I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Concerned Step-Mom on October 24, 2013, 05:28:18 AM
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My step-daughter started dialysis in '98, got a transplant in 2009, which failed last spring. She has been very ill over the years and required a lot of support from her father, mother, and me. She is now in the hospital, and once again giving us quite a scare. I am glad to find a place for support and information. I always seem to be the one that gets on the internet to educate myself as much as possible in order to help her. Thanks for letting me join!
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:welcomesign; and sending best wishes to your step-daughter. It's wonderful she has such a support system around her.
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Thanks. She has been in the hospital for 4 weeks now for calciphylaxis, has had 2 surgeries, and scheduled for another tomorrow. She isn't doing well at all. I am hoping to find some helpful info here. :sos;
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Hi, I hope she is doing better today... How old is she?
Rerun, Moderator :welcomesign;
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Stepmoms are special people and are very much underappreciated.
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She is 44 yrs. old now, and she isn't doing well today, either. She has been on so many narcotics for the pain, she is hallucinating. However, the pain is so great it is hard to reduce the pain meds. It is just a tough situation. They did dialyze her an extra day yesterday, to try and get her calcium down, and get rid of some of the narcotics. It caused her pain to worsen. The debriding they did on one of her ulcers has more necrosis, so surgery is scheduled early in the morning. She is on a downhill slide. She has been on dialysis for 15 yrs , and she has had close calls before. This is the worst, and I feel so bad for her.
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Calciphylasis is a horrible condition, and no doctor should ever allow a patient to suffer from it.
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Welcome Step Mom. Sorry things are not going well. Sending positive thoughts your way!