I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: skinnacat on October 18, 2014, 06:57:46 PM

Title: new to i hate dialysis
Post by: skinnacat on October 18, 2014, 06:57:46 PM
my name is tammy and i am 42 years old and i am approaching dialysis
i have a rare autoimmune disease that involves my thyroid gland and the antibodys from
that are attacking my kidneys filters and destroying my kidneys
i have had this disease scince i was 23 years old and really seems like all my life
i am in stage 5 right now will a creatinine level of 5.1...i dont feel that sick ..all my labs are normal except the bun, creatinine and gluclose
i am married and have twin autistic boys that just turned 17 years old...its alot to deal with and some days seems impossible for me
Title: Re: new to i hate dialysis
Post by: cassandra on October 19, 2014, 09:46:58 AM
Welcome to the site skinnacat


          :welcomesign;

Take care, Cas
Title: Re: new to i hate dialysis
Post by: MaryJoe on October 19, 2014, 09:53:00 AM
 :waving;  Welcome to IHD skinnacat! Sounds like you have a full plate to deal with. Let us know how we can help.
Title: Re: new to i hate dialysis
Post by: Jean on October 19, 2014, 02:40:29 PM
WOW, you do have a full plate to deal with. But, dont be afraid, we are all in the same boat, so ask away!!
Title: Re: new to i hate dialysis
Post by: skinnacat on October 19, 2014, 05:00:48 PM
ya its been pretty full for as long as i can remember...but i have learned that i can deal with whatever comes my way
so i am trying to be strong in all  this but there are days that i feel very overwelmed...the other sad part to this is my mom
died of cancer not even 2 years ago and not being able to talk to her about this is really hard..she was only 56 years old
Title: Re: new to i hate dialysis
Post by: PrimeTimer on October 19, 2014, 05:14:14 PM
Welcome, skinnacat! I'm not the one on dialysis (my husband has Stage 5 ESRD) but I am always shocked and amazed at what people with kidney failure go through and how they deal with it. I can relate a little tho..I help my husband do home-hemo, I have an autistic nephew and lost my mother a year ago. This site has been very helpful so I hope it does you some good, too.
Title: Re: new to i hate dialysis
Post by: Gerald Lively on October 19, 2014, 11:52:00 PM
Dear Skinnacat:
Next time you see your doctor ask them about your immunoglobulin levels. Your blood tests should already have it listed.  Low levels suppress the immune system, raises hell with the kidneys, can cause asthma like symptoms and is often overlooked.
I went through five doctors before this came to my attention and already I'm seeing results.
Dialysis; for the best comfort, learn how to calculate the water removal.