I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: lynnrlpd1 on February 23, 2014, 06:04:55 AM
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Wanted to ask about extraneal solution. Have been doing PD for a year but do it a little differently in that I do four exchanges during the day off and on and my long dwell at night. No problem until recently I notice I put in 1600 in the evening but in the mornings only take off 1400 so I'm absorbing 200 which caused a problem with fluid and high BP. That only happens after the long dwell. During the day I put in 1600 and take off 1600. Got the HP taken care of using a few green bags for a couple of days. I just assumed the other 200 was coming off when I urinated as I still do but that actually wasn't happening. Anyway I said something to the nurse about possibly using extraneal for long dwell at night and she was like thats not going to happen as it is too expensive. WOndered who uses extraneal and when. I think I would really like to use it for the long dwell or say a day when I'm going to be gone all day and can't do my exchanges until late evening. Like say I have to go to a funeral out of town and will be gone all day I think I would like to use the extraneal so I don't absorb any of the fluid. I guess that is what the green bags are for? Would I use a green bag say if I was going to be gone all day. Anyway I would like to hear who uses extraneal and why and do they complain about the expense?
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It is up to your Dr what you use. Talk to him about how much you re-absorb every night during your longest dwell exchange.
I have heard that the ico is more expensive than our regular bags but I don't see any of the bills so I can't say how much the difference is.
I can tell youo that I have been using ico at night for a few months and it has helped me in two ways. First, not re-absorbing fluid. And second, no absorbing sugar. The body only absorbs a small amount of this kind of sugar, rapidly reaching saturation and no more after that. It's great for diabetics. There is one small draw-back. Some blood sugar monitors will give a false high reading so I can only use an Ultra One Touch meter. I also wear a warning or Medical Alert wristband in case of accident so responders can be alerted to this possible false sugar readings and not hit me with uneeded insulin and craash my blood sugar.
Talk to your Dr at your next meeting.