I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Popsycle24 on September 28, 2013, 07:39:44 PM
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Hi I'm a 33 year old female who found out I had fsgs and nephrotic syndrome 7 years ago. Everything went slow till this last six months. Now I'm waiting for a transplant ( my brother and sister are testing) and I had to start dialysis today. :( I have the neck catheter.
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Oh gosh, it must have been an emotionally really difficult day for you. :cuddle; I am so hoping that both your brother and your sister will be suitable donors and that you get transplanted very soon. I'm so glad you joined IHD because I am really eager to hear how their tests go. I have fsgs, too, so I know a bit about how awful that disease is. Let us know how you are faring on dialysis, and if you have any questions or concerns, please post!
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Welcome to IHD Popsycle. I hope you make new friends here and get answers to any questions you may have. I am sorry you are having to go through this. I hope it goes well for you and you get your transplant soon.
:welcomesign;
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Welcome to IHD. I'm go glad you found us. I'm so sorry that you had to start dialysis but consider it a "bridge" to your transplant. Plus dialysis helps you remember to take your transplant medication. You don't want to end up back on dialysis! LOL
I hope your siblings test out soon.
Rerun, Moderator :welcomesign;
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Thank you everyone, the first dialysis treatment was good at the center but I felt aweful when I got home, nauseous after I ate hours later, headache and so tired. I'm assuming this gets better? Also when I was n the machine I felt like I had period cramps but they went away as soon as I was done. Anyone else have that?
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:waving; Hi, Popsycle, welcome to IHD. I'm sorry you felt so bad after your first dialysis session, and hope it's only a temporary problem. I'm still pre-D, so can't be helpful on this subject. It's wonderful that your brother and sister are willing to be tested as potential donors, I hope your wait for a transplant is not too long. I'm sure members more knowledgeable about dialysis will be along soon with some useful advice and information, I just wanted to welcome you to the site. :waving;
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Hurray for brothers and sisters willing to donate! Hope D gets better for you and you get a new kidney soon. I don't normally have any cramping or nausea unless I try to take off too much fluid. In the beginning I had about 20 pounds of fluid to remove, so I didn't feel all that great some days. Hang in there. It does get better! :cuddle;
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I hope you get a transplant soon. Your body will get used to dialysis but there will be good and bad days. Its very important you stick to the fluid restrictions. The more fluid you have to take off the worse your treatment will be
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Welcome to the site popsycle24
:welcomesign;
Take care, Cas
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:welcomesign; Popsycle24!
Glad you found us but sorry that you had to look in the first place!
Cramping can be caused by drawing too much fluid off too fast.
Best of luck to you!
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:welcomesign;
Can't say that I've ever had period cramps on dialysis......or off dialysis, for that matter. lol :rofl;
I do hope you get to feeling better though, and for a speedy transplant.