I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis - NxStage Users => Topic started by: malibu1 on October 16, 2014, 06:56:55 PM

Title: Got the post-dialysis jitters?
Post by: malibu1 on October 16, 2014, 06:56:55 PM
Mr Malibu gets a uneasy jittery feeling after dialysis.  He says he is scatter-brained, feels edgy  and tries to do 6 things at one time, can't settle down, certainly can't sleep and it takes about 3 hours for this feeling to go away.  His voice is horse. 

He is not week or dizzy, and is in no pain.


Any of you feel this way?  Have you determined what it is?
Title: Re: Got the post-dialysis jitters?
Post by: obsidianom on October 17, 2014, 03:20:01 AM
Mr Malibu gets a uneasy jittery feeling after dialysis.  He says he is scatter-brained, feels edgy  and tries to do 6 things at one time, can't settle down, certainly can't sleep and it takes about 3 hours for this feeling to go away.  His voice is horse. 

He is not week or dizzy, and is in no pain.


Any of you feel this way?  Have you determined what it is?
If you give some specs on his dialysis it would help.
What amount dialysate does he use, what blood speed, how much ultrafiltration, how many days per week, how long are treatments, what sak number, what is his weight, what medicines does he take in general, what other medical issues other then dialysis , and what caused his kidney failure? The more info the better if you feel comfortable posting it.
Title: Re: Got the post-dialysis jitters?
Post by: malibu1 on October 18, 2014, 07:49:41 AM
Just wondering if anybody else felt like this and what they thought of it. 
Title: Re: Got the post-dialysis jitters?
Post by: cattlekid on October 18, 2014, 10:27:26 AM
Well, I haven't been on dialysis now for 18 months, but I do remember issues after my home hemo treatments.  I did most of my treatments after dinner between 7-10 PM.  This meant that after cleanup, I needed to get to sleep right away to be able to get up at 6AM the next day for work.  But I was always wide awake and jittery after dialysis.  I would be awake until 1-2 AM which would make me a zombie the next day. 

I finally gave in and asked my doctor for a LIGHT sleep aid.  He put me on a low dose of temazepam and taking one of those after treatment along with the Requip I was taking for my restless leg finally allowed me to calm down enough to get some sleep before work the next day.
Title: Re: Got the post-dialysis jitters?
Post by: amanda100wilson on October 18, 2014, 11:44:51 AM
I am a bit the same.  I can't think straihght and find it hard to irganize my thoughts. If I do treatment too near bedtime, I also have problems sleeping.
Title: Re: Got the post-dialysis jitters?
Post by: malibu1 on October 18, 2014, 12:01:27 PM
Complaints to nurse and Dr yield unusual looks and the standard: "that's not due to dialysis".  Dr did prescribe a sleep aid, and that helps but Mr Malibu does not like to take it.  The irony is not lost: kidney failure, dialysis, transplant, back on dialysis...and he doesn't want to take a pill?!?!? 

Good to know we are not alone.  We have not ever been in-center, so have not discussed much with others of like mind and medical issues except through forums like this.  BTW he did home hemo dialysis Nov 2009 - July 2012, transplant, started home hemo (through cath) July 2014.

We still also get unusual looks when we say that gastric issues are caused by dialysis or something with the kidney.  We noticed right off though that 'digestive problems' is now a question on the flow sheet.  :o)
Title: Re: Got the post-dialysis jitters?
Post by: PrimeTimer on October 18, 2014, 05:33:08 PM
My husband does home-hemo and says he feels his best right after treatment. He has no trouble sleeping. Maybe it's because he's active all day from working. Also, since he has lost weight since starting dialysis, he rarely has sleep apnea anymore and doesn't snore as much or as loud (a plus for me). We do his treatments in the evening and by the time we're done, he's hungry so eats, watches some tv and then conks out. About the only time he feels shaky is if his blood sugar drops too low (he's diabetic).