I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: danr on February 12, 2006, 01:28:00 AM
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I am the care giver for my fiancee who just started dialysis in November of 2005. She had dialysis in the hospital for two weeks and felt great after every session. Now she is going to a clinic, she has a port in her neck, and she gets severely dehydrated after every session! She has been in the hospital or emergency room every week since Dec 1st. She was taken to the er tonight at 5 pm. She was vomiting,and had a massive headache. I called both her internal med doctor and her renal doctor and asked if they could recommend that she be hospitalized for a few days since she was just there less than a week ago for the same symptoms. They said they couldn't make a diagnosis on the phone, just take her to the er. Anyway they gave her a shot of morphine for the pain, a shot for the nausea and sent her home at 9:30 pm.
I got home from work at 1:30 am and she was just as bad as when I sent her to the er just four hours earlier!!! I called the er and asked why she had been discharged since she is still obviously sick, and they said they couldn't find a reason to keep her!!!
I used to live in Minnesota and the health care there is wonderful compared to the health care here in Texas! I wouldn't let the doctors here work on my dog, much less someone I love so much! I have never seen more incompetent doctors in one place ever!!!!
Anyway I need help from you long term dialysis patients!!!! I need to know how to get this situation stabilized!!! If any of you has had this problem, please let me know what to do about it!!!
My fiancee is a 47 year old woman, I am using her e mail address for this site in case she does get better and needs info on dialysis herself. She is a long term diabetic, and her final renal failure came as a result of a massive dose of antibiotic that she was given while hospitalized with pneumonia in November of 2005.
When she first started dialysis in the hospital, she felt great. They took about ten pounds a day off her for three days.
The first time she went to the dialysis clinic, she got severely dehydrated and she hasn't recovered since. Her renal doctor has raised her base weight by 17 pounds since she first started dialysis, and she is still dehydrated everytime she gets treatment!!! They routinely take her top blood pressure number down between 80 and 60 then make her sit and wait until the pressure comes back up to 100 before they let her go home. Then they write on her chart that her blood pressure was 100 when she left, not mentioning that it was ever lower than that!
I talked to the dialysis techs at the hospital and they said that the blood pressure should never be taken below 100 EVER!!! Is this true? And is this a common practice? I don't know for sure, but it seems that the clinics must get paid by the pound of fluid that they take off the patients. That is the only way to explain why they would do such a thing at all. If anyone knows this for a fact, let me know please!
She had been given a med called phoslo, two 667 mg pills three times a day by her internal med doctor. I was trying to figure out why she has been so sick and I looked at the phoslo information on the rx bottle. It turns out that on the bottle it said that if you experienced nausea, vomiting, and constipation, to call your doctor. Those were all her symptoms!!!!
Then it said that there were drug interaction warnings for blood pressure meds (that she is on) water pills (that she is on) and calcium supplements (that she is also on)
I called her renal doctor's nurse and told her of my findings. The doctor called later that day and said go ahead and take her off the meds. I had done so two days before that!!
She had been steadily improving by not taking the phoslo and not going to dialysis for a week until today when she went to dialysis for the first time in a week. She started vomiting on the way home and had the massive head ache that she still has now even after her er visit.
First I need to know if anyone has had this experience and if you can give me some advice on how to solve this problem. The renal doctor doesn't think her problem has anything to do with dialysis and I don't know enough about it to make a judgment for myself, but it sure seems that it is VERY dialysis related!!!
I am half a heartbeat away from firing both the renal doctor and the internal med doctor right now and filing a malpractice lawsuit on the both of them since they have had 12 weeks to at least stabilize her and they are failing miserably.
Please, someone with more experience than I have, let me know if you think this is just incompetence on the doctors part or is there an underlying problem the doctors should have figured out by now!!!!
I do believe that even the doctors in Texas could figure out the problem if the patient can tell them what is wrong!!!
HELP ME PLEASE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Danr, first of all welcome to this site. This is a great place to rant and vent. We can give suggestions from personal experiences, but that is all they are... "suggestions."
I take it your fiancee is still producing urine because she is on a water pill (diuretic)? She needs to keep her dialysis appointments. You mentioned she didn't go for a week; why? How many hours is she perscribed to be on the machine? ???
Let's get off the introduction page and continue this on the General Discussion area so more people can get involved. :-*
Just go to General Discussion and start a new thread.
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Does anyone know what happened with this? This guy only posted once. :(
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Does anyone know what happened with this? This guy only posted once. :(
I will send an email, to the email address on file and find out. :thumbup;
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May not be right but why is she on water pills if she is in diallysis? The treatment are to remove fluids. My blood pressure normally runs low. I can leave the clinic at 85 or above. Does she eat during treatment? I was told blood rushes to stomach when we eat to digest food and pressure can drop. My opinion is they are taking too much fluid of at one time. I could be wrong. If they take to much from me I'm severely tired, light headed and get the erge to vomit. I hope you find your answers.
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This thread is a year old. They have been contacted several times and no response.
THREAD LOCKED - Rerun, Moderator