Darth... Moderator...
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I am in the same spot you are in. Sometimes I just want to get it over with!!! In my more calm moments, I am okay.
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well thanks so much for the kind words...it always is comforting to know i am not alone in this
this is a great place to come and learn how everyone else gets through it day after day
i have learned alot from reading everyones post and from their experiences
i am hoping i can get through xmas without the dialysis...its like a goal or something
but i have learned the kidneys are very unpredictable and things can seem to be going great
then all of the sudden the creatinine numbers jump...but i will try to stay positive ::)
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I was 46 when I had kidney failure. I did PD for 3 1/2 years (with 6 cats in the house). I even worked the whole time and even did a noon time PD exchange in my office.
It could be filling at times carrying around that tummy full of fluid but I got used to my routine. Even took some short trips, taking bags of fluid with me.
Peritonitis is a possibility. I had it 3 times (once the fault of a nurse in the hospital who did not follow glove procedure). I got a transplant from a deceased donor at the end of that time.
After 14 wonderful years, my transplant finally failed after I caught walking-pneumonia one fine Spring. I am now on hemo dialysis for the last 2 1/2 years and am on the list for another
transplant in Augusta, Georgia. I am 67, retired after teaching computer information systems for 31 years, and still keep as busy as I can.
Even if I don't get another transplant, I will continue to kick the Grim Reaper's butt and live my life to the fullest. Learn all you can about your disease and your body and continue
to ask the doctors questions. They can be a little slack. It is your life. If they don't do you right, fire them and get others. Be nice but firm. Hang in there and God bless you.
Craig