I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Vdoman on December 16, 2013, 06:18:12 AM
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Hello Everybody,
I am a new member to this message board. I am a 52 year-old man who lives in Orlando with my wife and kids.
i was born with only one kidney and always knew in the back of my mind that it may become a problem someday. Well, those days are coming fast. I meet with my Kidney Doctor later on this week. He tells me that he needs to schedule me for a fistula next.
Dialysis will be a career killer for me as I travel for a living. I didn't want to retire this early.
Very frustrated
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Welcome Vdoman :welcomesign; . I am 54 and started this last September. Just take it one day at a time. I own my own business but the work is physical and I have not been able to do it anymore. It is frustrating and throws up all kinds of hurdles. I hope your transition goes as smoothly as possible for you. Let us know if you have questions we can answer.
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Welcome Vdoman. I understand your frustration. I had to give up a 28 year old income tax preparer business due to foggy brain. I am amazed you lasted this long with out dialysis. Maybe you can do nocturnal and take care of your business too??? :welcomesign;
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Welcome to the site Vdoman, you cld look into Nxstage when doing HD, or (A)PD, so traveling cld still be poss?
Take care, Cas
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Hi Vdoman, and :welcomesign;!
There are different types of dialysis available so make sure you do your research to find out which will work best for you and your lifestyle.
Poppylicious, Moderator
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Welcome to the site Vdoman, you cld look into Nxstage when doing HD, or (A)PD, so traveling cld still be poss?
Take care, Cas
I hear great things about NxStage, however, there are other home hemo modailties that are worthy of consideration. The one to rule out is "3x/week" (many papers on why this is sub-optimal), however, conventional every other day or nocturnal every other day are viable therapies. In order to go "every other day", you generally will need to use a full size conventional machine that can obtain a URR of at least 65% in a single treatment; NxStage is usually more like 45% in one treatment (which is why NxStage patients are typically 5 or 6 days/week)
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Thanks all... I'm getting a big education fast. I see my neph doc today.
I'm looking into any kind of diet, supplement or vitamin that will keep my kidney functioning as long as possible.
Vdoman
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The main two D providers also have what they call kidney school. Its a 1 afternoon deal where they walk through all the options in detail. I did it through Fresenius and I knew a lot of the stuff but it was still helpful and it is no charge to you if a neph refers you to them.
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Oh, and there is http://kidneyschool.org/ . It is, imho, the best online educational resource for those newly diagnosed renal patients who may be facing dialysis. Go to the Learning Modules and read them in whichever order you please.