I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: kitkatz on March 22, 2007, 09:48:04 PM
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My 3000 post should be a rant they said, so here goes.
I am posting my 3000 post here because I am on dialysis. I should not have to be posting here. I should have good kidneys. Ones that work. Yet here I am with two dead kidneys, facing all the trials and tribulations of having to get listed for that cadaver kidney donor. I think it is pretty morbid that someone has to die in order for me to get a kidney. It seems weird in a way. I wish I had a crystal ball and could see into the future. But then why spoil the ride? I feel like I am on a giant roller coaster and it is a sucky one because you cannot see around the next bend.
LIST is a four letter word in my house, until I get on it!
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I am with you in your rant, Kitkatz!
However, please excuse my little Pollyanna interjection. If it wasn't for this terrible disease, you would not have gotten to know us (especially me. how could your life be worth anything without knowing me ;D)!
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Keep on ranting Spunky, til ya get to at least 10,000 posts. Then nap.
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Woohoo, congrats on your 3000th. :beer1;
Heres to the next 3000, entertaining, informative, funny and ranting posts. ;)
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congratulations on your 3000th post, i myself was happy with being a newbie, see i don't really post that much.(I chat a lot, mind you) so i think I'll die before i even reach 1000 posts.... oh well life is a beach n the you....swim in it...
cheers,
Rolando
:beer1;
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Doctors don't seem to realize how stressful it is to get listed. It is a fairly big part in your future life that you are trying to plan. Go hit them all with big sticks. Are there any other kind?
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Just be glad you don't live in Canada, where the list is 8 years long, thanks to the country having the industrialized world's lowest per capita organ donation rate, and arrogant nephrologists refusing to let paired organ donation programs operate, such as they have in the U.S., because "they are still studying the matter to make sure it is ethical." Just because they are experts in the machinery of the human body, doesn't mean they know anything about a moral, philosophical topic like ethics, but try telling them that! (If they knew anything about ethics, they would not put their own leisurely determination of whether the program is moral above the interests of patients who are dying without such a program!)
Also, many of the criteria used to determine who gets on the transplant list and who does not are entirely arbitrary, being designed to keep the list artificially short so that those on it have at least some hope of ever getting a transplant. Transplant coordinators and nephrologists love to play God by making patients squirm under the pressure of their irrational decisions, and many are the patients ruled unfit for transplant on psychological grounds, because of overweight, excess age, predicted non-compliance with post-transplant medications, etc. are in fact perfect candidates for transplant on purely objective medical criteria. The worst absurdity I have seen in this regard is the policy at some centers to assume that patients who cannot perform the nearly impossible task of self-torture in denying themselves a normal fluid intake will also necessarily not be able to perform the utterly simple task of taking pills twice a day post-transplant because they are "non-compliant" and will always fail to comply with any and every regimen!
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There is an eight year wait list in the state of California for a kidney and the wait for an O+ kidney is even longer. *Sigh* I agree with most of what you said about the medical profession and its whims. :banghead; :banghead; :wine; :wine;
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Hoops, hoops, hoops.
I can't jump any higher!
Hang in there, kit!