I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Cowdog on May 23, 2014, 07:29:50 AM

Title: Velphoro?
Post by: Cowdog on May 23, 2014, 07:29:50 AM
Anyone using Velphoro as their binder? Results/Issues/Observations?
I usually push the envelope on phosphorus(5.0-5.3 range) so yesterday my Neph asked if I'd try a 10 day sample of FMC's Velphoro to let him see how it works in the real world. I start taking it tomorrow, 1 pill per meal, then we will pull a lab in 10 days to see how my pho level is trending.
Hope it works, one chewable per meal will be much better than taking a hand full of Renvela.
Title: Re: Velphoro?
Post by: cdwbrooklyn on May 23, 2014, 09:53:30 AM
No...never heard of it.  Let me know how it works.
Title: Re: Velphoro?
Post by: justme15 on May 23, 2014, 06:43:19 PM
yes im taking it and i love it! it is cherry flavored. i also wrote about it in obsidianom's post.
Title: Re: Velphoro?
Post by: Speedy1wrc on May 26, 2014, 07:40:13 PM
I just checked my plans formulary and it is way more expensive than Renvela. Ouch!

If I can get a sample I am all for adding it to my Renvela to help get my P down even further.
Title: Re: Velphoro?
Post by: nursey66 on May 26, 2014, 09:15:34 PM
My husband's Neph wanted him to try it, it was $975.00 for 90 pills, 1 months worth. We left the RX at the Pharmacy !!  That's nearly his whole check !!!
Title: Re: Velphoro?
Post by: justme15 on May 27, 2014, 01:14:18 AM
Mine was 0. I met my deductible, so according to my plan all meds are covered!
Title: Re: Velphoro?
Post by: Tío Riñon on May 27, 2014, 09:05:33 AM
I put in the request with my Dietitian a couple of weeks ago.  Now it is weaving its way through the insurance process since it is not on the formulary.  Hopefully I'll get approval and it won't cost too much. 

I will post my results if I get to try it too.  3-4 of those huge Renvela pills each meal is not appetizing!
Title: Re: Velphoro?
Post by: Speedy1wrc on May 28, 2014, 08:02:42 AM
I'm OK with taking any quantity of Renvela. The trouble is, I can't afford more than 4 per day. I could really use 5 or even 6.
Title: Re: Velphoro?
Post by: Tío Riñon on June 03, 2014, 11:21:10 PM
I just received word that I've been approved by my insurance company to receive Velphoro.  I'll pick it up tomorrow.  Luckily, the co-pay is only $20.  I'll share my experience with it next week.