I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: boats on June 24, 2014, 01:07:39 PM

Title: Just Starting PD
Post by: boats on June 24, 2014, 01:07:39 PM

Hi all, this is my 4th day on home PD using the Liberty Cycler. I am a 66, male living in northeast Oklahoma. Discovered three years ago that I had kidney disease and luckily was able to stave off dialysis til now. I somehow developed peritonitis before I started using the machine so had to do manual transfers for almost a week before going on the cycler. Am having some discomfort during the drain phase usually in what Liberty calls the "ultrafiltration" segment and experiencing longer drain times than fill times. Wondering if that is normal?

Title: Re: Just Starting PD
Post by: Ninanna on June 24, 2014, 01:45:40 PM

Hi Boats and welcome!  I'm glad you found us and I'm sure someone who knows more about PD than I do will be around shortly to answer your question :)

Title: Re: Just Starting PD
Post by: Deanne on June 24, 2014, 01:56:39 PM

This happened for me, too. I had a lot of drain pain - it hurt a lot during the end of the drain time and sometimes the drain took a long time. It gets better over time, but my center changed my program so only the final drain tried to pull all of the fluid out. The other drains left some fluid remaining and moved on to the next fill. I'm sorry that I don't remember what the name of this program is called now. It's something they programmed into my cycler. I received a transplant in February and I've already forgotten a lot!

My fill times weren't any longer though. Have you tried changing your position in bed? I think I got so that I automatically flipped over to my side in my sleep during a fill or a drain to make sure I didn't block the lines.

Title: Re: Just Starting PD
Post by: Joe on June 24, 2014, 03:54:07 PM

Hi there Boats, and welcome to IHD! It does get better, just takes some time and your body getting used to the cycle. Your team can modify your program if need be, but typically it will work out. One thing, tell your team everything that is going on, no matter how trivial you think it may be. For the first bit, they will be your guide and saviors. Best of luck and keep letting us know how you are doing.

Title: Re: Just Starting PD
Post by: Bambino_Bear on June 25, 2014, 01:36:30 AM

 :welcomesign; Boats!

I think the setting Deanne was talking about is tidal. 

Hope that helps!

Title: Re: Just Starting PD
Post by: Darthvadar on June 25, 2014, 04:39:41 AM

Hello Boats... You're very  :welcomesign; to IHD...

My mum's on PD for years....

Hope to see you her often...

Darth...

Title: Re: Just Starting PD
Post by: boats on June 25, 2014, 01:32:33 PM

Thanks to all who have offered encouragement. Early on I was beginning to wonder if I'd made the right decision to opt for PD, but as some have said, each it gets a bit better and easier with less pain. Hoping now to settle into a routine and getting on with life as it is.

Title: Re: Just Starting PD
Post by: Poppylicious on June 28, 2014, 09:03:13 AM

Hello boats, and  :welcomesign;!

I hope you and PD start getting on a little better as time goes on.

Poppylicious, Moderator