I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: KatieV on November 18, 2013, 04:34:49 AM

Title: When will I wake up from this dream?
Post by: KatieV on November 18, 2013, 04:34:49 AM

My living donor transplant chain fell through earlier this month after I was determined to be much leas compatible than originally thought.  The surgeon thought I would have a 30% chance of acute rejection right off the bat.  We were very disappointed, but trusted the surgeon.  He was going to continue looking, but my 99.99% sensitivity was going to be hard to match.

At noon on Thursday, I received a call from the transplant coordinator at my local hospital.  They had been offered a zero mismatch kidney for me!  I was #1 in the country for it.  After numerous delays that had everyone nervous, I was finally whisked to the OR at 1 pm on Saturday.  The kidney had been without blood for 22 hours but perked up right away.  It's making tons of urine and my creatinine is dropping (it was 2.48 last night).  I am so excited!  I cannot believe I'm not dreaming! 

It is a wonderful miracle!

Title: Re: When will I wake up from this dream?
Post by: Shaks24 on November 18, 2013, 05:28:50 AM

So happy for you! Good job.

Title: Re: When will I wake up from this dream?
Post by: amanda100wilson on November 18, 2013, 08:03:56 AM

Wow, great news.  Gives me hope.

Title: Re: When will I wake up from this dream?
Post by: coravh on November 18, 2013, 09:40:03 AM

What great news! Thanks for letting us know. At first, I thought this was a bad dream, but once I got through I had a big smile on my face.   :flower;

Title: Re: When will I wake up from this dream?
Post by: CebuShan on November 18, 2013, 09:59:40 AM

Congratulations, KatieV!   :yahoo;

Title: Re: When will I wake up from this dream?
Post by: jeannea on November 18, 2013, 10:20:35 AM

That's wonderful!

Title: Re: When will I wake up from this dream?
Post by: lainiepop on November 18, 2013, 12:51:35 PM

fantastic news Katie!  :yahoo;

Title: Re: When will I wake up from this dream?
Post by: Bambino_Bear on November 18, 2013, 01:01:27 PM

 :cheer: :cheer: :cheer:

So happy for you!!!

Title: Re: When will I wake up from this dream?
Post by: Ninanna on November 18, 2013, 03:56:05 PM

Wow talk about a roller coaster ride!  Congrats!   :yahoo;

Title: Re: When will I wake up from this dream?
Post by: Angiepkd on November 18, 2013, 07:33:00 PM

Congrats Katie!!! So happy for you!    :cheer:

Title: Re: When will I wake up from this dream?
Post by: Jean on November 19, 2013, 12:41:03 AM

Congrats Katie, I am so happy for you. HOpe it continues to go smoothly for you.    :clap;   :clap;

Title: Re: When will I wake up from this dream?
Post by: KatieV on November 19, 2013, 04:03:35 PM

This morning my creatinine was 1.2 - 3 days after the transplant!  It's putting out plenty of urine and phosphorus is in the 2 range!  It is going really good!  I should go home on Thursday.

Title: Re: When will I wake up from this dream?
Post by: jeannea on November 19, 2013, 05:00:30 PM

Great numbers! When you go home just take good care of yourself. It'll be great. Keep a pillow with you for car rides for a while to hold against your incision. And the pillow is handy for coughing or sneezing too. Enjoy eating and drinking!

Title: Re: When will I wake up from this dream?
Post by: MaryJoe on November 20, 2013, 02:57:47 AM

 :bandance; What wonderful news! you and James must be over the moon! I'm happy to hear your new kidney woke up ready to work right away. Remember to be kind to yourself when you get home, don't try to do too much too soon. 
Great lab numbers!   :cheer: g :cheer: Go kidney, go!!  :cheer:

Title: Re: When will I wake up from this dream?
Post by: CebuShan on November 20, 2013, 02:19:54 PM

Now you need to come up with a name for your new companion! 

Title: Re: When will I wake up from this dream?
Post by: cassandra on November 20, 2013, 04:06:12 PM

     :yahoo;   Fantastic news!!!!


Lots of love, and have some extra drinx on me :bandance;   Cas

Title: Re: When will I wake up from this dream?
Post by: paris on November 20, 2013, 05:31:25 PM

Wonderful news.

Title: Re: When will I wake up from this dream?
Post by: Rerun on November 21, 2013, 05:14:43 AM

Good Job Little Kidney!

Rerun, Moderator    :pray;

Title: Re: When will I wake up from this dream?
Post by: MooseMom on November 21, 2013, 07:48:51 AM

Oh wow, this is brilliant news!!!  How are you feeling?  Is your recovery going smoothly?

Title: Re: When will I wake up from this dream?
Post by: Poppylicious on November 22, 2013, 06:16:56 AM

Awww, I love this thread! It's a perfect little miracle!

 :2thumbsup;

Title: Re: When will I wake up from this dream?
Post by: KatieV on November 22, 2013, 04:29:35 PM

Well, I'm still in the hospital as my potassium level is 6.1.  Prograf and Bactrim are causing it to rise.  My phosphorus is an excellent 2.1 though!  They want me to eat cheese!

My new kidney is ridiculously happy with a creatinine of 0.7!

So it's disappointing that I have to spend more time in the hospital and they're shoving all kinds of nasty stuff up and down me to lower my potassium, but overall it's going well.  I hope to go home tomorrow and sleep in my own bed.

Title: Re: When will I wake up from this dream?
Post by: MooseMom on November 23, 2013, 06:33:42 AM

A tx patient is given Bactrim to prevent a particular kind of pneumonia.  I am allergic to Bactrim, so for six months, I had to have a pentamidine inhalation treatment once a month.  If all else fails, maybe your docs will consider stopping the Bactrim and putting you on the inhalation protocol.

Good luck!